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  1. C

    am I crazy, how can this make sense

    thanks for your replies. The insurance co said they won't cover ANY genetic testing unless it is deemed medically necessary. I am willing (if I absolutely have to) to pay for the 23 mutation testing out of pocket but I certainly cannot afford the full testing. <br />Also, we have only met with...
  2. C

    am I crazy, how can this make sense

    I apologize in advance but this might be a bit of a vent. as I've said in other posts, my son has several symptoms of CF. Heres my problem, the docs office (CF Care Center) said he was fine with my son having the genetic testing done. The nurse at the Center called me today to send me the...
  3. C

    am I crazy, how can this make sense

    I apologize in advance but this might be a bit of a vent. as I've said in other posts, my son has several symptoms of CF. Heres my problem, the docs office (CF Care Center) said he was fine with my son having the genetic testing done. The nurse at the Center called me today to send me the...
  4. C

    am I crazy, how can this make sense

    I apologize in advance but this might be a bit of a vent. as I've said in other posts, my son has several symptoms of CF. Heres my problem, the docs office (CF Care Center) said he was fine with my son having the genetic testing done. The nurse at the Center called me today to send me the...
  5. C

    am I crazy, how can this make sense

    I apologize in advance but this might be a bit of a vent. as I've said in other posts, my son has several symptoms of CF. Heres my problem, the docs office (CF Care Center) said he was fine with my son having the genetic testing done. The nurse at the Center called me today to send me the...
  6. C

    am I crazy, how can this make sense

    I apologize in advance but this might be a bit of a vent. as I've said in other posts, my son has several symptoms of CF. <br />Heres my problem, the docs office (CF Care Center) said he was fine with my son having the genetic testing done. The nurse at the Center called me today to send me the...
  7. C

    singulair

    My son (possible CF) takes Singulair and has been for almost a year now. It does help alot with his asthma and allergies. He takes it along with asmanex (for airway control)and allegra (for sinus drip) plus his albuterol inhaler is as needed. Price wise, we have BC/BS of NY and its a midline...
  8. C

    singulair

    My son (possible CF) takes Singulair and has been for almost a year now. It does help alot with his asthma and allergies. He takes it along with asmanex (for airway control)and allegra (for sinus drip) plus his albuterol inhaler is as needed. Price wise, we have BC/BS of NY and its a midline...
  9. C

    singulair

    My son (possible CF) takes Singulair and has been for almost a year now. It does help alot with his asthma and allergies. He takes it along with asmanex (for airway control)and allegra (for sinus drip) plus his albuterol inhaler is as needed. Price wise, we have BC/BS of NY and its a midline...
  10. C

    singulair

    My son (possible CF) takes Singulair and has been for almost a year now. It does help alot with his asthma and allergies. He takes it along with asmanex (for airway control)and allegra (for sinus drip) plus his albuterol inhaler is as needed. Price wise, we have BC/BS of NY and its a midline...
  11. C

    singulair

    My son (possible CF) takes Singulair and has been for almost a year now. It does help alot with his asthma and allergies. He takes it along with asmanex (for airway control)and allegra (for sinus drip) plus his albuterol inhaler is as needed. <br />Price wise, we have BC/BS of NY and its a...
  12. C

    Headed to the Hospital

    good luck with everything and keep us posted
  13. C

    Headed to the Hospital

    good luck with everything and keep us posted
  14. C

    Headed to the Hospital

    good luck with everything and keep us posted
  15. C

    Headed to the Hospital

    good luck with everything and keep us posted
  16. C

    Headed to the Hospital

    good luck with everything and keep us posted
  17. C

    sweat teat results

    His uncle never had genetic testing done. He was diagnosed in the late 70's at CH of Philly thru a stool test and a sweat test. From what I can gather, they just didn't have the genetic testing then like they have now. He was diagnosed with a CF variant, but we don't know the mutation. Also...
  18. C

    sweat teat results

    His uncle never had genetic testing done. He was diagnosed in the late 70's at CH of Philly thru a stool test and a sweat test. From what I can gather, they just didn't have the genetic testing then like they have now. He was diagnosed with a CF variant, but we don't know the mutation. Also...
  19. C

    sweat teat results

    His uncle never had genetic testing done. He was diagnosed in the late 70's at CH of Philly thru a stool test and a sweat test. From what I can gather, they just didn't have the genetic testing then like they have now. He was diagnosed with a CF variant, but we don't know the mutation. Also...
  20. C

    sweat teat results

    His uncle never had genetic testing done. He was diagnosed in the late 70's at CH of Philly thru a stool test and a sweat test. From what I can gather, they just didn't have the genetic testing then like they have now. He was diagnosed with a CF variant, but we don't know the mutation. Also...
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