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To avoid waking Connor up in the night for enzymes, we spread his feed out over 10 hrs (his normal sleep pattern) we had to play around with it a bit to get the enzymes right, but for us, taking 5 Ultrase MT20's at the beginning of the feed and again at the end of the feed seems to be working...

To avoid waking Connor up in the night for enzymes, we spread his feed out over 10 hrs (his normal sleep pattern) we had to play around with it a bit to get the enzymes right, but for us, taking 5 Ultrase MT20's at the beginning of the feed and again at the end of the feed seems to be working...

To avoid waking Connor up in the night for enzymes, we spread his feed out over 10 hrs (his normal sleep pattern) we had to play around with it a bit to get the enzymes right, but for us, taking 5 Ultrase MT20's at the beginning of the feed and again at the end of the feed seems to be working...

To avoid waking Connor up in the night for enzymes, we spread his feed out over 10 hrs (his normal sleep pattern) we had to play around with it a bit to get the enzymes right, but for us, taking 5 Ultrase MT20's at the beginning of the feed and again at the end of the feed seems to be working...

To avoid waking Connor up in the night for enzymes, we spread his feed out over 10 hrs (his normal sleep pattern) we had to play around with it a bit to get the enzymes right, but for us, taking 5 Ultrase MT20's at the beginning of the feed and again at the end of the feed seems to be working...

What an eye opener it is to see everyone's schedule! I can't wait to have Connor read your posts, he feels like he spends too much time on his CF. He doesn't realize how easy he's had it! I am curious about the boiling of nebs tho, we use only pari nebs and I just put them in the dishwasher...

What an eye opener it is to see everyone's schedule! I can't wait to have Connor read your posts, he feels like he spends too much time on his CF. He doesn't realize how easy he's had it! I am curious about the boiling of nebs tho, we use only pari nebs and I just put them in the dishwasher...

What an eye opener it is to see everyone's schedule! I can't wait to have Connor read your posts, he feels like he spends too much time on his CF. He doesn't realize how easy he's had it! I am curious about the boiling of nebs tho, we use only pari nebs and I just put them in the dishwasher...

What an eye opener it is to see everyone's schedule! I can't wait to have Connor read your posts, he feels like he spends too much time on his CF. He doesn't realize how easy he's had it! I am curious about the boiling of nebs tho, we use only pari nebs and I just put them in the dishwasher...

What an eye opener it is to see everyone's schedule! <br />I can't wait to have Connor read your posts, he feels like he spends too much time on his CF. He doesn't realize how easy he's had it! I am curious about the boiling of nebs tho, we use only pari nebs and I just put them in the...

Connor is only gaining slowly as well- 1- 1.5lbs a week 2 if we're lucky. He gets nearly 2000 calories in the night thru his g-tube (4 cans 2cal HN at 95 ml an hour for 10 hrs taking 5 Pancrease MT20's at the beginning and 5 more at the end, and his stools show this is working) and eats very...

Connor is only gaining slowly as well- 1- 1.5lbs a week 2 if we're lucky. He gets nearly 2000 calories in the night thru his g-tube (4 cans 2cal HN at 95 ml an hour for 10 hrs taking 5 Pancrease MT20's at the beginning and 5 more at the end, and his stools show this is working) and eats very...

Connor is only gaining slowly as well- 1- 1.5lbs a week 2 if we're lucky. He gets nearly 2000 calories in the night thru his g-tube (4 cans 2cal HN at 95 ml an hour for 10 hrs taking 5 Pancrease MT20's at the beginning and 5 more at the end, and his stools show this is working) and eats very...

Connor is only gaining slowly as well- 1- 1.5lbs a week 2 if we're lucky. He gets nearly 2000 calories in the night thru his g-tube (4 cans 2cal HN at 95 ml an hour for 10 hrs taking 5 Pancrease MT20's at the beginning and 5 more at the end, and his stools show this is working) and eats very...

Connor is only gaining slowly as well- 1- 1.5lbs a week 2 if we're lucky. He gets nearly 2000 calories in the night thru his g-tube (4 cans 2cal HN at 95 ml an hour for 10 hrs taking 5 Pancrease MT20's at the beginning and 5 more at the end, and his stools show this is working) and eats very...

Our team of Docs didn't have us doing nebs or chest PT unless Connor was sick until he was 7 yrs old. I think it's a research thing, techniques change as more research is done. Since we moved to VA we've gotten the vest (first thing the new clinic did was get us the vest, the old clinic said...

Our team of Docs didn't have us doing nebs or chest PT unless Connor was sick until he was 7 yrs old. I think it's a research thing, techniques change as more research is done. Since we moved to VA we've gotten the vest (first thing the new clinic did was get us the vest, the old clinic said...

Our team of Docs didn't have us doing nebs or chest PT unless Connor was sick until he was 7 yrs old. I think it's a research thing, techniques change as more research is done. Since we moved to VA we've gotten the vest (first thing the new clinic did was get us the vest, the old clinic said...

Our team of Docs didn't have us doing nebs or chest PT unless Connor was sick until he was 7 yrs old. I think it's a research thing, techniques change as more research is done. Since we moved to VA we've gotten the vest (first thing the new clinic did was get us the vest, the old clinic said...

Our team of Docs didn't have us doing nebs or chest PT unless Connor was sick until he was 7 yrs old. I think it's a research thing, techniques change as more research is done. Since we moved to VA we've gotten the vest (first thing the new clinic did was get us the vest, the old clinic said...