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thanks for the responses everyone...hope to hear even more. this was kinda my point and original question with this topic? why don't we know more?<br><br>our daughter's CF doc hasn't been able to give me any info. when i ask, the doc says, "oh, i'll try to find something out." but when we walk...

thanks for the responses everyone...hope to hear even more. this was kinda my point and original question with this topic? why don't we know more?<br><br>our daughter's CF doc hasn't been able to give me any info. when i ask, the doc says, "oh, i'll try to find something out." but when we walk...

thanks for the responses everyone...hope to hear even more. this was kinda my point and original question with this topic? why don't we know more?<br><br>our daughter's CF doc hasn't been able to give me any info. when i ask, the doc says, "oh, i'll try to find something out." but when we walk...

<P>thanks Harriet for the link...I had been unable to find anything written recently...but even though this article is from 7/2011 it does not shed much new light...</P> <P></P> <P>miss T - thanks for the update, i did notrealize that the trial had been completed. although, that does make sense...

<P>thanks Harriet for the link...I had been unable to find anything written recently...but even though this article is from 7/2011 it does not shed much new light...</P> <P></P> <P>miss T - thanks for the update, i did notrealize that the trial had been completed. although, that does make sense...

<P>thanks Harriet for the link...I had been unable to find anything written recently...but even though this article is from 7/2011 it does not shed much new light...</P> <P></P> <P>miss T - thanks for the update, i did notrealize that the trial had been completed. although, that does make sense...

it appears that ataluren has the benefit of helping 10% of the Cf population and is also in Phase 3 clinical trials, so i'm just wondering why no "buzz" about it like there has been about the vertex drugs? <br><br>any thoughts?<br>

it appears that ataluren has the benefit of helping 10% of the Cf population and is also in Phase 3 clinical trials, so i'm just wondering why no "buzz" about it like there has been about the vertex drugs? <br><br>any thoughts?<br>

it appears that ataluren has the benefit of helping 10% of the Cf population and is also in Phase 3 clinical trials, so i'm just wondering why no "buzz" about it like there has been about the vertex drugs? <br><br>any thoughts?<br>

we recently asked this question of a pediatirc GI doc who sees a lot of kiddos with CF. He did not cite the specific articles, but did say the research did not find that there was a one size fits all...some benefited most from taking at the beginning, some from taking them in the middle and some...

we recently asked this question of a pediatirc GI doc who sees a lot of kiddos with CF. He did not cite the specific articles, but did say the research did not find that there was a one size fits all...some benefited most from taking at the beginning, some from taking them in the middle and some...

we recently asked this question of a pediatirc GI doc who sees a lot of kiddos with CF. He did not cite the specific articles, but did say the research did not find that there was a one size fits all...some benefited most from taking at the beginning, some from taking them in the middle and some...

There is a pediatric psychologist on my daughter's CF team. And although, my child is only 16 months she always checks in with us at clinic and offers to answer ANY questions or concerns we have. She has even called me when we missed her at clinic to see if everything was okay with the entire...

There is a pediatric psychologist on my daughter's CF team. And although, my child is only 16 months she always checks in with us at clinic and offers to answer ANY questions or concerns we have. She has even called me when we missed her at clinic to see if everything was okay with the entire...

There is a pediatric psychologist on my daughter's CF team. And although, my child is only 16 months she always checks in with us at clinic and offers to answer ANY questions or concerns we have. She has even called me when we missed her at clinic to see if everything was okay with the entire...

she has not been in the hospital ever. we have been to the doctor's office for her weigh ins. i suppose that could be where she picked it up. sounds like folks, even those that have not been on antibiotics or in a hospital, can and do get c-diff. it is not as common but it does happen. when i...

she has not been in the hospital ever. we have been to the doctor's office for her weigh ins. i suppose that could be where she picked it up. sounds like folks, even those that have not been on antibiotics or in a hospital, can and do get c-diff. it is not as common but it does happen. when i...

she has not been in the hospital ever. we have been to the doctor's office for her weigh ins. i suppose that could be where she picked it up. sounds like folks, even those that have not been on antibiotics or in a hospital, can and do get c-diff. it is not as common but it does happen. when i...

one other thing? has your little one had experience with this bug? i'm scratching my head why she got this. She has been on antibiotics only once about 7 months ago. We did a week of prevacid when they suspected that would help the gi issues. it did not, but actually got worse after starting...

one other thing? has your little one had experience with this bug? i'm scratching my head why she got this. She has been on antibiotics only once about 7 months ago. We did a week of prevacid when they suspected that would help the gi issues. it did not, but actually got worse after starting...