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  1. M

    Those in Pain Management

    Christina, Nobody should ever bash a patient for being on narcotics since it's all about being able to function. However, there are many pain medicine specialists that need scrutiny. We have all kinds of them in south Florida, some great- many of them are very poor at their practice. I'm not...
  2. M

    What song do you relate your CF fight to

    "Jump Rope" by Blue October. It points out the obvious that there will be struggles and accomplishments. It also allows me to act silly with my girls since they love it too. And when I turn it up loud, you can hardly hear me cough.
  3. M

    Do You Travel to a CF Center in Another State to Get Good Care?

    Yes, an involved CF care center is an absolute as an adult. There is no care center that is going to care more about your health than you will. That being said, it's good to know that teaching hospitals typically have better care centers because they are driven by results...and there is...
  4. M

    Do You Travel to a CF Center in Another State to Get Good Care?

    Yes, an involved CF care center is an absolute as an adult. There is no care center that is going to care more about your health than you will. That being said, it's good to know that teaching hospitals typically have better care centers because they are driven by results...and there is...
  5. M

    What song do you relate your CF fight to

    "It Only Makes me Laugh" by Oingo Boingo. That song spoke to me as I was going through highschool and fighting to feel normal. I can exclaim that I really had an uneventful youth through college timeframe with CF despite being daignosed with CF at 18 months (1970) and being homozygous with...
  6. M

    Amazing PFTs

    Kudos to everyone who is engaging in exercise as an augment therapy to Tobi, Pulmozyne, HyperSal, etc... It's awesome that so many CF'ers have realized the lasting benefits of vigorous exercise. Now it's important to maintain both- never think that one can replace the other. If you stick with...
  7. M

    Amazing PFTs

    Kudos to everyone who is engaging in exercise as an augment therapy to Tobi, Pulmozyne, HyperSal, etc... It's awesome that so many CF'ers have realized the lasting benefits of vigorous exercise. Now it's important to maintain both- never think that one can replace the other. If you stick with...
  8. M

    Amazing PFTs

    Kudos to everyone who is engaging in exercise as an augment therapy to Tobi, Pulmozyne, HyperSal, etc... It's awesome that so many CF'ers have realized the lasting benefits of vigorous exercise. Now it's important to maintain both- never think that one can replace the other. If you stick with...
  9. M

    Question for the runners out there

    I should help to remember what your goal is....you could say that it is to complete a 10k, but the broader goal is increased health. When you view it that way running simply becomes the vehicle to get you there. There is no better way to augment your current therapies. I have CF and have run my...
  10. M

    Question for the runners out there

    I should help to remember what your goal is....you could say that it is to complete a 10k, but the broader goal is increased health. When you view it that way running simply becomes the vehicle to get you there. There is no better way to augment your current therapies. I have CF and have run my...
  11. M

    Question for the runners out there

    I should help to remember what your goal is....you could say that it is to complete a 10k, but the broader goal is increased health. When you view it that way running simply becomes the vehicle to get you there. There is no better way to augment your current therapies. I have CF and have run my...
  12. M

    Question for the runners out there

    I should help to remember what your goal is....you could say that it is to complete a 10k, but the broader goal is increased health. When you view it that way running simply becomes the vehicle to get you there. There is no better way to augment your current therapies. I have CF and have run my...
  13. M

    Question for the runners out there

    I should help to remember what your goal is....you could say that it is to complete a 10k, but the broader goal is increased health. When you view it that way running simply becomes the vehicle to get you there. There is no better way to augment your current therapies. I have CF and have run my...
  14. M

    Question for the runners out there

    I should help to remember what your goal is....you could say that it is to complete a 10k, but the broader goal is increased health. When you view it that way running simply becomes the vehicle to get you there. There is no better way to augment your current therapies. I have CF and have run my...
  15. M

    Central Florida CF Clinic / Doctors

    You have great choices in Orlando and Tampa. I was under Dr. Rolfe's care back in the 80's when I moved to Tampa from Dallas (another great clinic). Dr. Rolfe was thorough and knowledgable back then. I saw him about two years ago, but not actually for care. I moved my care from West Palm Beach...
  16. M

    Central Florida CF Clinic / Doctors

    You have great choices in Orlando and Tampa. I was under Dr. Rolfe's care back in the 80's when I moved to Tampa from Dallas (another great clinic). Dr. Rolfe was thorough and knowledgable back then. I saw him about two years ago, but not actually for care. I moved my care from West Palm Beach...
  17. M

    Central Florida CF Clinic / Doctors

    You have great choices in Orlando and Tampa. I was under Dr. Rolfe's care back in the 80's when I moved to Tampa from Dallas (another great clinic). Dr. Rolfe was thorough and knowledgable back then. I saw him about two years ago, but not actually for care. I moved my care from West Palm Beach...
  18. M

    cholesterol issues and CF?

    It always helps to think of the suggested 'goals' as a matter function. The doctors and dieticians are already doing that for Alyssa in the sense that they know having poor body mass reserves going into a respiratory infection can wreak havoc on the body and make it more difficult to fight the...
  19. M

    cholesterol issues and CF?

    It always helps to think of the suggested 'goals' as a matter function. The doctors and dieticians are already doing that for Alyssa in the sense that they know having poor body mass reserves going into a respiratory infection can wreak havoc on the body and make it more difficult to fight the...
  20. M

    cholesterol issues and CF?

    It always helps to think of the suggested 'goals' as a matter function. The doctors and dieticians are already doing that for Alyssa in the sense that they know having poor body mass reserves going into a respiratory infection can wreak havoc on the body and make it more difficult to fight the...
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