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Just for a point of comparison, here are the medications my girls are on for CF-related respiratory stuff: Xopenex, Flovent (equivalent to Pulmicort), Zyrtec, Singulair, Nasonex, Pulmozyme, and CPT 2-4 times a day. For CPT, we use Vest, acapella, and hand pats, depending on need and where we...

Argh! How frustrating. We had a delay of a week last month because we had to wait to get the TOBI, so I can empathize with what you are feeling. Every day that went by, I just imagined my daughter's lungs getting worse and worse. It is stressful enough without this sort of hassle. For what...

Argh! How frustrating. We had a delay of a week last month because we had to wait to get the TOBI, so I can empathize with what you are feeling. Every day that went by, I just imagined my daughter's lungs getting worse and worse. It is stressful enough without this sort of hassle. For what...

Argh! How frustrating. We had a delay of a week last month because we had to wait to get the TOBI, so I can empathize with what you are feeling. Every day that went by, I just imagined my daughter's lungs getting worse and worse. It is stressful enough without this sort of hassle. For what...

Argh! How frustrating. We had a delay of a week last month because we had to wait to get the TOBI, so I can empathize with what you are feeling. Every day that went by, I just imagined my daughter's lungs getting worse and worse. It is stressful enough without this sort of hassle. For what...

Argh! How frustrating. We had a delay of a week last month because we had to wait to get the TOBI, so I can empathize with what you are feeling. Every day that went by, I just imagined my daughter's lungs getting worse and worse. <br /> <br />It is stressful enough without this sort of...

Sometimes we just have to take that leap of faith that the doctors know what needs to be done. I can only imagine how nervous I would be in your place. It is a good thing that you can at least feel confident that they have been careful with the decision. I will keep him, and your family, in my...

Sometimes we just have to take that leap of faith that the doctors know what needs to be done. I can only imagine how nervous I would be in your place. It is a good thing that you can at least feel confident that they have been careful with the decision. I will keep him, and your family, in my...

Sometimes we just have to take that leap of faith that the doctors know what needs to be done. I can only imagine how nervous I would be in your place. It is a good thing that you can at least feel confident that they have been careful with the decision. I will keep him, and your family, in my...

Sometimes we just have to take that leap of faith that the doctors know what needs to be done. I can only imagine how nervous I would be in your place. It is a good thing that you can at least feel confident that they have been careful with the decision. I will keep him, and your family, in my...

Sometimes we just have to take that leap of faith that the doctors know what needs to be done. I can only imagine how nervous I would be in your place. It is a good thing that you can at least feel confident that they have been careful with the decision. I will keep him, and your family, in my...

Just to add to my last post: I don't know if this helps, but I remember while I was in your shoes, waiting and worrying, all I could see was the worst. For what it is worth, your doctor may just be trying to ELIMINATE CF as a possible explanation. And if it is CF, you will adapt. When we got...

Just to add to my last post: I don't know if this helps, but I remember while I was in your shoes, waiting and worrying, all I could see was the worst. For what it is worth, your doctor may just be trying to ELIMINATE CF as a possible explanation. And if it is CF, you will adapt. When we got...

Just to add to my last post: I don't know if this helps, but I remember while I was in your shoes, waiting and worrying, all I could see was the worst. For what it is worth, your doctor may just be trying to ELIMINATE CF as a possible explanation. And if it is CF, you will adapt. When we got...

Just to add to my last post: I don't know if this helps, but I remember while I was in your shoes, waiting and worrying, all I could see was the worst. For what it is worth, your doctor may just be trying to ELIMINATE CF as a possible explanation. And if it is CF, you will adapt. When we got...

Just to add to my last post: I don't know if this helps, but I remember while I was in your shoes, waiting and worrying, all I could see was the worst. For what it is worth, your doctor may just be trying to ELIMINATE CF as a possible explanation. And if it is CF, you will adapt. When we got...

Sorry about that "pulmonary exacerbation" is just the clinical term for a sudden build-up of congestion in the lungs. In my kids, it happens when one of the bacteria in the lungs gets out of control, and they need a more powerful antibiotic. Sometimes it can mean a stay in the hospital. It is...

Sorry about that "pulmonary exacerbation" is just the clinical term for a sudden build-up of congestion in the lungs. In my kids, it happens when one of the bacteria in the lungs gets out of control, and they need a more powerful antibiotic. Sometimes it can mean a stay in the hospital. It is...

Sorry about that "pulmonary exacerbation" is just the clinical term for a sudden build-up of congestion in the lungs. In my kids, it happens when one of the bacteria in the lungs gets out of control, and they need a more powerful antibiotic. Sometimes it can mean a stay in the hospital. It is...

Sorry about that "pulmonary exacerbation" is just the clinical term for a sudden build-up of congestion in the lungs. In my kids, it happens when one of the bacteria in the lungs gets out of control, and they need a more powerful antibiotic. Sometimes it can mean a stay in the hospital. It is...