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  1. J

    Cf and relationships

    Hi has anyone else gone through this. After recently going for per assessment for transplant nod seeing changes with the cf I don't like bit know its going to get a lot worser before your accepted onto the list and having the most beautiful daughter who's 5 my parter of 9 years decides he...
  2. J

    keep getting short of breath

    Hi I'm just going through the same and its driving me mad. I have a few months ago been for pre assessment for lung transplant but not the full one. But I'm beginning to wonder if things are moving quicker than I thought as had ivs 2 weeks ago plus two weeks of oral antibiotics tried hay fever...
  3. J

    Enzymes - withdrawn

    Hi has anyone been on a enzyme and for years and then all off a sudden its ben taken of the market and no longer available, which means lifestyle has changed that much eg weight loss ect as no other enzymes work, if you have had a similar experience what did you do? who did you turn to? and more...
  4. J

    Enzymes - withdrawn

    Hi has anyone been on a enzyme and for years and then all off a sudden its ben taken of the market and no longer available, which means lifestyle has changed that much eg weight loss ect as no other enzymes work, if you have had a similar experience what did you do? who did you turn to? and more...
  5. J

    Enzymes - withdrawn

    Hi has anyone been on a enzyme and for years and then all off a sudden its ben taken of the market and no longer available, which means lifestyle has changed that much eg weight loss ect as no other enzymes work, if you have had a similar experience what did you do? who did you turn to? and more...
  6. J

    What do you think

    Hi My FEV1 is 50% when I'm well but does drop to 40% or lower when I'm in need of IV's I'am 22 weeks pregnant and so far my FEV1 has stayed at 50%. I wasn't planning pregnancy and only found out after 4months that I was pregnant luckily for me I had no sickness ect. Although now starting to get...
  7. J

    What do you think

    Hi My FEV1 is 50% when I'm well but does drop to 40% or lower when I'm in need of IV's I'am 22 weeks pregnant and so far my FEV1 has stayed at 50%. I wasn't planning pregnancy and only found out after 4months that I was pregnant luckily for me I had no sickness ect. Although now starting to get...
  8. J

    What do you think

    Hi My FEV1 is 50% when I'm well but does drop to 40% or lower when I'm in need of IV's I'am 22 weeks pregnant and so far my FEV1 has stayed at 50%. I wasn't planning pregnancy and only found out after 4months that I was pregnant luckily for me I had no sickness ect. Although now starting to get...
  9. J

    Add another one to the group.....

    Hi congratulations. I'm 31 and now 18 weeks pregnant I seem to be doing very well so far so good and the docs are keeping a close eye on me. my Lf is 50% , I know things will get a bit tougher eventually but I,am enjoying each and every moment of pregnancy and I hope you do to. Take care and...
  10. J

    Add another one to the group.....

    Hi congratulations. I'm 31 and now 18 weeks pregnant I seem to be doing very well so far so good and the docs are keeping a close eye on me. my Lf is 50% , I know things will get a bit tougher eventually but I,am enjoying each and every moment of pregnancy and I hope you do to. Take care and...
  11. J

    Add another one to the group.....

    Hi congratulations. I'm 31 and now 18 weeks pregnant I seem to be doing very well so far so good and the docs are keeping a close eye on me. my Lf is 50% , I know things will get a bit tougher eventually but I,am enjoying each and every moment of pregnancy and I hope you do to. Take care and...
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