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Tammy, Wow, what a story. Thank you for sharing it. It really helped me to read that it was good for your girls to have eachother, have someone know what is is like to go through it. I never thought of it that way. Are your girls on the healthy side? Our sons sweat test is in the morning, I will...

Tammy, Wow, what a story. Thank you for sharing it. It really helped me to read that it was good for your girls to have eachother, have someone know what is is like to go through it. I never thought of it that way. Are your girls on the healthy side? Our sons sweat test is in the morning, I will...

Tammy, Wow, what a story. Thank you for sharing it. It really helped me to read that it was good for your girls to have eachother, have someone know what is is like to go through it. I never thought of it that way. Are your girls on the healthy side? Our sons sweat test is in the morning, I will...

Thank you everyone for your responses. Heatherrose -- Pseudomonas is a bacteria that is commonly found in the lungs of CF patients, it likes to live there, due to the extra mucus. If undiagnosed, it can turn into a nasty lung infection. It is diagnosed with a throat culture. Has your son had...

Thank you everyone for your responses. Heatherrose -- Pseudomonas is a bacteria that is commonly found in the lungs of CF patients, it likes to live there, due to the extra mucus. If undiagnosed, it can turn into a nasty lung infection. It is diagnosed with a throat culture. Has your son had...

Thank you everyone for your responses. Heatherrose -- Pseudomonas is a bacteria that is commonly found in the lungs of CF patients, it likes to live there, due to the extra mucus. If undiagnosed, it can turn into a nasty lung infection. It is diagnosed with a throat culture. Has your son had...

Hi everyone. After 15 months of not knowing--2 borderline sweat tests, negative genetic testing (>1000 muntations tested) 2 pseudomonas infections treated with Tobi and slow weight gain--our daughter Delaneys stool test came back showing that she is mildly pancreatic insufficient (her first...

Hi everyone. After 15 months of not knowing--2 borderline sweat tests, negative genetic testing (>1000 muntations tested) 2 pseudomonas infections treated with Tobi and slow weight gain--our daughter Delaneys stool test came back showing that she is mildly pancreatic insufficient (her first...

Hi everyone. After 15 months of not knowing--2 borderline sweat tests, negative genetic testing (>1000 muntations tested) 2 pseudomonas infections treated with Tobi and slow weight gain--our daughter Delaneys stool test came back showing that she is mildly pancreatic insufficient (her first...

Yes. That is detailed in the original post from December. Basically, she had extensive genetic screening (checked for more than 1000) and they could not find her mutations. She had 2 borderline sweat tests, pseudomonis twice (treated and cured with Tobi both times one year apart) and now the...

Yes. That is detailed in the original post from December. Basically, she had extensive genetic screening (checked for more than 1000) and they could not find her mutations. She had 2 borderline sweat tests, pseudomonis twice (treated and cured with Tobi both times one year apart) and now the...

Yes. That is detailed in the original post from December. Basically, she had extensive genetic screening (checked for more than 1000) and they could not find her mutations. She had 2 borderline sweat tests, pseudomonis twice (treated and cured with Tobi both times one year apart) and now the...

Leah, I absolutely love the idea! We also have a 3 year old daughted with CF and will be purchasing the book!

Leah, I absolutely love the idea! We also have a 3 year old daughted with CF and will be purchasing the book!

Leah, I absolutely love the idea! We also have a 3 year old daughted with CF and will be purchasing the book!

2 Days ago, we found out for sure that Delaney has CF. We tested her stool and it came back that she is moderately pancreatic insufficient. Just 15 months ago she was pancreatic sufficient. This feels like a huge blow to us, because through our journey there were so many unanswered questions...

2 Days ago, we found out for sure that Delaney has CF. We tested her stool and it came back that she is moderately pancreatic insufficient. Just 15 months ago she was pancreatic sufficient. This feels like a huge blow to us, because through our journey there were so many unanswered questions...

2 Days ago, we found out for sure that Delaney has CF. We tested her stool and it came back that she is moderately pancreatic insufficient. Just 15 months ago she was pancreatic sufficient. This feels like a huge blow to us, because through our journey there were so many unanswered questions...

No, She has no respiratory symptoms. Since she has started the Tobi (8 days now) she coughs quite a bit each morning. But before we found out that she had Pseudo and started treatment she didnt even have a cough. Is it normal to have a cough throughout the 28 day treatment? Delaney has not had...

No, She has no respiratory symptoms. Since she has started the Tobi (8 days now) she coughs quite a bit each morning. But before we found out that she had Pseudo and started treatment she didnt even have a cough. Is it normal to have a cough throughout the 28 day treatment? Delaney has not had...