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  1. H

    about to go crazy!!

    Ive been on here several times before. My son has had malabsorption problems since he was born. he is off the scales for weight, and now almost off for height. He has had tests since he was 2 months to figure it all out and we finally found out he is Pancreatic Insufficient in Amylase, and...
  2. H

    about to go crazy!!

    Ive been on here several times before. My son has had malabsorption problems since he was born. he is off the scales for weight, and now almost off for height. He has had tests since he was 2 months to figure it all out and we finally found out he is Pancreatic Insufficient in Amylase, and...
  3. H

    Need your Input Please

    I will, thanks! another thing, he said usually if they find mutations past the 32 most common, it isnt Cystic Fibrosis mutations? is that true? how often does it happen?
  4. H

    Need your Input Please

    I will, thanks! another thing, he said usually if they find mutations past the 32 most common, it isnt Cystic Fibrosis mutations? is that true? how often does it happen?
  5. H

    Need your Input Please

    I will, thanks! another thing, he said usually if they find mutations past the 32 most common, it isnt Cystic Fibrosis mutations? is that true? how often does it happen?
  6. H

    Need your Input Please

    Thanks you guys!!! We called our Dr. back and brought up several things and that we would like the full panel done. We found out that he had thought we had two sweat tests done, one being borderline, one being normal. We informed him that only one had been done (and it wanst done at a CF...
  7. H

    Need your Input Please

    Thanks you guys!!! We called our Dr. back and brought up several things and that we would like the full panel done. We found out that he had thought we had two sweat tests done, one being borderline, one being normal. We informed him that only one had been done (and it wanst done at a CF...
  8. H

    Need your Input Please

    Thanks you guys!!! We called our Dr. back and brought up several things and that we would like the full panel done. We found out that he had thought we had two sweat tests done, one being borderline, one being normal. We informed him that only one had been done (and it wanst done at a CF...
  9. H

    Need your Input Please

    Thank you very much! what is the nasal potential difference test ? and the sodium to chloride ratio would have shown on his sweat test?? we will be calling him back this evening, THANKS!
  10. H

    Need your Input Please

    Thank you very much! what is the nasal potential difference test ? and the sodium to chloride ratio would have shown on his sweat test?? we will be calling him back this evening, THANKS!
  11. H

    Need your Input Please

    Thank you very much! what is the nasal potential difference test ? and the sodium to chloride ratio would have shown on his sweat test?? we will be calling him back this evening, THANKS!
  12. H

    Need your Input Please

    My sons Genetic test came back normal. They only tested for the 32 most common mutations. The reason they tested is because he has had GI problems since birth and they finally found out he is pancreatic insufficient and is now on enzymes, and his sweat test came back 44. He has never had an...
  13. H

    Need your Input Please

    My sons Genetic test came back normal. They only tested for the 32 most common mutations. The reason they tested is because he has had GI problems since birth and they finally found out he is pancreatic insufficient and is now on enzymes, and his sweat test came back 44. He has never had an...
  14. H

    Need your Input Please

    My sons Genetic test came back normal. They only tested for the 32 most common mutations. The reason they tested is because he has had GI problems since birth and they finally found out he is pancreatic insufficient and is now on enzymes, and his sweat test came back 44. He has never had an...
  15. H

    Definitive CF Diagnosis

    yeah he is on enzymes with every meal. my dr. told us he can outgrow it??? he hasnt had a throat culture but if his testing comes back negative i might ask. he has a congested cough almost all the time but ive never focsed on it because ive been to focused on his FTT. hes so small he isnt...
  16. H

    Definitive CF Diagnosis

    yeah he is on enzymes with every meal. my dr. told us he can outgrow it??? he hasnt had a throat culture but if his testing comes back negative i might ask. he has a congested cough almost all the time but ive never focsed on it because ive been to focused on his FTT. hes so small he isnt...
  17. H

    Definitive CF Diagnosis

    yeah he is on enzymes with every meal. my dr. told us he can outgrow it??? he hasnt had a throat culture but if his testing comes back negative i might ask. he has a congested cough almost all the time but ive never focsed on it because ive been to focused on his FTT. hes so small he isnt...
  18. H

    Definitive CF Diagnosis

    Your case sounds alot like my sons. what is pseudomonis? My son is pancreatic insufficient and had a borderline sweat test and is getting tested for the genes now. Is it normal for them to diagnose it without finding any mutations???
  19. H

    Definitive CF Diagnosis

    Your case sounds alot like my sons. what is pseudomonis? My son is pancreatic insufficient and had a borderline sweat test and is getting tested for the genes now. Is it normal for them to diagnose it without finding any mutations???
  20. H

    Definitive CF Diagnosis

    Your case sounds alot like my sons. what is pseudomonis? My son is pancreatic insufficient and had a borderline sweat test and is getting tested for the genes now. Is it normal for them to diagnose it without finding any mutations???
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