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How EXCITING!!!!!!!!!!! Can you hardly believe it!!?!!?????? You might think I'm just saying this.....BUT for real when you first told us about you going to get this done my first thought was.....TWINS!!!!!!!!!!!!!! I promise I thought this!!!!<img src="i/expressions/angel_ani.gif"...

How EXCITING!!!!!!!!!!! Can you hardly believe it!!?!!?????? You might think I'm just saying this.....BUT for real when you first told us about you going to get this done my first thought was.....TWINS!!!!!!!!!!!!!! I promise I thought this!!!!<img src="i/expressions/angel_ani.gif"...

I just give Reece motrin when he has a fever or mild cold to take the yucky feeling away. (try to anyways) other then that nothing. I heard that if you are older that IB profen is ok to take but tears up your tummy. Leah mommy 2 Reece 3yrs old w/ CF<img src="i/expressions/angel_ani.gif" border="0">

I just give Reece motrin when he has a fever or mild cold to take the yucky feeling away. (try to anyways) other then that nothing. I heard that if you are older that IB profen is ok to take but tears up your tummy. Leah mommy 2 Reece 3yrs old w/ CF<img src="i/expressions/angel_ani.gif" border="0">

Reece has been on o2 everytime he goes in for a "tune up". Never been on it when hes at home. What are his levels with & without the o2? What do his docs say, when he can come off? Usually in the hosptial hes on 02 til he gets up to 93 room air. His normal levels are between 93-95 room air when...

Reece has been on o2 everytime he goes in for a "tune up". Never been on it when hes at home. What are his levels with & without the o2? What do his docs say, when he can come off? Usually in the hosptial hes on 02 til he gets up to 93 room air. His normal levels are between 93-95 room air when...

We have an Inspriation respironic. works ok takes awhile for the meds to go through. We usualy use the Pari baby masks but we need a prescribition for it, they help the meds go faster. Leah mommy 2 Reece 3yrs old w/cf<img src="i/expressions/angel_ani.gif" border="0">

We have an Inspriation respironic. works ok takes awhile for the meds to go through. We usualy use the Pari baby masks but we need a prescribition for it, they help the meds go faster. Leah mommy 2 Reece 3yrs old w/cf<img src="i/expressions/angel_ani.gif" border="0">

Thx for all the replies. I knew I could count on yall. Reece has severe damage to his LLL. His UR & UL have mild damage. He did his PFT with the computer. What a great way to get kids to try their best. I dont know what FEV1s are, sry. Maybe I will look it up today...I have a great book by Dr...

Reece did his very 1st PFT Friday. His score was 62%. That was his best one. My question is what is considered good/poor? We were NOT given a guideline as what to go by. BUT this was his 1st time AND he is only 3. They just wanted to see what he could do & just get ready for the real thing when...

Another thing I noticed w/ the scandi is it doesnt desolve well. How have some of you got this stuff to desolve? Our nutreintionts said to let it sit for awhile but that hasnt worked yet & who wants warm milk..yuk!!! Any ideas? Leah

Another thing I noticed w/ the scandi is it doesnt desolve well. How have some of you got this stuff to desolve? Our nutreintionts said to let it sit for awhile but that hasnt worked yet & who wants warm milk..yuk!!! Any ideas? Leah

Have you tried scandishakes? Reece is on the low end of the spectrum for weight gain also. The clinic keeps giving me this but Reece does NOT like it at all. I feel like you, I have tried EVERYTHING under the sun,what else am I suppose to do? I cant make him eat. He has been 30 lbs for the past...

Have you tried scandishakes? Reece is on the low end of the spectrum for weight gain also. The clinic keeps giving me this but Reece does NOT like it at all. I feel like you, I have tried EVERYTHING under the sun,what else am I suppose to do? I cant make him eat. He has been 30 lbs for the past...

Reece takes: 1/2 tsp prevacid 2x day 1ml vitamax 2x day pulmozyme 1x day creon 10: 4/meals 3/ snacks albeutrol 2-3x day flovent 44 2 puffs 2x day Leah mommy 2 Reece 3yrs old

Reece takes: 1/2 tsp prevacid 2x day 1ml vitamax 2x day pulmozyme 1x day creon 10: 4/meals 3/ snacks albeutrol 2-3x day flovent 44 2 puffs 2x day Leah mommy 2 Reece 3yrs old

Julie I'm sooooooooooooooooo HAPPY & EXCITED for you both!!!!!!!!!!!!! Cant wait to hear some more good news in the coming months!!!!!<img src="i/expressions/face-icon-small-happy.gif" border="0"><img src="i/expressions/angel_ani.gif" border="0"> Leah

Julie I'm sooooooooooooooooo HAPPY & EXCITED for you both!!!!!!!!!!!!! Cant wait to hear some more good news in the coming months!!!!!<img src="i/expressions/face-icon-small-happy.gif" border="0"><img src="i/expressions/angel_ani.gif" border="0"> Leah

My son is 3 & I do feel guilty. You see, my husband & I have been together since we were 15. We have ALWAYS wanted kids!!!!!!!!! Then when it was time to have kids we had a problem.......It took us a good while to conceive. Everything was awesome until the day Reece was born & we found out...

Hi dragonfly, Im from VA bout 2 hrs away from Richmond. We go to CHKD in Norfolk. Where are you in VA? BTW.....Welcome !!!!! Leah mommy 2 Reece 3yrs old w/ CF<img src="i/expressions/angel_ani.gif" border="0">