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  1. C

    Got my pulse oximetry test results.

    I don't think that dip is to bad, however I would think a sleep study would be in order to ascertain WHY it's occurring (apnea versus mucous blockage)
  2. C

    Got my pulse oximetry test results.

    I don't think that dip is to bad, however I would think a sleep study would be in order to ascertain WHY it's occurring (apnea versus mucous blockage)
  3. C

    Got my pulse oximetry test results.

    I don't think that dip is to bad, however I would think a sleep study would be in order to ascertain WHY it's occurring (apnea versus mucous blockage)
  4. C

    to those on oxygen

    The difference I felt was great becuase I felt my sleep was of a better quality. When I started o2 it was constant (night and day). Prior to starting I had to stop halfway up stairs to catch my breath and because I was feeling dizzy, but once on o2 I could get to the stop of the stairs. So...
  5. C

    to those on oxygen

    The difference I felt was great becuase I felt my sleep was of a better quality. When I started o2 it was constant (night and day). Prior to starting I had to stop halfway up stairs to catch my breath and because I was feeling dizzy, but once on o2 I could get to the stop of the stairs. So...
  6. C

    to those on oxygen

    The difference I felt was great becuase I felt my sleep was of a better quality. When I started o2 it was constant (night and day). Prior to starting I had to stop halfway up stairs to catch my breath and because I was feeling dizzy, but once on o2 I could get to the stop of the stairs. So...
  7. C

    Dry Mouth

    I get that with multiple inhalations in a row (like... every night), epilepsy meds and being in air-conditoning for a long time, like in a hospital settings. Hypertonic also makes my mouth dry, I think the salt content does that so it makes sense. I haven't found anything that helps, but my...
  8. C

    Dry Mouth

    I get that with multiple inhalations in a row (like... every night), epilepsy meds and being in air-conditoning for a long time, like in a hospital settings. Hypertonic also makes my mouth dry, I think the salt content does that so it makes sense. I haven't found anything that helps, but my...
  9. C

    Dry Mouth

    I get that with multiple inhalations in a row (like... every night), epilepsy meds and being in air-conditoning for a long time, like in a hospital settings. <br />Hypertonic also makes my mouth dry, I think the salt content does that so it makes sense. <br />I haven't found anything that helps...
  10. C

    College Roommate....

    I suggest you order some bleach and toilet fresheners - its the only thing that keeps my family sane!
  11. C

    College Roommate....

    I suggest you order some bleach and toilet fresheners - its the only thing that keeps my family sane!
  12. C

    College Roommate....

    I suggest you order some bleach and toilet fresheners - its the only thing that keeps my family sane!
  13. C

    "End Stage" CF

    When I was declared end-stage it was pre-tx. My mum asked how they determine that, and apparently there is no definite definition, it's more low quality of life and no common treatment options available left. My quality of life WAS low, as my pft's were late 20's and antibiotics as a whole just...
  14. C

    "End Stage" CF

    When I was declared end-stage it was pre-tx. My mum asked how they determine that, and apparently there is no definite definition, it's more low quality of life and no common treatment options available left. My quality of life WAS low, as my pft's were late 20's and antibiotics as a whole just...
  15. C

    "End Stage" CF

    When I was declared end-stage it was pre-tx. My mum asked how they determine that, and apparently there is no definite definition, it's more low quality of life and no common treatment options available left. My quality of life WAS low, as my pft's were late 20's and antibiotics as a whole just...
  16. C

    port difficulty

    OK, if I was you I would get that re-placed. I have had 4 hickman catheters and 3 ports and my first port was replaced because of poor positioning. The tube was being occluded by a muscle or bone and if I had my arm down and not in this perfect uncomfortable position it made it hard for blood...
  17. C

    port difficulty

    OK, if I was you I would get that re-placed. I have had 4 hickman catheters and 3 ports and my first port was replaced because of poor positioning. The tube was being occluded by a muscle or bone and if I had my arm down and not in this perfect uncomfortable position it made it hard for blood...
  18. C

    port difficulty

    OK, if I was you I would get that re-placed. I have had 4 hickman catheters and 3 ports and my first port was replaced because of poor positioning. The tube was being occluded by a muscle or bone and if I had my arm down and not in this perfect uncomfortable position it made it hard for blood...
  19. C

    Anxiety

    mood and mental problems are very common on prednisone. I get anxious and moody/agitated. I saw a therapist who taught me how to do deep relaxation/meditation and this helped a lot. I also went on zoloft and ativan, but after a few months I went off those because the deep relaxation, especially...
  20. C

    Anxiety

    mood and mental problems are very common on prednisone. I get anxious and moody/agitated. I saw a therapist who taught me how to do deep relaxation/meditation and this helped a lot. I also went on zoloft and ativan, but after a few months I went off those because the deep relaxation, especially...
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