Discipline and the CF child

Ratatosk · Apr 9, 2009

I'm not much help 'cuz DS is an only child, but it does sound partly like an age issue. He walked all over me when we did time outs and I recall getting soooo frustrated with DS 'cuz he'd rather play than do treatments.

Could she or your other family members possibly watch tv or a dvd elsewhere, JUST during treatment times. We used to keep DS' vest in our bedroom and while I kept him company I'd watch his dvds or shows on our tv or try to read a book or magazine. Now that he's older, he'll either play xbox (again only while doing his vest) or he can watch tv. But if we're elsewhere -- my inlaws lake place, we'll bring along his portable dvd player and sometimes his head phones.

We still struggle with meals, though we have from time to time told him if he throws a fit about what we're serving, usually something he's requested, yet changes his mind about, then we take away something important to him -- no xbox, maybe he can't play a computer game with his dad later or watch spongebob. He can have a snack later, before bed.

While DS is an only child and we do spoil him, we are also pretty strict when it comes to certain things -- the biggy is making sure that he is a nice little boy and for him to know that he needs to treat others kindly. We still have meltdowns and the other night he got in trouble for calling me a slug, which is something I suspect he learned in preschool from one of his friends and just thought he was being funny.

I wish I could have something better to suggest. Sometimes I just want to run screaming from the house and then DS give me a hug and a big smile. Sigh.

Ratatosk · Apr 9, 2009

I'm not much help 'cuz DS is an only child, but it does sound partly like an age issue. He walked all over me when we did time outs and I recall getting soooo frustrated with DS 'cuz he'd rather play than do treatments.

Could she or your other family members possibly watch tv or a dvd elsewhere, JUST during treatment times. We used to keep DS' vest in our bedroom and while I kept him company I'd watch his dvds or shows on our tv or try to read a book or magazine. Now that he's older, he'll either play xbox (again only while doing his vest) or he can watch tv. But if we're elsewhere -- my inlaws lake place, we'll bring along his portable dvd player and sometimes his head phones.

We still struggle with meals, though we have from time to time told him if he throws a fit about what we're serving, usually something he's requested, yet changes his mind about, then we take away something important to him -- no xbox, maybe he can't play a computer game with his dad later or watch spongebob. He can have a snack later, before bed.

While DS is an only child and we do spoil him, we are also pretty strict when it comes to certain things -- the biggy is making sure that he is a nice little boy and for him to know that he needs to treat others kindly. We still have meltdowns and the other night he got in trouble for calling me a slug, which is something I suspect he learned in preschool from one of his friends and just thought he was being funny.

I wish I could have something better to suggest. Sometimes I just want to run screaming from the house and then DS give me a hug and a big smile. Sigh.

Ratatosk · Apr 9, 2009

I'm not much help 'cuz DS is an only child, but it does sound partly like an age issue. He walked all over me when we did time outs and I recall getting soooo frustrated with DS 'cuz he'd rather play than do treatments.

Could she or your other family members possibly watch tv or a dvd elsewhere, JUST during treatment times. We used to keep DS' vest in our bedroom and while I kept him company I'd watch his dvds or shows on our tv or try to read a book or magazine. Now that he's older, he'll either play xbox (again only while doing his vest) or he can watch tv. But if we're elsewhere -- my inlaws lake place, we'll bring along his portable dvd player and sometimes his head phones.

We still struggle with meals, though we have from time to time told him if he throws a fit about what we're serving, usually something he's requested, yet changes his mind about, then we take away something important to him -- no xbox, maybe he can't play a computer game with his dad later or watch spongebob. He can have a snack later, before bed.

While DS is an only child and we do spoil him, we are also pretty strict when it comes to certain things -- the biggy is making sure that he is a nice little boy and for him to know that he needs to treat others kindly. We still have meltdowns and the other night he got in trouble for calling me a slug, which is something I suspect he learned in preschool from one of his friends and just thought he was being funny.

I wish I could have something better to suggest. Sometimes I just want to run screaming from the house and then DS give me a hug and a big smile. Sigh.

Ratatosk · Apr 9, 2009

I'm not much help 'cuz DS is an only child, but it does sound partly like an age issue. He walked all over me when we did time outs and I recall getting soooo frustrated with DS 'cuz he'd rather play than do treatments.

Could she or your other family members possibly watch tv or a dvd elsewhere, JUST during treatment times. We used to keep DS' vest in our bedroom and while I kept him company I'd watch his dvds or shows on our tv or try to read a book or magazine. Now that he's older, he'll either play xbox (again only while doing his vest) or he can watch tv. But if we're elsewhere -- my inlaws lake place, we'll bring along his portable dvd player and sometimes his head phones.

We still struggle with meals, though we have from time to time told him if he throws a fit about what we're serving, usually something he's requested, yet changes his mind about, then we take away something important to him -- no xbox, maybe he can't play a computer game with his dad later or watch spongebob. He can have a snack later, before bed.

While DS is an only child and we do spoil him, we are also pretty strict when it comes to certain things -- the biggy is making sure that he is a nice little boy and for him to know that he needs to treat others kindly. We still have meltdowns and the other night he got in trouble for calling me a slug, which is something I suspect he learned in preschool from one of his friends and just thought he was being funny.

I wish I could have something better to suggest. Sometimes I just want to run screaming from the house and then DS give me a hug and a big smile. Sigh.

Ratatosk · Apr 9, 2009

I'm not much help 'cuz DS is an only child, but it does sound partly like an age issue. He walked all over me when we did time outs and I recall getting soooo frustrated with DS 'cuz he'd rather play than do treatments.
 
 Could she or your other family members possibly watch tv or a dvd elsewhere, JUST during treatment times. We used to keep DS' vest in our bedroom and while I kept him company I'd watch his dvds or shows on our tv or try to read a book or magazine. Now that he's older, he'll either play xbox (again only while doing his vest) or he can watch tv. But if we're elsewhere -- my inlaws lake place, we'll bring along his portable dvd player and sometimes his head phones.
 
 We still struggle with meals, though we have from time to time told him if he throws a fit about what we're serving, usually something he's requested, yet changes his mind about, then we take away something important to him -- no xbox, maybe he can't play a computer game with his dad later or watch spongebob. He can have a snack later, before bed.
 
 While DS is an only child and we do spoil him, we are also pretty strict when it comes to certain things -- the biggy is making sure that he is a nice little boy and for him to know that he needs to treat others kindly. We still have meltdowns and the other night he got in trouble for calling me a slug, which is something I suspect he learned in preschool from one of his friends and just thought he was being funny.
 
 I wish I could have something better to suggest. Sometimes I just want to run screaming from the house and then DS give me a hug and a big smile. Sigh.

beccasmom · Apr 9, 2009

I also have an almost 3 year old with CF and a 5 year old with out CF. WE are having the same issues as you are and have had the same solutions for many things as you did ie she picks TV during the vest, she gets to eat whatever she wants. We have been having lots of issues with my son and the not fairs, because his sister gets to do things he does not. I have been reminding him of things that he gets to do that she does not.

One of the childlife specialists at our hospital recommended that I write books for both kids about the bad things and good things with CF and then when we are having not fair issues we read our books and remember that it is a hard disease and it is not fair. My daughter has been hospitalized several times and has had home IV's etc when my son has the not fairs we remember about this and she is not able to do things he does because of her illness.

beccasmom · Apr 9, 2009

I also have an almost 3 year old with CF and a 5 year old with out CF. WE are having the same issues as you are and have had the same solutions for many things as you did ie she picks TV during the vest, she gets to eat whatever she wants. We have been having lots of issues with my son and the not fairs, because his sister gets to do things he does not. I have been reminding him of things that he gets to do that she does not.

One of the childlife specialists at our hospital recommended that I write books for both kids about the bad things and good things with CF and then when we are having not fair issues we read our books and remember that it is a hard disease and it is not fair. My daughter has been hospitalized several times and has had home IV's etc when my son has the not fairs we remember about this and she is not able to do things he does because of her illness.

beccasmom · Apr 9, 2009

I also have an almost 3 year old with CF and a 5 year old with out CF. WE are having the same issues as you are and have had the same solutions for many things as you did ie she picks TV during the vest, she gets to eat whatever she wants. We have been having lots of issues with my son and the not fairs, because his sister gets to do things he does not. I have been reminding him of things that he gets to do that she does not.

One of the childlife specialists at our hospital recommended that I write books for both kids about the bad things and good things with CF and then when we are having not fair issues we read our books and remember that it is a hard disease and it is not fair. My daughter has been hospitalized several times and has had home IV's etc when my son has the not fairs we remember about this and she is not able to do things he does because of her illness.

beccasmom · Apr 9, 2009

I also have an almost 3 year old with CF and a 5 year old with out CF. WE are having the same issues as you are and have had the same solutions for many things as you did ie she picks TV during the vest, she gets to eat whatever she wants. We have been having lots of issues with my son and the not fairs, because his sister gets to do things he does not. I have been reminding him of things that he gets to do that she does not.

One of the childlife specialists at our hospital recommended that I write books for both kids about the bad things and good things with CF and then when we are having not fair issues we read our books and remember that it is a hard disease and it is not fair. My daughter has been hospitalized several times and has had home IV's etc when my son has the not fairs we remember about this and she is not able to do things he does because of her illness.

beccasmom · Apr 9, 2009

I also have an almost 3 year old with CF and a 5 year old with out CF. WE are having the same issues as you are and have had the same solutions for many things as you did ie she picks TV during the vest, she gets to eat whatever she wants. We have been having lots of issues with my son and the not fairs, because his sister gets to do things he does not. I have been reminding him of things that he gets to do that she does not.
 
 One of the childlife specialists at our hospital recommended that I write books for both kids about the bad things and good things with CF and then when we are having not fair issues we read our books and remember that it is a hard disease and it is not fair. My daughter has been hospitalized several times and has had home IV's etc when my son has the not fairs we remember about this and she is not able to do things he does because of her illness.

NYCLawGirl · Apr 9, 2009

i am not a mom and i'm not experienced with this, so feel free to take my comments with a grain of salt. maybe you could try another way of making sure that your cfer isn't "spoiled" in ways that your daughter is not. for example, maybe you could give your sons a special time when they get to watch "their" shows? maybe that doesn't make sense - but if you made it so each child gets 30 minutes of tv control time, and your daughter's just happened to overlap with her treatments, then maybe she wouldn't see herself as "above the law" like she does now?

another example is rewarding good behavior in a different way that has nothing to do with cf. sounds like you're trying to do this. but you could set up a goal, like each child who goes a whole month with no time outs (or maybe just one or two) gets a special treat like a small toy or an extra snack/dessert/half hour of tv time. it might be another way to help your daughter start to see that she's expected to generally follow the same rules as everyone else.

i hear you on the food thing though. as a child i HATED breakfast, so my mom let me have frosted flakes or sugary cereal, even though my sister couldn't. she also put less limits on my snacking habits and indulged me pretty much whenever i was willing to eat, even if it was right before dinner. i'm sure my older sister was angry, but my mother definitely sat us both down and explained that just like erin had privileges because she was older (later bedtime, more free play and independence, etc), i also had special needs in the snack department. and this was back in the days of manual cpt, so i'm pretty sure erin was so happy she didn't have to get whacked on three times a day that she was willing to put up with slightly reduced cookie privileges!

NYCLawGirl · Apr 9, 2009

i am not a mom and i'm not experienced with this, so feel free to take my comments with a grain of salt. maybe you could try another way of making sure that your cfer isn't "spoiled" in ways that your daughter is not. for example, maybe you could give your sons a special time when they get to watch "their" shows? maybe that doesn't make sense - but if you made it so each child gets 30 minutes of tv control time, and your daughter's just happened to overlap with her treatments, then maybe she wouldn't see herself as "above the law" like she does now?

another example is rewarding good behavior in a different way that has nothing to do with cf. sounds like you're trying to do this. but you could set up a goal, like each child who goes a whole month with no time outs (or maybe just one or two) gets a special treat like a small toy or an extra snack/dessert/half hour of tv time. it might be another way to help your daughter start to see that she's expected to generally follow the same rules as everyone else.

i hear you on the food thing though. as a child i HATED breakfast, so my mom let me have frosted flakes or sugary cereal, even though my sister couldn't. she also put less limits on my snacking habits and indulged me pretty much whenever i was willing to eat, even if it was right before dinner. i'm sure my older sister was angry, but my mother definitely sat us both down and explained that just like erin had privileges because she was older (later bedtime, more free play and independence, etc), i also had special needs in the snack department. and this was back in the days of manual cpt, so i'm pretty sure erin was so happy she didn't have to get whacked on three times a day that she was willing to put up with slightly reduced cookie privileges!

NYCLawGirl · Apr 9, 2009

i am not a mom and i'm not experienced with this, so feel free to take my comments with a grain of salt. maybe you could try another way of making sure that your cfer isn't "spoiled" in ways that your daughter is not. for example, maybe you could give your sons a special time when they get to watch "their" shows? maybe that doesn't make sense - but if you made it so each child gets 30 minutes of tv control time, and your daughter's just happened to overlap with her treatments, then maybe she wouldn't see herself as "above the law" like she does now?

another example is rewarding good behavior in a different way that has nothing to do with cf. sounds like you're trying to do this. but you could set up a goal, like each child who goes a whole month with no time outs (or maybe just one or two) gets a special treat like a small toy or an extra snack/dessert/half hour of tv time. it might be another way to help your daughter start to see that she's expected to generally follow the same rules as everyone else.

i hear you on the food thing though. as a child i HATED breakfast, so my mom let me have frosted flakes or sugary cereal, even though my sister couldn't. she also put less limits on my snacking habits and indulged me pretty much whenever i was willing to eat, even if it was right before dinner. i'm sure my older sister was angry, but my mother definitely sat us both down and explained that just like erin had privileges because she was older (later bedtime, more free play and independence, etc), i also had special needs in the snack department. and this was back in the days of manual cpt, so i'm pretty sure erin was so happy she didn't have to get whacked on three times a day that she was willing to put up with slightly reduced cookie privileges!

NYCLawGirl · Apr 9, 2009

i am not a mom and i'm not experienced with this, so feel free to take my comments with a grain of salt. maybe you could try another way of making sure that your cfer isn't "spoiled" in ways that your daughter is not. for example, maybe you could give your sons a special time when they get to watch "their" shows? maybe that doesn't make sense - but if you made it so each child gets 30 minutes of tv control time, and your daughter's just happened to overlap with her treatments, then maybe she wouldn't see herself as "above the law" like she does now?

another example is rewarding good behavior in a different way that has nothing to do with cf. sounds like you're trying to do this. but you could set up a goal, like each child who goes a whole month with no time outs (or maybe just one or two) gets a special treat like a small toy or an extra snack/dessert/half hour of tv time. it might be another way to help your daughter start to see that she's expected to generally follow the same rules as everyone else.

i hear you on the food thing though. as a child i HATED breakfast, so my mom let me have frosted flakes or sugary cereal, even though my sister couldn't. she also put less limits on my snacking habits and indulged me pretty much whenever i was willing to eat, even if it was right before dinner. i'm sure my older sister was angry, but my mother definitely sat us both down and explained that just like erin had privileges because she was older (later bedtime, more free play and independence, etc), i also had special needs in the snack department. and this was back in the days of manual cpt, so i'm pretty sure erin was so happy she didn't have to get whacked on three times a day that she was willing to put up with slightly reduced cookie privileges!

NYCLawGirl · Apr 9, 2009

i am not a mom and i'm not experienced with this, so feel free to take my comments with a grain of salt. maybe you could try another way of making sure that your cfer isn't "spoiled" in ways that your daughter is not. for example, maybe you could give your sons a special time when they get to watch "their" shows? maybe that doesn't make sense - but if you made it so each child gets 30 minutes of tv control time, and your daughter's just happened to overlap with her treatments, then maybe she wouldn't see herself as "above the law" like she does now?
 
 another example is rewarding good behavior in a different way that has nothing to do with cf. sounds like you're trying to do this. but you could set up a goal, like each child who goes a whole month with no time outs (or maybe just one or two) gets a special treat like a small toy or an extra snack/dessert/half hour of tv time. it might be another way to help your daughter start to see that she's expected to generally follow the same rules as everyone else.
 
 i hear you on the food thing though. as a child i HATED breakfast, so my mom let me have frosted flakes or sugary cereal, even though my sister couldn't. she also put less limits on my snacking habits and indulged me pretty much whenever i was willing to eat, even if it was right before dinner. i'm sure my older sister was angry, but my mother definitely sat us both down and explained that just like erin had privileges because she was older (later bedtime, more free play and independence, etc), i also had special needs in the snack department. and this was back in the days of manual cpt, so i'm pretty sure erin was so happy she didn't have to get whacked on three times a day that she was willing to put up with slightly reduced cookie privileges!

RonnieSharpe · Apr 9, 2009

I, like Piper above, have no CF children. I however have CF and think that my mom did quite possibly the best job ever. So of course with my advice, you can take it or leave it...

I would never ever ever say "because of CF". If you think you have problems now, wait until she's interacting in the real world where nobody gives you special privilages "because of CF". My mom treated me no different than my brothers. CF wasn't a central focus in my house. Yeah, I was a sick kid at times and had to go in the hospital and do my treatments 3 times a day, ok, so what? I was still a kid. I still got disiplined the way my brothers got disciplined (except a lot more cause I was a brat).

She's not eating the ice cream "because she has CF". She's eating it because she's 3 and likes ice cream. Don't finish your plate, no ice cream. If you're concerned about your daughter getting enough calories, there are powders you can put in milk that will add nutrition and calories. High fat and high sugar foods aren't the only way to pack on the calories. You can do it many other ways without her even knowing.

How do you handle your other kids when they disobey? Do the same thing for her. We are who we are; CF doesn't make us who we are. If she's this way with CF, she'd be this way without.

Schedule treatment time for the same time every night, that way, the boys can pick the show before it, and then when it's treatment time it's her turn. Simply allowing her more options and priority "because of CF" is going to create a monster.

I also agree that taking away something important to a child is usually the best option for discipline. At least, I know that's what worked for me, and I was a crazy kid.

Bottom line: I would treat a CFer no differently than his/her brothers or sisters. Life isn't going to be fair her whole life and that's not changing. Life isn't fair for all non-CFers as well. A lot of it is her age, but I really think you need to nip it in the bud before her whole mentality is shaped into "I have CF, therefore, my way or the highway".

With all of that said...I have no kids and I talk a big game now, but who knows how I'll respond until I'm in the situation. Just know that I get that and I'm just trying to help.

Ronnie

RonnieSharpe · Apr 9, 2009

I, like Piper above, have no CF children. I however have CF and think that my mom did quite possibly the best job ever. So of course with my advice, you can take it or leave it...

I would never ever ever say "because of CF". If you think you have problems now, wait until she's interacting in the real world where nobody gives you special privilages "because of CF". My mom treated me no different than my brothers. CF wasn't a central focus in my house. Yeah, I was a sick kid at times and had to go in the hospital and do my treatments 3 times a day, ok, so what? I was still a kid. I still got disiplined the way my brothers got disciplined (except a lot more cause I was a brat).

She's not eating the ice cream "because she has CF". She's eating it because she's 3 and likes ice cream. Don't finish your plate, no ice cream. If you're concerned about your daughter getting enough calories, there are powders you can put in milk that will add nutrition and calories. High fat and high sugar foods aren't the only way to pack on the calories. You can do it many other ways without her even knowing.

How do you handle your other kids when they disobey? Do the same thing for her. We are who we are; CF doesn't make us who we are. If she's this way with CF, she'd be this way without.

Schedule treatment time for the same time every night, that way, the boys can pick the show before it, and then when it's treatment time it's her turn. Simply allowing her more options and priority "because of CF" is going to create a monster.

I also agree that taking away something important to a child is usually the best option for discipline. At least, I know that's what worked for me, and I was a crazy kid.

Bottom line: I would treat a CFer no differently than his/her brothers or sisters. Life isn't going to be fair her whole life and that's not changing. Life isn't fair for all non-CFers as well. A lot of it is her age, but I really think you need to nip it in the bud before her whole mentality is shaped into "I have CF, therefore, my way or the highway".

With all of that said...I have no kids and I talk a big game now, but who knows how I'll respond until I'm in the situation. Just know that I get that and I'm just trying to help.

Ronnie

RonnieSharpe · Apr 9, 2009

I, like Piper above, have no CF children. I however have CF and think that my mom did quite possibly the best job ever. So of course with my advice, you can take it or leave it...

I would never ever ever say "because of CF". If you think you have problems now, wait until she's interacting in the real world where nobody gives you special privilages "because of CF". My mom treated me no different than my brothers. CF wasn't a central focus in my house. Yeah, I was a sick kid at times and had to go in the hospital and do my treatments 3 times a day, ok, so what? I was still a kid. I still got disiplined the way my brothers got disciplined (except a lot more cause I was a brat).

She's not eating the ice cream "because she has CF". She's eating it because she's 3 and likes ice cream. Don't finish your plate, no ice cream. If you're concerned about your daughter getting enough calories, there are powders you can put in milk that will add nutrition and calories. High fat and high sugar foods aren't the only way to pack on the calories. You can do it many other ways without her even knowing.

How do you handle your other kids when they disobey? Do the same thing for her. We are who we are; CF doesn't make us who we are. If she's this way with CF, she'd be this way without.

Schedule treatment time for the same time every night, that way, the boys can pick the show before it, and then when it's treatment time it's her turn. Simply allowing her more options and priority "because of CF" is going to create a monster.

I also agree that taking away something important to a child is usually the best option for discipline. At least, I know that's what worked for me, and I was a crazy kid.

Bottom line: I would treat a CFer no differently than his/her brothers or sisters. Life isn't going to be fair her whole life and that's not changing. Life isn't fair for all non-CFers as well. A lot of it is her age, but I really think you need to nip it in the bud before her whole mentality is shaped into "I have CF, therefore, my way or the highway".

With all of that said...I have no kids and I talk a big game now, but who knows how I'll respond until I'm in the situation. Just know that I get that and I'm just trying to help.

Ronnie

RonnieSharpe · Apr 9, 2009

I, like Piper above, have no CF children. I however have CF and think that my mom did quite possibly the best job ever. So of course with my advice, you can take it or leave it...

I would never ever ever say "because of CF". If you think you have problems now, wait until she's interacting in the real world where nobody gives you special privilages "because of CF". My mom treated me no different than my brothers. CF wasn't a central focus in my house. Yeah, I was a sick kid at times and had to go in the hospital and do my treatments 3 times a day, ok, so what? I was still a kid. I still got disiplined the way my brothers got disciplined (except a lot more cause I was a brat).

She's not eating the ice cream "because she has CF". She's eating it because she's 3 and likes ice cream. Don't finish your plate, no ice cream. If you're concerned about your daughter getting enough calories, there are powders you can put in milk that will add nutrition and calories. High fat and high sugar foods aren't the only way to pack on the calories. You can do it many other ways without her even knowing.

How do you handle your other kids when they disobey? Do the same thing for her. We are who we are; CF doesn't make us who we are. If she's this way with CF, she'd be this way without.

Schedule treatment time for the same time every night, that way, the boys can pick the show before it, and then when it's treatment time it's her turn. Simply allowing her more options and priority "because of CF" is going to create a monster.

I also agree that taking away something important to a child is usually the best option for discipline. At least, I know that's what worked for me, and I was a crazy kid.

Bottom line: I would treat a CFer no differently than his/her brothers or sisters. Life isn't going to be fair her whole life and that's not changing. Life isn't fair for all non-CFers as well. A lot of it is her age, but I really think you need to nip it in the bud before her whole mentality is shaped into "I have CF, therefore, my way or the highway".

With all of that said...I have no kids and I talk a big game now, but who knows how I'll respond until I'm in the situation. Just know that I get that and I'm just trying to help.

Ronnie

RonnieSharpe · Apr 9, 2009

I, like Piper above, have no CF children. I however have CF and think that my mom did quite possibly the best job ever. So of course with my advice, you can take it or leave it...
 
 I would never ever ever say "because of CF". If you think you have problems now, wait until she's interacting in the real world where nobody gives you special privilages "because of CF". My mom treated me no different than my brothers. CF wasn't a central focus in my house. Yeah, I was a sick kid at times and had to go in the hospital and do my treatments 3 times a day, ok, so what? I was still a kid. I still got disiplined the way my brothers got disciplined (except a lot more cause I was a brat).
 
 She's not eating the ice cream "because she has CF". She's eating it because she's 3 and likes ice cream. Don't finish your plate, no ice cream. If you're concerned about your daughter getting enough calories, there are powders you can put in milk that will add nutrition and calories. High fat and high sugar foods aren't the only way to pack on the calories. You can do it many other ways without her even knowing.
 
 How do you handle your other kids when they disobey? Do the same thing for her. We are who we are; CF doesn't make us who we are. If she's this way with CF, she'd be this way without.
 
 Schedule treatment time for the same time every night, that way, the boys can pick the show before it, and then when it's treatment time it's her turn. Simply allowing her more options and priority "because of CF" is going to create a monster.
 
 I also agree that taking away something important to a child is usually the best option for discipline. At least, I know that's what worked for me, and I was a crazy kid.
 
 Bottom line: I would treat a CFer no differently than his/her brothers or sisters. Life isn't going to be fair her whole life and that's not changing. Life isn't fair for all non-CFers as well. A lot of it is her age, but I really think you need to nip it in the bud before her whole mentality is shaped into "I have CF, therefore, my way or the highway".
 
 With all of that said...I have no kids and I talk a big game now, but who knows how I'll respond until I'm in the situation. Just know that I get that and I'm just trying to help.
 
 Ronnie

Discipline and the CF child

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