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  1. G

    birthday party opinion

    If my daughter (who is 5.5 cf) has been in good health and the party is important to her then we would definately go. I would stay there, keep an eye on her and disinfect her as soon as we leave though. This may be easier for me to say than some people though bc my daughter has had little/no...
  2. G

    birthday party opinion

    If my daughter (who is 5.5 cf) has been in good health and the party is important to her then we would definately go. I would stay there, keep an eye on her and disinfect her as soon as we leave though. This may be easier for me to say than some people though bc my daughter has had little/no...
  3. G

    birthday party opinion

    If my daughter (who is 5.5 cf) has been in good health and the party is important to her then we would definately go. I would stay there, keep an eye on her and disinfect her as soon as we leave though. This may be easier for me to say than some people though bc my daughter has had little/no...
  4. G

    birthday party opinion

    If my daughter (who is 5.5 cf) has been in good health and the party is important to her then we would definately go. I would stay there, keep an eye on her and disinfect her as soon as we leave though. This may be easier for me to say than some people though bc my daughter has had little/no...
  5. G

    birthday party opinion

    If my daughter (who is 5.5 cf) has been in good health and the party is important to her then we would definately go. I would stay there, keep an eye on her and disinfect her as soon as we leave though. This may be easier for me to say than some people though bc my daughter has had little/no...
  6. G

    pulmozyme and mucomyst

    Here is some stuff from Dr. Warwick from a couple of years ago: <b>COUGHING</b> Keep in mind that almost all CF patients have a super strong ability to suppress coughing. They have learned this at home, at school, at concerts, at movies, in crowds and at churches and other places. The...
  7. G

    pulmozyme and mucomyst

    Here is some stuff from Dr. Warwick from a couple of years ago: <b>COUGHING</b> Keep in mind that almost all CF patients have a super strong ability to suppress coughing. They have learned this at home, at school, at concerts, at movies, in crowds and at churches and other places. The...
  8. G

    pulmozyme and mucomyst

    Here is some stuff from Dr. Warwick from a couple of years ago: <b>COUGHING</b> Keep in mind that almost all CF patients have a super strong ability to suppress coughing. They have learned this at home, at school, at concerts, at movies, in crowds and at churches and other places. The...
  9. G

    pulmozyme and mucomyst

    Here is some stuff from Dr. Warwick from a couple of years ago: <b>COUGHING</b> Keep in mind that almost all CF patients have a super strong ability to suppress coughing. They have learned this at home, at school, at concerts, at movies, in crowds and at churches and other places. The...
  10. G

    pulmozyme and mucomyst

    Here is some stuff from Dr. Warwick from a couple of years ago: <br /> <br /><b>COUGHING</b> <br /> <br />Keep in mind that almost all CF patients have a super strong ability to suppress coughing. They have learned this at home, at school, at concerts, at movies, in crowds and at churches and...
  11. G

    vacations

    We flew with the Hill Rom 104 last summer and carried it on. It originally came with a shoulder carry bag but they have a wheeled bag now. They will send it to you for free if you call them and ask. At security they took the bag, opened it up, peeked around in the pockets then ran it through...
  12. G

    vacations

    We flew with the Hill Rom 104 last summer and carried it on. It originally came with a shoulder carry bag but they have a wheeled bag now. They will send it to you for free if you call them and ask. At security they took the bag, opened it up, peeked around in the pockets then ran it through...
  13. G

    vacations

    We flew with the Hill Rom 104 last summer and carried it on. It originally came with a shoulder carry bag but they have a wheeled bag now. They will send it to you for free if you call them and ask. At security they took the bag, opened it up, peeked around in the pockets then ran it through...
  14. G

    vacations

    We flew with the Hill Rom 104 last summer and carried it on. It originally came with a shoulder carry bag but they have a wheeled bag now. They will send it to you for free if you call them and ask. At security they took the bag, opened it up, peeked around in the pockets then ran it through...
  15. G

    vacations

    We flew with the Hill Rom 104 last summer and carried it on. It originally came with a shoulder carry bag but they have a wheeled bag now. They will send it to you for free if you call them and ask. At security they took the bag, opened it up, peeked around in the pockets then ran it through...
  16. G

    TX AS IF...

    It doesn't bother me at all but I am really curious about it, especially when symptoms show up at a young age but there is no genetic diagnosis. Has your son had a full panel test (Ambry or Qwest) and still no mutations were found? Was his sweat test positive? Only asking bc I am curious, I...
  17. G

    TX AS IF...

    It doesn't bother me at all but I am really curious about it, especially when symptoms show up at a young age but there is no genetic diagnosis. Has your son had a full panel test (Ambry or Qwest) and still no mutations were found? Was his sweat test positive? Only asking bc I am curious, I...
  18. G

    TX AS IF...

    It doesn't bother me at all but I am really curious about it, especially when symptoms show up at a young age but there is no genetic diagnosis. Has your son had a full panel test (Ambry or Qwest) and still no mutations were found? Was his sweat test positive? Only asking bc I am curious, I...
  19. G

    TX AS IF...

    It doesn't bother me at all but I am really curious about it, especially when symptoms show up at a young age but there is no genetic diagnosis. Has your son had a full panel test (Ambry or Qwest) and still no mutations were found? Was his sweat test positive? Only asking bc I am curious, I...
  20. G

    TX AS IF...

    It doesn't bother me at all but I am really curious about it, especially when symptoms show up at a young age but there is no genetic diagnosis. Has your son had a full panel test (Ambry or Qwest) and still no mutations were found? Was his sweat test positive? Only asking bc I am curious, I...
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