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No, She has no respiratory symptoms. Since she has started the Tobi (8 days now) she coughs quite a bit each morning. But before we found out that she had Pseudo and started treatment she didnt even have a cough. Is it normal to have a cough throughout the 28 day treatment? Delaney has not had...

Thank you so much for the feedback. Delaney is now doing Tobi twice a day for 28 days, then we go back in Feb. for a re-culture. I spoke with her genetic counselor and she said that Delaney had Gene Sequencing done, and they could find no mutations for CF. So it is possible that she was a rare...

Thank you so much for the feedback. Delaney is now doing Tobi twice a day for 28 days, then we go back in Feb. for a re-culture. I spoke with her genetic counselor and she said that Delaney had Gene Sequencing done, and they could find no mutations for CF. So it is possible that she was a rare...

Thank you so much for the feedback. Delaney is now doing Tobi twice a day for 28 days, then we go back in Feb. for a re-culture. I spoke with her genetic counselor and she said that Delaney had Gene Sequencing done, and they could find no mutations for CF. So it is possible that she was a rare...

Our hospital screens for it too. Both of my kids screens came back negative, but my daughter is showing signs that she may have a mild form of it. I have never known of a newborn screen being the only diagnosing tool. I am new to this, but from what I know, they will follow up a positive screen...

Our hospital screens for it too. Both of my kids screens came back negative, but my daughter is showing signs that she may have a mild form of it. I have never known of a newborn screen being the only diagnosing tool. I am new to this, but from what I know, they will follow up a positive screen...

Our hospital screens for it too. Both of my kids screens came back negative, but my daughter is showing signs that she may have a mild form of it. I have never known of a newborn screen being the only diagnosing tool. I am new to this, but from what I know, they will follow up a positive screen...

I am writing this because my daughter who is now 3 1/2 years old has been tested for CF for over a year now with still no answers. I was wondering if some of the moms in here with knowledge/personal experience could please give us some insight. In October of 2005 my daughter Delaney had some...

I am writing this because my daughter who is now 3 1/2 years old has been tested for CF for over a year now with still no answers. I was wondering if some of the moms in here with knowledge/personal experience could please give us some insight. In October of 2005 my daughter Delaney had some...

I am writing this because my daughter who is now 3 1/2 years old has been tested for CF for over a year now with still no answers. I was wondering if some of the moms in here with knowledge/personal experience could please give us some insight. In October of 2005 my daughter Delaney had some...