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  1. C

    13 year old Boy-can some one help me?

    OkOK-I am trying to quote what you said about chloride/sodium levels.............sorry I am not too good at navigating yet.... I have the seat tests in fron of me and here is what they say total vol, right arm 60 ul sweat cl, right arm 47 meq/l total vol, left arm 55 ul sweat cl, left arm 39...
  2. C

    13 year old Boy-can some one help me?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>okok</b></i> It sounds like you still feel unsure about whether or not your son has CF so i would ask your doctor to do some lab tests that might help rule out CF. Also while this does not allow you to rule out CF it might help ease...
  3. C

    13 year old Boy-can some one help me?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>okok</b></i> It sounds like you still feel unsure about whether or not your son has CF so i would ask your doctor to do some lab tests that might help rule out CF. Also while this does not allow you to rule out CF it might help ease...
  4. C

    13 year old Boy-can some one help me?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>okok</b></i> It sounds like you still feel unsure about whether or not your son has CF so i would ask your doctor to do some lab tests that might help rule out CF. Also while this does not allow you to rule out CF it might help ease...
  5. C

    13 year old Boy-can some one help me?

    no, the nurse did not say what tests they were going to do, I mentioned to her some of the tests that I have heard you guys speak about(cultures, nasal swabs, ct scans) and she said "yeah, he will probably do those"....I am going to get Trevor's entire chart copied front to back and make many...
  6. C

    13 year old Boy-can some one help me?

    no, the nurse did not say what tests they were going to do, I mentioned to her some of the tests that I have heard you guys speak about(cultures, nasal swabs, ct scans) and she said "yeah, he will probably do those"....I am going to get Trevor's entire chart copied front to back and make many...
  7. C

    13 year old Boy-can some one help me?

    no, the nurse did not say what tests they were going to do, I mentioned to her some of the tests that I have heard you guys speak about(cultures, nasal swabs, ct scans) and she said "yeah, he will probably do those"....I am going to get Trevor's entire chart copied front to back and make many...
  8. C

    13 year old Boy-can some one help me?

    The CF Doc just called me and and said that he wanted to run more Test on Trevor because he had many of the "classic CF symtoms" so they are scheduling that right now and he told me "together we will get to the bottom of this" I feel like all these doctors are finally listening to me......If it...
  9. C

    13 year old Boy-can some one help me?

    The CF Doc just called me and and said that he wanted to run more Test on Trevor because he had many of the "classic CF symtoms" so they are scheduling that right now and he told me "together we will get to the bottom of this" I feel like all these doctors are finally listening to me......If it...
  10. C

    13 year old Boy-can some one help me?

    The CF Doc just called me and and said that he wanted to run more Test on Trevor because he had many of the "classic CF symtoms" so they are scheduling that right now and he told me "together we will get to the bottom of this" I feel like all these doctors are finally listening to me......If it...
  11. C

    Scared

    hey Tizzy I just got my son's back and the first set set he had delta F508 and the second set said that no other mutations were found, you can review my post on "newly daignosed". The CF Doc just called me and and said that he wanted to run more Test on Trevor because he had many of the...
  12. C

    Scared

    hey Tizzy I just got my son's back and the first set set he had delta F508 and the second set said that no other mutations were found, you can review my post on "newly daignosed". The CF Doc just called me and and said that he wanted to run more Test on Trevor because he had many of the...
  13. C

    Scared

    hey Tizzy I just got my son's back and the first set set he had delta F508 and the second set said that no other mutations were found, you can review my post on "newly daignosed". The CF Doc just called me and and said that he wanted to run more Test on Trevor because he had many of the...
  14. C

    Teacher 'outed' my daughter!

    Also for future reference, if you do not want the teachers to publicly announce anything about illnesses or diagnosis, please put it in writing each year and make sure that it goes into her file and that all the teachers are aware (they start to switch class in what 7th grade and have 7...
  15. C

    Teacher 'outed' my daughter!

    Also for future reference, if you do not want the teachers to publicly announce anything about illnesses or diagnosis, please put it in writing each year and make sure that it goes into her file and that all the teachers are aware (they start to switch class in what 7th grade and have 7...
  16. C

    Teacher 'outed' my daughter!

    Also for future reference, if you do not want the teachers to publicly announce anything about illnesses or diagnosis, please put it in writing each year and make sure that it goes into her file and that all the teachers are aware (they start to switch class in what 7th grade and have 7...
  17. C

    Teacher 'outed' my daughter!

    No, it is not a HIPAA violation if it is in the school records (I do believe that falls under FERPA, though) It is only a HIPAA violation if it happens within the healthcare system. The School record does not fall under the HIPAA regualtions at all, this means that the school nurse cannot get...
  18. C

    Teacher 'outed' my daughter!

    No, it is not a HIPAA violation if it is in the school records (I do believe that falls under FERPA, though) It is only a HIPAA violation if it happens within the healthcare system. The School record does not fall under the HIPAA regualtions at all, this means that the school nurse cannot get...
  19. C

    Teacher 'outed' my daughter!

    No, it is not a HIPAA violation if it is in the school records (I do believe that falls under FERPA, though) It is only a HIPAA violation if it happens within the healthcare system. The School record does not fall under the HIPAA regualtions at all, this means that the school nurse cannot get...
  20. C

    Teacher 'outed' my daughter!

    I am a HIPAA Privacy Officer and no it is not against HIPAA to release information about a child in front of class. The HIPAA Privacy and security laws only effect the Health Care setting(if the teacher had gotten the information from the hospital without your consent then it would be against...
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