Search results

  1. L

    15 mth going for a sweat test

    I think we can all identify with what you are feeling. I remember so clearly the terror I felt when I realized CF was a real possibility, and I remember the agony of waiting. Although I know the waiting feels terrible, it sounds like a sweat test is a good idea, though. Remember that the test...
  2. L

    15 mth going for a sweat test

    I think we can all identify with what you are feeling. I remember so clearly the terror I felt when I realized CF was a real possibility, and I remember the agony of waiting. Although I know the waiting feels terrible, it sounds like a sweat test is a good idea, though. Remember that the test...
  3. L

    15 mth going for a sweat test

    I think we can all identify with what you are feeling. I remember so clearly the terror I felt when I realized CF was a real possibility, and I remember the agony of waiting. Although I know the waiting feels terrible, it sounds like a sweat test is a good idea, though. Remember that the test...
  4. L

    15 mth going for a sweat test

    I think we can all identify with what you are feeling. I remember so clearly the terror I felt when I realized CF was a real possibility, and I remember the agony of waiting. Although I know the waiting feels terrible, it sounds like a sweat test is a good idea, though. Remember that the test...
  5. L

    15 mth going for a sweat test

    I think we can all identify with what you are feeling. I remember so clearly the terror I felt when I realized CF was a real possibility, and I remember the agony of waiting. Although I know the waiting feels terrible, it sounds like a sweat test is a good idea, though. Remember that the test...
  6. L

    Toby inhaled

    My daughter experienced a change in her voice when she started TOBI. She already has a deep voice, but it got even deeper and scratchier. It returned to normal when she stopped at the end of the month. She also got more nosebleeds, but that could be the Veramyst, which she started at the same...
  7. L

    Toby inhaled

    My daughter experienced a change in her voice when she started TOBI. She already has a deep voice, but it got even deeper and scratchier. It returned to normal when she stopped at the end of the month. She also got more nosebleeds, but that could be the Veramyst, which she started at the same...
  8. L

    Toby inhaled

    My daughter experienced a change in her voice when she started TOBI. She already has a deep voice, but it got even deeper and scratchier. It returned to normal when she stopped at the end of the month. She also got more nosebleeds, but that could be the Veramyst, which she started at the same...
  9. L

    Toby inhaled

    My daughter experienced a change in her voice when she started TOBI. She already has a deep voice, but it got even deeper and scratchier. It returned to normal when she stopped at the end of the month. She also got more nosebleeds, but that could be the Veramyst, which she started at the same...
  10. L

    Toby inhaled

    My daughter experienced a change in her voice when she started TOBI. She already has a deep voice, but it got even deeper and scratchier. It returned to normal when she stopped at the end of the month. She also got more nosebleeds, but that could be the Veramyst, which she started at the same...
  11. L

    Mommy, why do I have CF?

    Abby, I don't really have any words of wisdom here, just empathy. My daughter (just turned seven) asked almost identical questions of me this week. Like others have said, we try to encourage her to see CF as something she has, but not something that defines her, and we talk a lot about other...
  12. L

    Mommy, why do I have CF?

    Abby, I don't really have any words of wisdom here, just empathy. My daughter (just turned seven) asked almost identical questions of me this week. Like others have said, we try to encourage her to see CF as something she has, but not something that defines her, and we talk a lot about other...
  13. L

    Mommy, why do I have CF?

    Abby, I don't really have any words of wisdom here, just empathy. My daughter (just turned seven) asked almost identical questions of me this week. Like others have said, we try to encourage her to see CF as something she has, but not something that defines her, and we talk a lot about other...
  14. L

    Mommy, why do I have CF?

    Abby, I don't really have any words of wisdom here, just empathy. My daughter (just turned seven) asked almost identical questions of me this week. Like others have said, we try to encourage her to see CF as something she has, but not something that defines her, and we talk a lot about other...
  15. L

    Mommy, why do I have CF?

    Abby, <br /> <br />I don't really have any words of wisdom here, just empathy. My daughter (just turned seven) asked almost identical questions of me this week. Like others have said, we try to encourage her to see CF as something she has, but not something that defines her, and we talk a lot...
  16. L

    Back from Grand Rapids and confused as ever.

    Tina, My youngest had a negative sweat test, but her sister's was borderline. Since both had some symptoms, the clinic ordered genetic tests on both. The genetics came back the same for both, and in both cases, there was ambiguity about what it meant, since they where heterozygous for Delta...
  17. L

    Back from Grand Rapids and confused as ever.

    Tina, My youngest had a negative sweat test, but her sister's was borderline. Since both had some symptoms, the clinic ordered genetic tests on both. The genetics came back the same for both, and in both cases, there was ambiguity about what it meant, since they where heterozygous for Delta...
  18. L

    Back from Grand Rapids and confused as ever.

    Tina, My youngest had a negative sweat test, but her sister's was borderline. Since both had some symptoms, the clinic ordered genetic tests on both. The genetics came back the same for both, and in both cases, there was ambiguity about what it meant, since they where heterozygous for Delta...
  19. L

    Back from Grand Rapids and confused as ever.

    Tina, My youngest had a negative sweat test, but her sister's was borderline. Since both had some symptoms, the clinic ordered genetic tests on both. The genetics came back the same for both, and in both cases, there was ambiguity about what it meant, since they where heterozygous for Delta...
  20. L

    Back from Grand Rapids and confused as ever.

    Tina, <br /> <br />My youngest had a negative sweat test, but her sister's was borderline. Since both had some symptoms, the clinic ordered genetic tests on both. The genetics came back the same for both, and in both cases, there was ambiguity about what it meant, since they where heterozygous...
Top