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  1. M

    DESPERATE FOR INSIGHT!!!!!!

    Is CF mutations the only thing that would come up on the AMBRY test? Is it SPECIFICALLY for CF? I am so confused and feel completely helpless!!! <img src="i/expressions/face-icon-small-confused.gif" border="0">
  2. M

    DESPERATE FOR INSIGHT!!!!!!

    Ok, so the first CF panel came back negative but the second 97-mutation one came back with two abnormalities... I still have yet to get the full report since my daughter's gastroenterologist had to contact the CF specialty clinic. All the nurse would tell me is that there was "2 uncommon...
  3. M

    DESPERATE FOR INSIGHT!!!!!!

    Ok, so the first CF panel came back negative but the second 97-mutation one came back with two abnormalities... I still have yet to get the full report since my daughter's gastroenterologist had to contact the CF specialty clinic. All the nurse would tell me is that there was "2 uncommon...
  4. M

    DESPERATE FOR INSIGHT!!!!!!

    Ok, so the first CF panel came back negative but the second 97-mutation one came back with two abnormalities... I still have yet to get the full report since my daughter's gastroenterologist had to contact the CF specialty clinic. All the nurse would tell me is that there was "2 uncommon...
  5. M

    DESPERATE FOR INSIGHT!!!!!!

    Ok, so the first CF panel came back negative but the second 97-mutation one came back with two abnormalities... I still have yet to get the full report since my daughter's gastroenterologist had to contact the CF specialty clinic. All the nurse would tell me is that there was "2 uncommon...
  6. M

    DESPERATE FOR INSIGHT!!!!!!

    Ok, so the first CF panel came back negative but the second 97-mutation one came back with two abnormalities... I still have yet to get the full report since my daughter's gastroenterologist had to contact the CF specialty clinic. All the nurse would tell me is that there was "2 uncommon...
  7. M

    CF or No CF? desperate for advice.. anyone?!

    NEW UPDATES!!! ADVICE!!!!?? Ok, so We just completed her colonoscopy and upper endoscopy. Waiting on the biopsies from that and on CF gene testing results. The wait is ridiculous. The lady who did my daughter's surgery said that CF does not cause elevated fecal Calprotectin levels and would not...
  8. M

    CF or No CF? desperate for advice.. anyone?!

    NEW UPDATES!!! ADVICE!!!!?? Ok, so We just completed her colonoscopy and upper endoscopy. Waiting on the biopsies from that and on CF gene testing results. The wait is ridiculous. The lady who did my daughter's surgery said that CF does not cause elevated fecal Calprotectin levels and would not...
  9. M

    CF or No CF? desperate for advice.. anyone?!

    NEW UPDATES!!! ADVICE!!!!?? Ok, so We just completed her colonoscopy and upper endoscopy. Waiting on the biopsies from that and on CF gene testing results. The wait is ridiculous. The lady who did my daughter's surgery said that CF does not cause elevated fecal Calprotectin levels and would not...
  10. M

    CF or No CF? desperate for advice.. anyone?!

    NEW UPDATES!!! ADVICE!!!!?? Ok, so We just completed her colonoscopy and upper endoscopy. Waiting on the biopsies from that and on CF gene testing results. The wait is ridiculous. The lady who did my daughter's surgery said that CF does not cause elevated fecal Calprotectin levels and would not...
  11. M

    CF or No CF? desperate for advice.. anyone?!

    NEW UPDATES!!! ADVICE!!!!?? Ok, so We just completed her colonoscopy and upper endoscopy. Waiting on the biopsies from that and on CF gene testing results. The wait is ridiculous. The lady who did my daughter's surgery said that CF does not cause elevated fecal Calprotectin levels and would not...
  12. M

    CF or No CF? desperate for advice.. anyone?!

    thank you so much for the response. She has very bad GI problems. Chronic constipation, and abdominal pain daily. We have been battling this her whole life but been getting the run around with docs. I too have suffered through chronic abdominal pain, biliary sludging, enlarged liver, pancreatic...
  13. M

    CF or No CF? desperate for advice.. anyone?!

    thank you so much for the response. She has very bad GI problems. Chronic constipation, and abdominal pain daily. We have been battling this her whole life but been getting the run around with docs. I too have suffered through chronic abdominal pain, biliary sludging, enlarged liver, pancreatic...
  14. M

    CF or No CF? desperate for advice.. anyone?!

    thank you so much for the response. She has very bad GI problems. Chronic constipation, and abdominal pain daily. We have been battling this her whole life but been getting the run around with docs. I too have suffered through chronic abdominal pain, biliary sludging, enlarged liver, pancreatic...
  15. M

    CF or No CF? desperate for advice.. anyone?!

    thank you so much for the response. She has very bad GI problems. Chronic constipation, and abdominal pain daily. We have been battling this her whole life but been getting the run around with docs. I too have suffered through chronic abdominal pain, biliary sludging, enlarged liver, pancreatic...
  16. M

    CF or No CF? desperate for advice.. anyone?!

    thank you so much for the response. She has very bad GI problems. Chronic constipation, and abdominal pain daily. We have been battling this her whole life but been getting the run around with docs. I too have suffered through chronic abdominal pain, biliary sludging, enlarged liver, pancreatic...
  17. M

    CF or No CF? desperate for advice.. anyone?!

    My dd had a sweat test 2 years ago which turned out to be a borderline reading of 41. After 2 years of ongoing stomach issues and chronic cough I began some extensive research into her old records and as I did research I realized that her test fell into the borderline range and demanded that she...
  18. M

    CF or No CF? desperate for advice.. anyone?!

    My dd had a sweat test 2 years ago which turned out to be a borderline reading of 41. After 2 years of ongoing stomach issues and chronic cough I began some extensive research into her old records and as I did research I realized that her test fell into the borderline range and demanded that she...
  19. M

    CF or No CF? desperate for advice.. anyone?!

    My dd had a sweat test 2 years ago which turned out to be a borderline reading of 41. After 2 years of ongoing stomach issues and chronic cough I began some extensive research into her old records and as I did research I realized that her test fell into the borderline range and demanded that she...
  20. M

    CF or No CF? desperate for advice.. anyone?!

    My dd had a sweat test 2 years ago which turned out to be a borderline reading of 41. After 2 years of ongoing stomach issues and chronic cough I began some extensive research into her old records and as I did research I realized that her test fell into the borderline range and demanded that she...
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