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I also have an almost 3 year old with CF and a 5 year old with out CF. WE are having the same issues as you are and have had the same solutions for many things as you did ie she picks TV during the vest, she gets to eat whatever she wants. We have been having lots of issues with my son and...

I also have an almost 3 year old with CF and a 5 year old with out CF. WE are having the same issues as you are and have had the same solutions for many things as you did ie she picks TV during the vest, she gets to eat whatever she wants. We have been having lots of issues with my son and...

I also have an almost 3 year old with CF and a 5 year old with out CF. WE are having the same issues as you are and have had the same solutions for many things as you did ie she picks TV during the vest, she gets to eat whatever she wants. We have been having lots of issues with my son and...

I also have an almost 3 year old with CF and a 5 year old with out CF. WE are having the same issues as you are and have had the same solutions for many things as you did ie she picks TV during the vest, she gets to eat whatever she wants. We have been having lots of issues with my son and...

I also have an almost 3 year old with CF and a 5 year old with out CF. WE are having the same issues as you are and have had the same solutions for many things as you did ie she picks TV during the vest, she gets to eat whatever she wants. We have been having lots of issues with my son and...

I have done several of these. The lab has the collection container. It is really easy. You keep the container in the fridge. You get up and pee first thing in the morning and then you collect all you urine including the first one the next morning, bring it to the lab and turn it in.

I have done several of these. The lab has the collection container. It is really easy. You keep the container in the fridge. You get up and pee first thing in the morning and then you collect all you urine including the first one the next morning, bring it to the lab and turn it in.

I have done several of these. The lab has the collection container. It is really easy. You keep the container in the fridge. You get up and pee first thing in the morning and then you collect all you urine including the first one the next morning, bring it to the lab and turn it in.

I have done several of these. The lab has the collection container. It is really easy. You keep the container in the fridge. You get up and pee first thing in the morning and then you collect all you urine including the first one the next morning, bring it to the lab and turn it in.

I have done several of these. The lab has the collection container. It is really easy. You keep the container in the fridge. You get up and pee first thing in the morning and then you collect all you urine including the first one the next morning, bring it to the lab and turn it in.

My daughter is 2 and has been on nighttime oxygen for 18 months, because she has sleep apnea with her CF causing low sats. According to our pulmonologist sleep apnea is common in CF, so maybe that is your issue too. She is to little to measure PFTs yet, but her lung function seems ok

My daughter is 2 and has been on nighttime oxygen for 18 months, because she has sleep apnea with her CF causing low sats. According to our pulmonologist sleep apnea is common in CF, so maybe that is your issue too. She is to little to measure PFTs yet, but her lung function seems ok

My daughter is 2 and has been on nighttime oxygen for 18 months, because she has sleep apnea with her CF causing low sats. According to our pulmonologist sleep apnea is common in CF, so maybe that is your issue too. She is to little to measure PFTs yet, but her lung function seems ok

My daughter is 2 and has been on nighttime oxygen for 18 months, because she has sleep apnea with her CF causing low sats. According to our pulmonologist sleep apnea is common in CF, so maybe that is your issue too. She is to little to measure PFTs yet, but her lung function seems ok

My daughter is 2 and has been on nighttime oxygen for 18 months, because she has sleep apnea with her CF causing low sats. According to our pulmonologist sleep apnea is common in CF, so maybe that is your issue too. She is to little to measure PFTs yet, but her lung function seems ok

All 50 states now have the CF screen as part of the newborn screen.

All 50 states now have the CF screen as part of the newborn screen.

All 50 states now have the CF screen as part of the newborn screen.

All 50 states now have the CF screen as part of the newborn screen.

All 50 states now have the CF screen as part of the newborn screen.