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My daughter cultured PA for the first time two weeks ago. They started her on 270 ml of IV Tobra 12 days ago while she was in the hospital. They tested her peak levels after two doses. I don't know the results but I know that they did not change the dose. After 8 doses the visiting nurse...

My daughter cultured PA for the first time two weeks ago. They started her on 270 ml of IV Tobra 12 days ago while she was in the hospital. They tested her peak levels after two doses. I don't know the results but I know that they did not change the dose. After 8 doses the visiting nurse...

Thanks to all of you for such great ideas. I will definitely bring her enzymes with me. I hadn't thought of that. I figured they would be ready for us since they had 24 hours notice of our arrival. That probably isn't how it works, is it? I didn't think of bringing wipes either. What a...

Thanks to all of you for such great ideas. I will definitely bring her enzymes with me. I hadn't thought of that. I figured they would be ready for us since they had 24 hours notice of our arrival. That probably isn't how it works, is it? I didn't think of bringing wipes either. What a...

Thanks to all of you for such great ideas. I will definitely bring her enzymes with me. I hadn't thought of that. I figured they would be ready for us since they had 24 hours notice of our arrival. That probably isn't how it works, is it? I didn't think of bringing wipes either. What a...

Thanks to all of you for such great ideas. I will definitely bring her enzymes with me. I hadn't thought of that. I figured they would be ready for us since they had 24 hours notice of our arrival. That probably isn't how it works, is it? I didn't think of bringing wipes either. What a...

Thanks to all of you for such great ideas. <br /> <br />I will definitely bring her enzymes with me. I hadn't thought of that. I figured they would be ready for us since they had 24 hours notice of our arrival. That probably isn't how it works, is it? <br /> <br />I didn't think of...

My daughter, Lauren, will be admitted to the hospital this afternoon for her first overnight stay since birth. She has a cough that has been worsening since it started as a cold on Labor Day. Now that it has moved into her lungs they decided it is time for more aggressive treatment - IV...

My daughter, Lauren, will be admitted to the hospital this afternoon for her first overnight stay since birth. She has a cough that has been worsening since it started as a cold on Labor Day. Now that it has moved into her lungs they decided it is time for more aggressive treatment - IV...

My daughter, Lauren, will be admitted to the hospital this afternoon for her first overnight stay since birth. She has a cough that has been worsening since it started as a cold on Labor Day. Now that it has moved into her lungs they decided it is time for more aggressive treatment - IV...

My daughter, Lauren, will be admitted to the hospital this afternoon for her first overnight stay since birth. She has a cough that has been worsening since it started as a cold on Labor Day. Now that it has moved into her lungs they decided it is time for more aggressive treatment - IV...

My daughter, Lauren, will be admitted to the hospital this afternoon for her first overnight stay since birth. She has a cough that has been worsening since it started as a cold on Labor Day. Now that it has moved into her lungs they decided it is time for more aggressive treatment - IV...

I completely get it. I was close to tears tonight - it takes sooo much time to get it all done. I am glad to see that I am not alone. I only wish, as you do, that the responses here said that HPS should only take a couple of minutes. My daughter, age 7, just started on HPS two weeks ago...

I completely get it. I was close to tears tonight - it takes sooo much time to get it all done. I am glad to see that I am not alone. I only wish, as you do, that the responses here said that HPS should only take a couple of minutes. My daughter, age 7, just started on HPS two weeks ago...

I completely get it. I was close to tears tonight - it takes sooo much time to get it all done. I am glad to see that I am not alone. I only wish, as you do, that the responses here said that HPS should only take a couple of minutes. My daughter, age 7, just started on HPS two weeks ago...

I completely get it. I was close to tears tonight - it takes sooo much time to get it all done. I am glad to see that I am not alone. I only wish, as you do, that the responses here said that HPS should only take a couple of minutes. My daughter, age 7, just started on HPS two weeks ago...

I completely get it. I was close to tears tonight - it takes sooo much time to get it all done. I am glad to see that I am not alone. I only wish, as you do, that the responses here said that HPS should only take a couple of minutes. <br /> <br />My daughter, age 7, just started on HPS two...

Our health insurance will be changing on November 1. The bad news is that the doctors at our current CF center won't take the new insurance. The good news is that the CF doctors at the other four centers that are within an hour of our home will. (Yes, we are very lucky to have so many centers...

Our health insurance will be changing on November 1. The bad news is that the doctors at our current CF center won't take the new insurance. The good news is that the CF doctors at the other four centers that are within an hour of our home will. (Yes, we are very lucky to have so many centers...

Our health insurance will be changing on November 1. The bad news is that the doctors at our current CF center won't take the new insurance. The good news is that the CF doctors at the other four centers that are within an hour of our home will. (Yes, we are very lucky to have so many centers...