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can anybody help me we just found out Alyssa has pseudomonas this is the second time she has gotten this and her doctor put her back on tobi again plus another med. that we havent gotten yet. We were told that if she gets it again that he will put her in hospital and do IV's he said they would...

can anybody help me we just found out Alyssa has pseudomonas this is the second time she has gotten this and her doctor put her back on tobi again plus another med. that we havent gotten yet. We were told that if she gets it again that he will put her in hospital and do IV's he said they would...

can anybody help me we just found out Alyssa has pseudomonas this is the second time she has gotten this and her doctor put her back on tobi again plus another med. that we havent gotten yet. We were told that if she gets it again that he will put her in hospital and do IV's he said they would...

<img src="i/expressions/brokenheart.gif" border="0">not sure what is going on with Alyssa her bowels are changing they are becoming looser and more mucus is showing up her eating has went down a whole lot in the last couple of weeks I keep calling her CF office and all I hear is from the...

<img src="i/expressions/brokenheart.gif" border="0">not sure what is going on with Alyssa her bowels are changing they are becoming looser and more mucus is showing up her eating has went down a whole lot in the last couple of weeks I keep calling her CF office and all I hear is from the...

<img src="i/expressions/brokenheart.gif" border="0">not sure what is going on with Alyssa her bowels are changing they are becoming looser and more mucus is showing up her eating has went down a whole lot in the last couple of weeks I keep calling her CF office and all I hear is from the...

We just had our daughter Alyssa to her CF dr. for her chest x-ray and it came back clear but while we were there she pooped so we had them check it to see wheather or not her pancreas is still producing enzymes and we just got the call today that she is boarderline so what does that mean what is...

We just had our daughter Alyssa to her CF dr. for her chest x-ray and it came back clear but while we were there she pooped so we had them check it to see wheather or not her pancreas is still producing enzymes and we just got the call today that she is boarderline so what does that mean what is...

We just had our daughter Alyssa to her CF dr. for her chest x-ray and it came back clear but while we were there she pooped so we had them check it to see wheather or not her pancreas is still producing enzymes and we just got the call today that she is boarderline so what does that mean what is...

Was just wondering if you could tell me anything about c.2789+5g>a we have asked our CF doctor but they can't tell us anything about it at all besides it is a rare one if this is true how rare is it and what does it cause. We have been very lucky as of right now with no symptoms besides the...

we just got the test results for our daughter and was wondering if you could tell us anything about the combination of deltaf508/c.2789+5g>a we asked her cf doctor and he could not tell us anything about the second gene or what they can or could do together any help would be appreciated Thanks...

We just found out on 3/17/10 that Alyssa has DeltaF508/c.2789+5G>A per Ambry now I was wondering if anyone knows anything about this other gene and if so could someone please tell me somethng when I asked her doctor they could'nt tell me anything about it. So please somebody if you know let me...

We just found out on 3/17/10 that Alyssa has DeltaF508/c.2789+5G>A per Ambry now I was wondering if anyone knows anything about this other gene and if so could someone please tell me somethng when I asked her doctor they could'nt tell me anything about it. So please somebody if you know let me...

We just found out on 3/17/10 that Alyssa has DeltaF508/c.2789+5G>A per Ambry now I was wondering if anyone knows anything about this other gene and if so could someone please tell me somethng when I asked her doctor they could'nt tell me anything about it. So please somebody if you know let me...

We just found out on 3/17/10 that Alyssa has DeltaF508/c.2789+5G>A per Ambry now I was wondering if anyone knows anything about this other gene and if so could someone please tell me somethng when I asked her doctor they could'nt tell me anything about it. So please somebody if you know let me...

We just found out on 3/17/10 that Alyssa has DeltaF508/c.2789+5G>A per Ambry now I was wondering if anyone knows anything about this other gene and if so could someone please tell me somethng when I asked her doctor they could'nt tell me anything about it. So please somebody if you know let me...

Good morning everyone my name is Michelle my daughter Alyssa was just diagnosed 1/21/10 her sweat test was 105mE/L her IRT numbers when she was born were 243.6ng/ml. Alyssa has been on Enzymes, AquADEK's and salt she has already had 2 shots of the Synagis and we are hoping for the third next...

Good morning everyone my name is Michelle my daughter Alyssa was just diagnosed 1/21/10 her sweat test was 105mE/L her IRT numbers when she was born were 243.6ng/ml. Alyssa has been on Enzymes, AquADEK's and salt she has already had 2 shots of the Synagis and we are hoping for the third next...

Good morning everyone my name is Michelle my daughter Alyssa was just diagnosed 1/21/10 her sweat test was 105mE/L her IRT numbers when she was born were 243.6ng/ml. Alyssa has been on Enzymes, AquADEK's and salt she has already had 2 shots of the Synagis and we are hoping for the third next...

Good morning everyone my name is Michelle my daughter Alyssa was just diagnosed 1/21/10 her sweat test was 105mE/L her IRT numbers when she was born were 243.6ng/ml. Alyssa has been on Enzymes, AquADEK's and salt she has already had 2 shots of the Synagis and we are hoping for the third next...