Search results

My daughter is enrolled in the study. She went on open label this past june. It can't hurt, but we haven't seen a differen ce with it yet either. I have been also wondering what others experiences with it are also, considering I'm thinking of having her stop since she had a big drop in her...

I completely agree with overuse of anti's. I don't believe she needs to be alternating constant, as we haven't seen any difference with or without them. We are actually in the process of switching clinics because I'm very annoyed with the one we are at (been there since she was born). I feel...

I completely agree with overuse of anti's. I don't believe she needs to be alternating constant, as we haven't seen any difference with or without them. We are actually in the process of switching clinics because I'm very annoyed with the one we are at (been there since she was born). I feel...

I completely agree with overuse of anti's. I don't believe she needs to be alternating constant, as we haven't seen any difference with or without them. We are actually in the process of switching clinics because I'm very annoyed with the one we are at (been there since she was born). I feel...

She just currently had a nasty one that lasted about 3 weeks and turned into pneumonia, but she also had cultered PA anf aspergillus. Before the cultures came back she went on azithromax for 3 weeks and prednisolone for 5 days. She got worse, and when the cultures came back they added cipro...

She just currently had a nasty one that lasted about 3 weeks and turned into pneumonia, but she also had cultered PA anf aspergillus. Before the cultures came back she went on azithromax for 3 weeks and prednisolone for 5 days. She got worse, and when the cultures came back they added cipro...

She just currently had a nasty one that lasted about 3 weeks and turned into pneumonia, but she also had cultered PA anf aspergillus. Before the cultures came back she went on azithromax for 3 weeks and prednisolone for 5 days. She got worse, and when the cultures came back they added cipro...

We have also been there many times. Its deffidently something to call aboujt. Our doctor said if it gets to be an ounce then we can worry.

We have also been there many times. Its deffidently something to call aboujt. Our doctor said if it gets to be an ounce then we can worry.

We have also been there many times. Its deffidently something to call aboujt. Our doctor said if it gets to be an ounce then we can worry.

My daughter is. She started in 09 and then switched onto the real drug in June. Honestly, I'm not impressed so far. I have yet to see any improvement with it. Her pft's have also dropped over 20% in that time, and there is a lot she can't take while on it so it doesn't mess up the study...

My daughter is. She started in 09 and then switched onto the real drug in June. Honestly, I'm not impressed so far. I have yet to see any improvement with it. Her pft's have also dropped over 20% in that time, and there is a lot she can't take while on it so it doesn't mess up the study...

My daughter is. She started in 09 and then switched onto the real drug in June. Honestly, I'm not impressed so far. I have yet to see any improvement with it. Her pft's have also dropped over 20% in that time, and there is a lot she can't take while on it so it doesn't mess up the study...

My daughter has always cultured staph as well. For about a year now she alternates bactrim and doxycycline every month.

My daughter has always cultured staph as well. For about a year now she alternates bactrim and doxycycline every month.

My daughter has always cultured staph as well. For about a year now she alternates bactrim and doxycycline every month.

Whoops forgot to add vest for 8 hours at night also <img src="i/expressions/face-icon-small-smile.gif" border="0">

Whoops forgot to add vest for 8 hours at night also <img src="i/expressions/face-icon-small-smile.gif" border="0">

Whoops forgot to add vest for 8 hours at night also <img src="i/expressions/face-icon-small-smile.gif" border="0">

I thought id chime in. AM Xopenex Denufosol Pulmozyne and vest for 30 min. Advair Flonase Tobi when needed 330 xopenex when needed, 30 min vest and denufosol PM Same as morning minus flonase