Search results

  1. C

    How do you keep your hope alive?

    maybe I'm abnormal, but I can honestlly say that since recovering from the initial diagnosis, I don't think twice about Connor's life span. I know we all die, most of us have no idea when or how or where. I accept that I don't have control over that, and just live each day one at a time. We've...
  2. C

    How do you keep your hope alive?

    maybe I'm abnormal, but I can honestlly say that since recovering from the initial diagnosis, I don't think twice about Connor's life span. I know we all die, most of us have no idea when or how or where. I accept that I don't have control over that, and just live each day one at a time. We've...
  3. C

    How do you keep your hope alive?

    maybe I'm abnormal, but I can honestlly say that since recovering from the initial diagnosis, I don't think twice about Connor's life span. I know we all die, most of us have no idea when or how or where. I accept that I don't have control over that, and just live each day one at a time. We've...
  4. C

    How do you keep your hope alive?

    maybe I'm abnormal, but I can honestlly say that since recovering from the initial diagnosis, I don't think twice about Connor's life span. I know we all die, most of us have no idea when or how or where. I accept that I don't have control over that, and just live each day one at a time. We've...
  5. C

    How do you keep your hope alive?

    maybe I'm abnormal, but I can honestlly say that since recovering from the initial diagnosis, I don't think twice about Connor's life span. I know we all die, most of us have no idea when or how or where. I accept that I don't have control over that, and just live each day one at a time. We've...
  6. C

    Weight and CF

    Connor was always in the 25% and his team at Children's Mercy in KC MO always felt as long as he continued to gain, he was good. As soon as we moved to VA the new team zeroed in on Connor's weight. Insisting that the research shows a correlation between weight and lung function. They started...
  7. C

    Weight and CF

    Connor was always in the 25% and his team at Children's Mercy in KC MO always felt as long as he continued to gain, he was good. As soon as we moved to VA the new team zeroed in on Connor's weight. Insisting that the research shows a correlation between weight and lung function. They started...
  8. C

    Weight and CF

    Connor was always in the 25% and his team at Children's Mercy in KC MO always felt as long as he continued to gain, he was good. As soon as we moved to VA the new team zeroed in on Connor's weight. Insisting that the research shows a correlation between weight and lung function. They started...
  9. C

    Weight and CF

    Connor was always in the 25% and his team at Children's Mercy in KC MO always felt as long as he continued to gain, he was good. As soon as we moved to VA the new team zeroed in on Connor's weight. Insisting that the research shows a correlation between weight and lung function. They started...
  10. C

    Weight and CF

    Connor was always in the 25% and his team at Children's Mercy in KC MO always felt as long as he continued to gain, he was good. As soon as we moved to VA the new team zeroed in on Connor's weight. Insisting that the research shows a correlation between weight and lung function. They started...
  11. C

    How many times has your child been in the hospital?

    Connor had surgery to correct inguinal hernias, that lead to his diagnosis because he lacks vas deferas, that was age 8 weeks. At 3 1/2 yrs he had a liver obstruction that they never could determine if it was 'CF Sludge' or just a narrow billeary tree- he was on actogall for a year, with no...
  12. C

    How many times has your child been in the hospital?

    Connor had surgery to correct inguinal hernias, that lead to his diagnosis because he lacks vas deferas, that was age 8 weeks. At 3 1/2 yrs he had a liver obstruction that they never could determine if it was 'CF Sludge' or just a narrow billeary tree- he was on actogall for a year, with no...
  13. C

    How many times has your child been in the hospital?

    Connor had surgery to correct inguinal hernias, that lead to his diagnosis because he lacks vas deferas, that was age 8 weeks. At 3 1/2 yrs he had a liver obstruction that they never could determine if it was 'CF Sludge' or just a narrow billeary tree- he was on actogall for a year, with no...
  14. C

    How many times has your child been in the hospital?

    Connor had surgery to correct inguinal hernias, that lead to his diagnosis because he lacks vas deferas, that was age 8 weeks. At 3 1/2 yrs he had a liver obstruction that they never could determine if it was 'CF Sludge' or just a narrow billeary tree- he was on actogall for a year, with no...
  15. C

    How many times has your child been in the hospital?

    Connor had surgery to correct inguinal hernias, that lead to his diagnosis because he lacks vas deferas, that was age 8 weeks. <br />At 3 1/2 yrs he had a liver obstruction that they never could determine if it was 'CF Sludge' or just a narrow billeary tree- he was on actogall for a year, with...
  16. C

    1st dentist vist Help!!!

    any number of things could have gone wrong, as you put it, or you could have gone to a sham dentist. If your tike really needs that much work some testing would have been done to see if he had a genetic problem with his teeth. That crook of a dentist I worked for briefly targeted Baby Boomers...
  17. C

    1st dentist vist Help!!!

    any number of things could have gone wrong, as you put it, or you could have gone to a sham dentist. If your tike really needs that much work some testing would have been done to see if he had a genetic problem with his teeth. That crook of a dentist I worked for briefly targeted Baby Boomers...
  18. C

    1st dentist vist Help!!!

    any number of things could have gone wrong, as you put it, or you could have gone to a sham dentist. If your tike really needs that much work some testing would have been done to see if he had a genetic problem with his teeth. That crook of a dentist I worked for briefly targeted Baby Boomers...
  19. C

    1st dentist vist Help!!!

    any number of things could have gone wrong, as you put it, or you could have gone to a sham dentist. If your tike really needs that much work some testing would have been done to see if he had a genetic problem with his teeth. That crook of a dentist I worked for briefly targeted Baby Boomers...
  20. C

    1st dentist vist Help!!!

    any number of things could have gone wrong, as you put it, or you could have gone to a sham dentist. If your tike really needs that much work some testing would have been done to see if he had a genetic problem with his teeth. That crook of a dentist I worked for briefly targeted Baby Boomers...
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