Search results

  1. P

    G-tube help/advice/support

    I had a feeding tube (Mic-Key) for about two years. I had it put in the same time as my port, around 1996. It was a difficult decision, one that left me with poor body image (temporarily) and feeling bad about how far I'd let this disease take me down. However, the fact that I was 20 years old...
  2. P

    G-tube help/advice/support

    I had a feeding tube (Mic-Key) for about two years. I had it put in the same time as my port, around 1996. It was a difficult decision, one that left me with poor body image (temporarily) and feeling bad about how far I'd let this disease take me down. However, the fact that I was 20 years old...
  3. P

    G-tube help/advice/support

    I had a feeding tube (Mic-Key) for about two years. I had it put in the same time as my port, around 1996. It was a difficult decision, one that left me with poor body image (temporarily) and feeling bad about how far I'd let this disease take me down. However, the fact that I was 20 years old...
  4. P

    G-tube help/advice/support

    I had a feeding tube (Mic-Key) for about two years. I had it put in the same time as my port, around 1996. It was a difficult decision, one that left me with poor body image (temporarily) and feeling bad about how far I'd let this disease take me down. However, the fact that I was 20 years old...
  5. P

    G-tube help/advice/support

    I had a feeding tube (Mic-Key) for about two years. I had it put in the same time as my port, around 1996. It was a difficult decision, one that left me with poor body image (temporarily) and feeling bad about how far I'd let this disease take me down. However, the fact that I was 20 years old...
  6. P

    Coly-mycin (Colistin)

    Thanks for all the replies. I hate to not use it, at one time it was really good for me and I improved so much when I was on it. I too mix mine for each dose with sterile water, I use 4cc of water. Jennifer, that is interesting that you also had trouble with it after you used Tobi. Coly doesn't...
  7. P

    Coly-mycin (Colistin)

    Thanks for all the replies. I hate to not use it, at one time it was really good for me and I improved so much when I was on it. I too mix mine for each dose with sterile water, I use 4cc of water. Jennifer, that is interesting that you also had trouble with it after you used Tobi. Coly doesn't...
  8. P

    Coly-mycin (Colistin)

    Thanks for all the replies. I hate to not use it, at one time it was really good for me and I improved so much when I was on it. I too mix mine for each dose with sterile water, I use 4cc of water. Jennifer, that is interesting that you also had trouble with it after you used Tobi. Coly doesn't...
  9. P

    Coly-mycin (Colistin)

    Thanks for all the replies. I hate to not use it, at one time it was really good for me and I improved so much when I was on it. I too mix mine for each dose with sterile water, I use 4cc of water. Jennifer, that is interesting that you also had trouble with it after you used Tobi. Coly doesn't...
  10. P

    Coly-mycin (Colistin)

    Thanks for all the replies. I hate to not use it, at one time it was really good for me and I improved so much when I was on it. I too mix mine for each dose with sterile water, I use 4cc of water. Jennifer, that is interesting that you also had trouble with it after you used Tobi. Coly doesn't...
  11. P

    Coly-mycin (Colistin)

    I switch from Tobi to Coly-mycin every other month. When I do Tobi I feel pretty good after a treatment. When I do the Colistin, I end up feeling tight and like I can't breath in deep enough. I dread it when it is time to switch from Tobi. My CF doctor's answer was to go without an antibiotic...
  12. P

    Coly-mycin (Colistin)

    I switch from Tobi to Coly-mycin every other month. When I do Tobi I feel pretty good after a treatment. When I do the Colistin, I end up feeling tight and like I can't breath in deep enough. I dread it when it is time to switch from Tobi. My CF doctor's answer was to go without an antibiotic...
  13. P

    Coly-mycin (Colistin)

    I switch from Tobi to Coly-mycin every other month. When I do Tobi I feel pretty good after a treatment. When I do the Colistin, I end up feeling tight and like I can't breath in deep enough. I dread it when it is time to switch from Tobi. My CF doctor's answer was to go without an antibiotic...
  14. P

    Coly-mycin (Colistin)

    I switch from Tobi to Coly-mycin every other month. When I do Tobi I feel pretty good after a treatment. When I do the Colistin, I end up feeling tight and like I can't breath in deep enough. I dread it when it is time to switch from Tobi. My CF doctor's answer was to go without an antibiotic...
  15. P

    Coly-mycin (Colistin)

    I switch from Tobi to Coly-mycin every other month. When I do Tobi I feel pretty good after a treatment. When I do the Colistin, I end up feeling tight and like I can't breath in deep enough. I dread it when it is time to switch from Tobi. My CF doctor's answer was to go without an antibiotic...
  16. P

    Big bellies...

    When I was little I had a tummy, but it was probably because I ate so much. Now it is flat. I don't know if it is from the coughing or the gym but it even has a little tone to it :-) I take Ultrase MT20, but before that I took Pangestyme (generic Ultrase) and before that Ultrase MT18. So I guess...
  17. P

    Big bellies...

    When I was little I had a tummy, but it was probably because I ate so much. Now it is flat. I don't know if it is from the coughing or the gym but it even has a little tone to it :-) I take Ultrase MT20, but before that I took Pangestyme (generic Ultrase) and before that Ultrase MT18. So I guess...
  18. P

    Big bellies...

    When I was little I had a tummy, but it was probably because I ate so much. Now it is flat. I don't know if it is from the coughing or the gym but it even has a little tone to it :-) I take Ultrase MT20, but before that I took Pangestyme (generic Ultrase) and before that Ultrase MT18. So I guess...
  19. P

    Big bellies...

    When I was little I had a tummy, but it was probably because I ate so much. Now it is flat. I don't know if it is from the coughing or the gym but it even has a little tone to it :-) I take Ultrase MT20, but before that I took Pangestyme (generic Ultrase) and before that Ultrase MT18. So I guess...
  20. P

    Big bellies...

    When I was little I had a tummy, but it was probably because I ate so much. Now it is flat. I don't know if it is from the coughing or the gym but it even has a little tone to it :-) I take Ultrase MT20, but before that I took Pangestyme (generic Ultrase) and before that Ultrase MT18. So I guess...
Top