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we applied for ssdi for david, and at first we were approved, but then after the second month, we were denied. i was not too worried about the monthly income, my concern was that i was about to start making too much to have him in medicaide. and if you have ssdi, you are automatically on...

i would agree with san antonio. its the most bang for your buck. you have all the historic missions like the Alamo and San Jacinto. Sea world and Feista Texas are right there close if you want theme parks. they have a Zoo if you like that. Several malls are in the area. The institute of texan...

my son has double deltaf508. its them most common mutation for CF. he was born with a meconian ilius. his liver enzymes were elevated, but after a year he was taken off his actegal for his liver. he only takes vitamax and zantac and enzymes. hes had only minor respritory infections. the...

we live in a 1973 mobile home. in the middle of a pasture. try as a i may, the roof still has a couple small leaks if its rains extra hard. the bathroom floor and wall has mildew and mold on it. and my son plays outside in the dogs water bowl, and his food bowl. he goes swimming at the river...

RE:Living or Dying with Cystic Fibrosis, The Parents Fight for Life, The State Enforces Death. I feel so bad for you. i had chills reading your story, imagining it was my child. i have a 15 month old with cf, and i am so glad he has such wonderfull doctors at his clinic. all i know is they...

my 6 mth old boy has cf. he got real sick around christmas and lost a pound and a half(which when your only 14 pounds to begin with is a lot). the doctor made us start giving him high calorie formula and feed him more often. he started cereal and baby foods at 4 months like most babies though...

yes, we do go to the clinic at santa rosa. weve only been there once so far, but we go back again next week. Dr. Karen Franks is our physician, Melanie Drummond is the RN, Kathleen Lipko is the dietitian, Trish Mendoza is the social worker, and Teresa Vallier is the respiratory therapist. I did...

thank so much for your comments and suggestions. im glad to know that smoke sint as bad a problem as i thought. not to say its good for him. i knoew almost nothing about cf until my son was diagnosed. and then i did alot of research on it and i now feel like an expert on the disease itself. but...

hey everyone. im a 23 yr old male from texas whos son was born with cf. he is 6 weeks old now and we are already seing a cf clinic in san antonio. the first two weeks of life he was at santa rosa inthe NICU for a meconeum ileus. he is on creon 5 enzymes and we are doing cpt twice a day although...