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  1. S

    Hypertonic saline mixed with other medications in the same neb session

    Our doctors told us to never mix any of the medicines. We aren't even allowed to use the same nebulizer cup without rinsing it between medicines.
  2. S

    School Field Trips ??

    Hey all! My daughter with CF is in kindergarten this year. She's had a couple field trips so far and my husband has always been a chaperone. Another field trip is coming up and the teacher told me he didn't have to be a chaperone because they wouldn't be eating anything on this field trip...
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    Two Kids with CF - Cross-Contamination

    My children are 18 months apart and both have CF (they are 6 and 4 right now). We haven't been given any recommendations about their care. We do our best to keep as much separate as we can, but they do their treatments in the same room on opposite ends of the couch. Even though we sterilize...
  4. S

    Pseudomonas

    My daughter cultured pseudomonas at about 18 months. She was on tobi and hasn't cultured it since (she's five now). Hopefully the iv antibiotics get rid of it.
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    appetite stimulants?

    I was just wondering what you all use to boost your CF'ers appetite? Currently mine take 1/2 tablet of periactin three times a day. They were on megace for a little bit, and that worked great, but gave my little guy cushing syndrome. Just curious.
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    Micro-gall bladder

    Hi Friends My little guy has CF and had his first abdominal ultrasound a couple days ago. His gall bladder was measured at 1cm, which his doctors are calling micro-gallbladder. I was just wondering if anyone out there has experienced micro-gallbladder and if they treat it? If so, how? Does...
  7. S

    to humidify or not to humidify? err..purify?

    Great advice!! Thanks everyone!! I think we'll continue to not humidify. Although that crockpot idea is quite inventive. I'm definitely going to look into filters for our vents. As usual, you have all been so very helpful. Much obliged. Take care and Happy Holidays!
  8. S

    to humidify or not to humidify? err..purify?

    Great advice!! Thanks everyone!! I think we'll continue to not humidify. Although that crockpot idea is quite inventive. I'm definitely going to look into filters for our vents. As usual, you have all been so very helpful. Much obliged. Take care and Happy Holidays!
  9. S

    to humidify or not to humidify? err..purify?

    Great advice!! Thanks everyone!! I think we'll continue to not humidify. Although that crockpot idea is quite inventive. I'm definitely going to look into filters for our vents. <br /> <br />As usual, you have all been so very helpful. Much obliged. Take care and Happy Holidays!
  10. S

    to humidify or not to humidify? err..purify?

    I'm sure this has been asked a billion, trillion times...but alas, once more.  Does anyone use a germ free humidifier during the seasonal changes?  When the heat turns on, is when my kiddos seem most likely to catch their colds, and I was wondering if I should look into it.  We do the whole...
  11. S

    to humidify or not to humidify? err..purify?

    I'm sure this has been asked a billion, trillion times...but alas, once more. Does anyone use a germ free humidifier during the seasonal changes? When the heat turns on, is when my kiddos seem most likely to catch their colds, and I was wondering if I should look into it. We do the whole...
  12. S

    to humidify or not to humidify? err..purify?

    I'm sure this has been asked a billion, trillion times...but alas, once more. Does anyone use a germ free humidifier during the seasonal changes? When the heat turns on, is when my kiddos seem most likely to catch their colds, and I was wondering if I should look into it. We do the whole...
  13. S

    Need a Halloween Costume?

    Gently Used Halloween Costumes with proceeds going to CF Foundation.<br><br>Infant and Toddler Halloween Costumes (and other holiday clothing) in <a target="" title="Sadie's Corner" href="http://www.ebay.com/itm/Infant-and-Toddler-Halloween-Costumes-/170701849103">Sadie's Corner </a>on eBay. ...
  14. S

    Need a Halloween Costume?

    Gently Used Halloween Costumes with proceeds going to CF Foundation.<br><br>Infant and Toddler Halloween Costumes (and other holiday clothing) in <a target="" title="Sadie's Corner" href="http://www.ebay.com/itm/Infant-and-Toddler-Halloween-Costumes-/170701849103">Sadie's Corner </a>on eBay...
  15. S

    Need a Halloween Costume?

    Gently Used Halloween Costumes with proceeds going to CF Foundation.<br><br>Infant and Toddler Halloween Costumes (and other holiday clothing) in <a target="" title="Sadie's Corner" href="http://www.ebay.com/itm/Infant-and-Toddler-Halloween-Costumes-/170701849103">Sadie's Corner </a>on eBay...
  16. S

    Has anyone done tobi neb. just once daily

    My little girl only had to neb tobi once a day, for one month. She was 2, or maybe a little less than, at the time. That's been our only experience with it though.
  17. S

    Has anyone done tobi neb. just once daily

    My little girl only had to neb tobi once a day, for one month. She was 2, or maybe a little less than, at the time. That's been our only experience with it though.
  18. S

    Has anyone done tobi neb. just once daily

    My little girl only had to neb tobi once a day, for one month. She was 2, or maybe a little less than, at the time. That's been our only experience with it though.
  19. S

    enzyme dosing for infant

    We are on creon, not zenpep, but our docs are very careful about not going over the recommended dosage. Maybe it's different with zenpep. I would say before increasing enzymes, did they try adding an antacid? They added zantac to help with the absorption when we started having issues...
  20. S

    enzyme dosing for infant

    We are on creon, not zenpep, but our docs are very careful about not going over the recommended dosage. Maybe it's different with zenpep. I would say before increasing enzymes, did they try adding an antacid? They added zantac to help with the absorption when we started having issues...
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