Search results

  1. G

    creon and milk

    Heartburn or reflux were my first thoughts. They seem to be farily common in people wcf. I hope you can get it figured out and that she feels better soon!
  2. G

    Welcome Ambry Genetics

    I was hoping to find out because of the possibility of vx770 working on other class 3 mutatuations (not just G551D, which is the only mutation it is being tested on currently) not so I could try to guess the severity of her disease. I was wondering if this mutation is a Class 3, which might...
  3. G

    Welcome Ambry Genetics

    Hi Steve, can you tell me what domain class 2751G>A is? I can only find that it is found on exon 14a. Thank you!
  4. G

    Frustrated!!

    I used to get really sad when my daughter lost weight during a sickness, even just a pound would upset me. Over time, it has seemed that she has had no trouble gaining the weight right back, within a week or less sometimes so now I don't even weigh her when she is sick. I hope your daughter is...
  5. G

    Frustrated!!

    I used to get really sad when my daughter lost weight during a sickness, even just a pound would upset me. Over time, it has seemed that she has had no trouble gaining the weight right back, within a week or less sometimes so now I don't even weigh her when she is sick. I hope your daughter is...
  6. G

    Frustrated!!

    I used to get really sad when my daughter lost weight during a sickness, even just a pound would upset me. Over time, it has seemed that she has had no trouble gaining the weight right back, within a week or less sometimes so now I don't even weigh her when she is sick. I hope your daughter is...
  7. G

    Frustrated!!

    I used to get really sad when my daughter lost weight during a sickness, even just a pound would upset me. Over time, it has seemed that she has had no trouble gaining the weight right back, within a week or less sometimes so now I don't even weigh her when she is sick. I hope your daughter is...
  8. G

    Frustrated!!

    I used to get really sad when my daughter lost weight during a sickness, even just a pound would upset me. Over time, it has seemed that she has had no trouble gaining the weight right back, within a week or less sometimes so now I don't even weigh her when she is sick. I hope your daughter is...
  9. G

    Silly Question of the Day...

    I think of it as shaking lose any possible mucus or bacteria so it cannot settle in the lungs. My daughter is almost 6 and she doesn't cough during the vest session or any other time unless she has a cold (although we have her do the huffing during the session, it isn't productive unless she...
  10. G

    Silly Question of the Day...

    I think of it as shaking lose any possible mucus or bacteria so it cannot settle in the lungs. My daughter is almost 6 and she doesn't cough during the vest session or any other time unless she has a cold (although we have her do the huffing during the session, it isn't productive unless she...
  11. G

    Silly Question of the Day...

    I think of it as shaking lose any possible mucus or bacteria so it cannot settle in the lungs. My daughter is almost 6 and she doesn't cough during the vest session or any other time unless she has a cold (although we have her do the huffing during the session, it isn't productive unless she...
  12. G

    Silly Question of the Day...

    I think of it as shaking lose any possible mucus or bacteria so it cannot settle in the lungs. My daughter is almost 6 and she doesn't cough during the vest session or any other time unless she has a cold (although we have her do the huffing during the session, it isn't productive unless she...
  13. G

    Silly Question of the Day...

    I think of it as shaking lose any possible mucus or bacteria so it cannot settle in the lungs. My daughter is almost 6 and she doesn't cough during the vest session or any other time unless she has a cold (although we have her do the huffing during the session, it isn't productive unless she...
  14. G

    Discipline and the CF child

    I have 2 kids and my CFer is the older of the 2. My younger one is almost 3 and he is the one that gives me the trouble. He bugs his older sister to no end while she is doing her treatments, it really bothers me (and his sister!). Anyway, I definately treat my kids the same. I am not telling...
  15. G

    Discipline and the CF child

    I have 2 kids and my CFer is the older of the 2. My younger one is almost 3 and he is the one that gives me the trouble. He bugs his older sister to no end while she is doing her treatments, it really bothers me (and his sister!). Anyway, I definately treat my kids the same. I am not telling...
  16. G

    Discipline and the CF child

    I have 2 kids and my CFer is the older of the 2. My younger one is almost 3 and he is the one that gives me the trouble. He bugs his older sister to no end while she is doing her treatments, it really bothers me (and his sister!). Anyway, I definately treat my kids the same. I am not telling...
  17. G

    Discipline and the CF child

    I have 2 kids and my CFer is the older of the 2. My younger one is almost 3 and he is the one that gives me the trouble. He bugs his older sister to no end while she is doing her treatments, it really bothers me (and his sister!). Anyway, I definately treat my kids the same. I am not telling...
  18. G

    Discipline and the CF child

    I have 2 kids and my CFer is the older of the 2. My younger one is almost 3 and he is the one that gives me the trouble. He bugs his older sister to no end while she is doing her treatments, it really bothers me (and his sister!). Anyway, I definately treat my kids the same. I am not telling...
  19. G

    when did your child start breathing treatments?

    My daughter started Pulmozyme a few months after she turned 5. She mainly started it to help with her sinuses (she uses the Bubbles mask and it helps thin her sinus mucus). That is the only regular neb she does. We have albuterol on hand to give when she has a cold to help open the airways...
  20. G

    when did your child start breathing treatments?

    My daughter started Pulmozyme a few months after she turned 5. She mainly started it to help with her sinuses (she uses the Bubbles mask and it helps thin her sinus mucus). That is the only regular neb she does. We have albuterol on hand to give when she has a cold to help open the airways...
Top