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Stephanie is 15 and Mariah is 12. So when they received the news that they had Cf it didnt go over very well. They understood the disease and what CAN happen. Even though they are healthy now, they know that can change tomorrow. But we have encouraged them and told them that as long as they do...

Stephanie is 15 and Mariah is 12. So when they received the news that they had Cf it didnt go over very well. They understood the disease and what CAN happen. Even though they are healthy now, they know that can change tomorrow. But we have encouraged them and told them that as long as they do...

Stephanie is 15 and Mariah is 12. So when they received the news that they had Cf it didnt go over very well. They understood the disease and what CAN happen. Even though they are healthy now, they know that can change tomorrow. But we have encouraged them and told them that as long as they do...

Stephanie is 15 and Mariah is 12. So when they received the news that they had Cf it didnt go over very well. They understood the disease and what CAN happen. Even though they are healthy now, they know that can change tomorrow. But we have encouraged them and told them that as long as they do...

Stephanie is 15 and Mariah is 12. So when they received the news that they had Cf it didnt go over very well. They understood the disease and what CAN happen. Even though they are healthy now, they know that can change tomorrow. But we have encouraged them and told them that as long as they do...

Hey everyone, I just wanted to post an update. We took our 3 to their first clinic visit yesterday. We were there for 4 hours. Whew! what a long day. We left at 9 and got home at 9. Anyway, Ryan our 5 year old looks really good. When we took him into the clinic last month he was below the...

Hey everyone, I just wanted to post an update. We took our 3 to their first clinic visit yesterday. We were there for 4 hours. Whew! what a long day. We left at 9 and got home at 9. Anyway, Ryan our 5 year old looks really good. When we took him into the clinic last month he was below the...

Hey everyone, I just wanted to post an update. We took our 3 to their first clinic visit yesterday. We were there for 4 hours. Whew! what a long day. We left at 9 and got home at 9. Anyway, Ryan our 5 year old looks really good. When we took him into the clinic last month he was below the...

Hey everyone, I just wanted to post an update. We took our 3 to their first clinic visit yesterday. We were there for 4 hours. Whew! what a long day. We left at 9 and got home at 9. Anyway, Ryan our 5 year old looks really good. When we took him into the clinic last month he was below the...

Hey everyone, <br /> <br />I just wanted to post an update. We took our 3 to their first clinic visit yesterday. We were there for 4 hours. Whew! what a long day. We left at 9 and got home at 9. <br /> <br />Anyway, Ryan our 5 year old looks really good. When we took him into the clinic last...

I'ts been over a week and I still havent heard from our princible on the "504" in the elementary school. I wish I could blame it on the beginning of school for the first 504 for Dylan but it was in April when we set it up. I will not stop until I speak with everyone. Even if I have to meet with...

I'ts been over a week and I still havent heard from our princible on the "504" in the elementary school. I wish I could blame it on the beginning of school for the first 504 for Dylan but it was in April when we set it up. I will not stop until I speak with everyone. Even if I have to meet with...

I'ts been over a week and I still havent heard from our princible on the "504" in the elementary school. I wish I could blame it on the beginning of school for the first 504 for Dylan but it was in April when we set it up. I will not stop until I speak with everyone. Even if I have to meet with...

I'ts been over a week and I still havent heard from our princible on the "504" in the elementary school. I wish I could blame it on the beginning of school for the first 504 for Dylan but it was in April when we set it up. I will not stop until I speak with everyone. Even if I have to meet with...

I'ts been over a week and I still havent heard from our princible on the "504" in the elementary school. I wish I could blame it on the beginning of school for the first 504 for Dylan but it was in April when we set it up. I will not stop until I speak with everyone. Even if I have to meet with...

We might get our legs kicked out from under us but we always get back up. We realized that our family may have this aweful disease but it doesnt have to control us and the sooner they can find a cure the better off everyone will be. It still bothers me to talk about my children in regards to...

We might get our legs kicked out from under us but we always get back up. We realized that our family may have this aweful disease but it doesnt have to control us and the sooner they can find a cure the better off everyone will be. It still bothers me to talk about my children in regards to...

We might get our legs kicked out from under us but we always get back up. We realized that our family may have this aweful disease but it doesnt have to control us and the sooner they can find a cure the better off everyone will be. It still bothers me to talk about my children in regards to...

We might get our legs kicked out from under us but we always get back up. We realized that our family may have this aweful disease but it doesnt have to control us and the sooner they can find a cure the better off everyone will be. It still bothers me to talk about my children in regards to...

We might get our legs kicked out from under us but we always get back up. We realized that our family may have this aweful disease but it doesnt have to control us and the sooner they can find a cure the better off everyone will be. <br /> <br />It still bothers me to talk about my children in...