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As the others said, there are no answers short of the test, and sometimes even the test does not give clear answers. I remember being in your shoes, and I know the wait is terrible. It was for me. For my girls, it was a long process to a clear diagnosis. We did the sweat test to "rule CF...

Clearly, all these posts suggest this feeling is so very 'normal' to life with CF! I think the hardest thing about being a CF caretaker is that it is lonely. Outside of forums like this, there are not many around us that really understand what we do each day, and what we carry around with us...

Clearly, all these posts suggest this feeling is so very 'normal' to life with CF! I think the hardest thing about being a CF caretaker is that it is lonely. Outside of forums like this, there are not many around us that really understand what we do each day, and what we carry around with us...

Clearly, all these posts suggest this feeling is so very 'normal' to life with CF! I think the hardest thing about being a CF caretaker is that it is lonely. Outside of forums like this, there are not many around us that really understand what we do each day, and what we carry around with us...

Clearly, all these posts suggest this feeling is so very 'normal' to life with CF! I think the hardest thing about being a CF caretaker is that it is lonely. Outside of forums like this, there are not many around us that really understand what we do each day, and what we carry around with us...

Clearly, all these posts suggest this feeling is so very 'normal' to life with CF! I think the hardest thing about being a CF caretaker is that it is lonely. Outside of forums like this, there are not many around us that really understand what we do each day, and what we carry around with us...

If other likely alternatives have been ruled out, I would pursue a genetic test. I have two daughters with CF. One with sweat chloride of 11 and the other 49. They are part of the "new" class of diagnoses that are resulting from a better understanding of the genetics. They have only one...

If other likely alternatives have been ruled out, I would pursue a genetic test. I have two daughters with CF. One with sweat chloride of 11 and the other 49. They are part of the "new" class of diagnoses that are resulting from a better understanding of the genetics. They have only one...

If other likely alternatives have been ruled out, I would pursue a genetic test. I have two daughters with CF. One with sweat chloride of 11 and the other 49. They are part of the "new" class of diagnoses that are resulting from a better understanding of the genetics. They have only one...

If other likely alternatives have been ruled out, I would pursue a genetic test. I have two daughters with CF. One with sweat chloride of 11 and the other 49. They are part of the "new" class of diagnoses that are resulting from a better understanding of the genetics. They have only one...

If other likely alternatives have been ruled out, I would pursue a genetic test. I have two daughters with CF. One with sweat chloride of 11 and the other 49. They are part of the "new" class of diagnoses that are resulting from a better understanding of the genetics. They have only one...

This may seem like a strange question, but my husband and I have started conversations about what we can do now to prepare for our children's adult life with CF. Obviously, we know that we can manage their treatments and nutrition and encourage healthy attitudes. But we are also wondering...

I'll keep my fingers crossed for the test results. I am curious about the sweat chloride for carriers you mentioned. In what way was it different from the regular test? I am wondering if this is related to lines of research that could be relevant to cases like my girls (heterozygous, but dx...

From your message, I was not sure exactly what type of ped. mask you are using. I am guessing that it is the soft plastic, since they do tend to get yellow after repeated sterilization. We have been told that these masks can and should be replaced frequently. Our insurance will provide 2 a...

I was responding to Dollbaby's post about Josh's sinuses, and it felt good to hear someone else feeling as frustrated as I was.  It seems to me that coping with this kind of frustration is at least as important to the long term care of my children as managing their meds, but I haven't always...

I wish that I could offer a solution, but mostly I just identify with your frustration.  We've had a tough summer this year; I've heard it is a bad allergy year.  We all work so hard to do all this... the meds, the sinus washes (I've been doing them 1-2 times a day on both girls all summer, and...

My oldest was deficient in vitamin D at her first screening.  They also said that it is very common.  Since hers was minor, they let us try to adjust the levels through diet.  Josh's levels were probably lower, so they may be using the Rx to quickly raise the levels, or control the levels so...

Yes.  I don't really fear any conscious discrimination, but I have seen several examples of how the assumptions and judgments people make about women, especially working women, and about disabilities and illness subconsciously shape hiring decisions, and that has led me to feel uncomfortable...

Now this is a subject I know a lot about; both of my daughters would have been considered carriers just 10 years ago.  What they now know is that CF is not the clear cut recessive disease it was once thought to be.  Certain heterozygotes, like my daughters, do develop CF and/or CF-related...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cfmomma</b></i> I know it sounds cynical but I'm pissed off with CF and what it does to families. I hope I'm not this emotional my entire pregnancy. Thanks, I'm going to go to a 24 hour McDonalds and eat a greasy double cheeseburger...