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  1. K

    Ambry CF gene test - now the wait begins

    Our 7.5 year old daughter was diagnosed with mild pancreatic insufficiency in January (is doing great on Creon) had sweat level tests of 38 and 41. We had the blood drawn yesterday for the CF gene test and so our wait begins. Our daughter is adopted and we have no birth family history. CF...
  2. K

    Diet for Pancreatic Insufficiency?

    That makes so much sense. Thanks for all your help!!
  3. K

    Diet for Pancreatic Insufficiency?

    That makes so much sense. Thanks for all your help!!
  4. K

    Diet for Pancreatic Insufficiency?

    That makes so much sense. Thanks for all your help!! <br /> <br />
  5. K

    Diet for Pancreatic Insufficiency?

    Thanks for the reply Ratatosk. Our GI prescribed the Creon to be taken with meals but she had her boost yesterday afternoon in between meals so I did not give her a pill (hmm, I had not thought of that). Her stools look much better now after being on Creon, but she did have a messy one...
  6. K

    Diet for Pancreatic Insufficiency?

    Thanks for the reply Ratatosk. Our GI prescribed the Creon to be taken with meals but she had her boost yesterday afternoon in between meals so I did not give her a pill (hmm, I had not thought of that). Her stools look much better now after being on Creon, but she did have a messy one...
  7. K

    Diet for Pancreatic Insufficiency?

    Thanks for the reply Ratatosk. Our GI prescribed the Creon to be taken with meals but she had her boost yesterday afternoon in between meals so I did not give her a pill (hmm, I had not thought of that). Her stools look much better now after being on Creon, but she did have a messy one...
  8. K

    Diet for Pancreatic Insufficiency?

    My 7.5 year old daughter started Creon 12000 (3x a day) two weeks ago. She has done very well on it. Her stomach aches have essentially gone away and she feels better. Her GI specialist has her on Boost 1.5 to up the calories but we had not been giving her much of it lately. Yesterday, she...
  9. K

    Diet for Pancreatic Insufficiency?

    My 7.5 year old daughter started Creon 12000 (3x a day) two weeks ago. She has done very well on it. Her stomach aches have essentially gone away and she feels better. Her GI specialist has her on Boost 1.5 to up the calories but we had not been giving her much of it lately. Yesterday, she...
  10. K

    Diet for Pancreatic Insufficiency?

    My 7.5 year old daughter started Creon 12000 (3x a day) two weeks ago. She has done very well on it. Her stomach aches have essentially gone away and she feels better. <br /> <br />Her GI specialist has her on Boost 1.5 to up the calories but we had not been giving her much of it lately...
  11. K

    Is this typical results after starting enzymes?

    My 7.5 year old daughter, who has "mild" pancreatic insufficiency (FE = 145), started Creon last Monday. She has done fantastic. Her daily stomach aches have gone. She has gained a pound and we have stopped her periactin since it does not really seem necessary at the moment. Just curious if...
  12. K

    Is this typical results after starting enzymes?

    My 7.5 year old daughter, who has "mild" pancreatic insufficiency (FE = 145), started Creon last Monday. She has done fantastic. Her daily stomach aches have gone. She has gained a pound and we have stopped her periactin since it does not really seem necessary at the moment. Just curious if...
  13. K

    Is this typical results after starting enzymes?

    My 7.5 year old daughter, who has "mild" pancreatic insufficiency (FE = 145), started Creon last Monday. She has done fantastic. Her daily stomach aches have gone. She has gained a pound and we have stopped her periactin since it does not really seem necessary at the moment. Just curious if...
  14. K

    2nd clinic appt.

    I may have missed one of your posts but did your son have the CF gene test?
  15. K

    2nd clinic appt.

    I may have missed one of your posts but did your son have the CF gene test?
  16. K

    2nd clinic appt.

    I may have missed one of your posts but did your son have the CF gene test?
  17. K

    Other than CF - causes of PI

    Our daughter's stomach issues started getting worse the past couple of weeks. She has been crying due to the pain and discomfort. Her gas was worse and her stools have been large (floating as usual). I finally called the GI and requested something to help. They prescribed Creon and her tummy...
  18. K

    Other than CF - causes of PI

    Our daughter's stomach issues started getting worse the past couple of weeks. She has been crying due to the pain and discomfort. Her gas was worse and her stools have been large (floating as usual). I finally called the GI and requested something to help. They prescribed Creon and her tummy...
  19. K

    Other than CF - causes of PI

    Our daughter's stomach issues started getting worse the past couple of weeks. She has been crying due to the pain and discomfort. Her gas was worse and her stools have been large (floating as usual). I finally called the GI and requested something to help. They prescribed Creon and her tummy...
  20. K

    Other than CF - causes of PI

    Thanks mom2owen and mommafirst for your replies. Our daughter is growth hormone deficient and lactose intolerant. Those are her only other issues other than her PI. She does not get colds very easily but has gotten really sick with the flu the past couple of years (lots of coughing and...
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