Search results

I wish i could help, im pretty much in the same spot. My son is 19 months and has had 1 sweat test with was 41 and he is pancreatic insufficient. now we are waiting to be seen again for a 2nd sweat test and genetic testing. Keep us updated and i hope you get answers soon!

Nicole, that was BEAUTIFUL!! I was tearing up the whole time!! what a little trooper he is!

Nicole, that was BEAUTIFUL!! I was tearing up the whole time!! what a little trooper he is!

Nicole, that was BEAUTIFUL!! I was tearing up the whole time!! what a little trooper he is!

we called our GI Dr. and he said that he will set up an appt with the CF clinic at Stanford for a second sweat test and more extensive genetic testing. My husband called and Im guessing that means not the full panel ambry, but we are suppose to be getting a call from the CF clinic, so we will...

we called our GI Dr. and he said that he will set up an appt with the CF clinic at Stanford for a second sweat test and more extensive genetic testing. My husband called and Im guessing that means not the full panel ambry, but we are suppose to be getting a call from the CF clinic, so we will...

we called our GI Dr. and he said that he will set up an appt with the CF clinic at Stanford for a second sweat test and more extensive genetic testing. My husband called and Im guessing that means not the full panel ambry, but we are suppose to be getting a call from the CF clinic, so we will...

Thank you ALL SO VERY MUCH!!! You have no idea (actually you probably know all to well) how much these replies mean to me!! I printed off DOZENS of research to help my argument if there is one with the Dr. And I think after talking to Nicole in PM, we are going to ask to stay at Stanford. I...

Thank you ALL SO VERY MUCH!!! You have no idea (actually you probably know all to well) how much these replies mean to me!! I printed off DOZENS of research to help my argument if there is one with the Dr. And I think after talking to Nicole in PM, we are going to ask to stay at Stanford. I...

Thank you ALL SO VERY MUCH!!! You have no idea (actually you probably know all to well) how much these replies mean to me!! I printed off DOZENS of research to help my argument if there is one with the Dr. And I think after talking to Nicole in PM, we are going to ask to stay at Stanford. I...

me too!! but they told me it was negative. I didnt know to ask the number til a friend told me to ask, and i found out it was 41!

me too!! but they told me it was negative. I didnt know to ask the number til a friend told me to ask, and i found out it was 41!

me too!! but they told me it was negative. I didnt know to ask the number til a friend told me to ask, and i found out it was 41!

Thank you! He has NOT had a second sweat test done. My dr. was referring us to an accredited CF center for a second sweat test because his first one was 41, which is borderline. But the Dr. denied it. I should atleast push for the 2nd sweat test at an accredited center right? Thanks, Heather

Thank you! He has NOT had a second sweat test done. My dr. was referring us to an accredited CF center for a second sweat test because his first one was 41, which is borderline. But the Dr. denied it. I should atleast push for the 2nd sweat test at an accredited center right? Thanks, Heather

Thank you! He has NOT had a second sweat test done. My dr. was referring us to an accredited CF center for a second sweat test because his first one was 41, which is borderline. But the Dr. denied it. I should atleast push for the 2nd sweat test at an accredited center right? Thanks, Heather

Heather I am so so sorry to hear you had to have your first hospitalization!! I cannot imagine!! Im so glad she is home now and I hope its a very very long time before any other hospitalizations!! -Heather PS: can you PM me Melissas #, i lost it <img...

Heather I am so so sorry to hear you had to have your first hospitalization!! I cannot imagine!! Im so glad she is home now and I hope its a very very long time before any other hospitalizations!! -Heather PS: can you PM me Melissas #, i lost it <img...

Heather I am so so sorry to hear you had to have your first hospitalization!! I cannot imagine!! Im so glad she is home now and I hope its a very very long time before any other hospitalizations!! -Heather PS: can you PM me Melissas #, i lost it <img...

Ive been on here several times before. My son has had malabsorption problems since he was born. he is off the scales for weight, and now almost off for height. He has had tests since he was 2 months to figure it all out and we finally found out he is Pancreatic Insufficient in Amylase, and...