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  1. D

    Turning 60 w/ CF

    Happy Birthday!! I wish you many more!
  2. D

    You know you're a CF mom\dad\parent when......

    All this talk of enzymes and antibiotics reminds me...When I moved my parents from their home of 25 years, we found pills (enzymes, prescriptions, steroids) from nearly year. Mom's a bit of a hoarder. But, it was interesting to see how the pills changed over the years. Word from my cousins is...
  3. D

    You know you're a CF mom\dad\parent when......

    All this talk of enzymes and antibiotics reminds me...When I moved my parents from their home of 25 years, we found pills (enzymes, prescriptions, steroids) from nearly year. Mom's a bit of a hoarder. But, it was interesting to see how the pills changed over the years. Word from my cousins is...
  4. D

    You know you're a CF mom\dad\parent when......

    All this talk of enzymes and antibiotics reminds me...When I moved my parents from their home of 25 years, we found pills (enzymes, prescriptions, steroids) from nearly year. Mom's a bit of a hoarder. But, it was interesting to see how the pills changed over the years. Word from my cousins is...
  5. D

    National Exposure -- Advances in CF!

    Great news for the 4% of us that actually have the mutation that this new drug treats. :-) "There were 161 people in the trial ages 12 years and older with a specific gene mutation known as G551D-CFTR, which affects 4 percent of the cystic fibrosis population. " Here is a link to the...
  6. D

    National Exposure -- Advances in CF!

    Great news for the 4% of us that actually have the mutation that this new drug treats. :-) "There were 161 people in the trial ages 12 years and older with a specific gene mutation known as G551D-CFTR, which affects 4 percent of the cystic fibrosis population. " Here is a link to the...
  7. D

    National Exposure -- Advances in CF!

    Great news for the 4% of us that actually have the mutation that this new drug treats. :-) "There were 161 people in the trial ages 12 years and older with a specific gene mutation known as G551D-CFTR, which affects 4 percent of the cystic fibrosis population. " Here is a link to the...
  8. D

    You know you're a CF mom\dad\parent when......

    Our Moose club has a Cucumber salad that is basically sliced raw cucumbers with a salty, creamy sauce. That's all I take from the salad bar. I will get the recipe.
  9. D

    You know you're a CF mom\dad\parent when......

    Our Moose club has a Cucumber salad that is basically sliced raw cucumbers with a salty, creamy sauce. That's all I take from the salad bar. I will get the recipe.
  10. D

    You know you're a CF mom\dad\parent when......

    Our Moose club has a Cucumber salad that is basically sliced raw cucumbers with a salty, creamy sauce. That's all I take from the salad bar. I will get the recipe.
  11. D

    Muscle and Joint Pain/severe exhaustion

    I'm also interested in anyone who has an explanation and/or treatment for nearly constant joint and muscles pain and unending exhaustion. Mine is something that just seems to keep getting gradually worse. I started noticing the exhaustion 10 years ago. The constant aching has been going on...
  12. D

    Muscle and Joint Pain/severe exhaustion

    I'm also interested in anyone who has an explanation and/or treatment for nearly constant joint and muscles pain and unending exhaustion. Mine is something that just seems to keep getting gradually worse. I started noticing the exhaustion 10 years ago. The constant aching has been going on...
  13. D

    Muscle and Joint Pain/severe exhaustion

    I'm also interested in anyone who has an explanation and/or treatment for nearly constant joint and muscles pain and unending exhaustion. Mine is something that just seems to keep getting gradually worse. I started noticing the exhaustion 10 years ago. The constant aching has been going on...
  14. D

    Headaches connected to sinus problems?

    I suffer chronic sinus infections. Antibiotics always help. Infection and inflammation go hand in hand. Infection causes inflammation and inflammation makes infection worse. So, whenever I'm on antibiotics, the inflammation in my sinuses is reduced, and therefore, the headaches from the...
  15. D

    Headaches connected to sinus problems?

    I suffer chronic sinus infections. Antibiotics always help. Infection and inflammation go hand in hand. Infection causes inflammation and inflammation makes infection worse. So, whenever I'm on antibiotics, the inflammation in my sinuses is reduced, and therefore, the headaches from the...
  16. D

    Headaches connected to sinus problems?

    I suffer chronic sinus infections. Antibiotics always help. Infection and inflammation go hand in hand. Infection causes inflammation and inflammation makes infection worse. So, whenever I'm on antibiotics, the inflammation in my sinuses is reduced, and therefore, the headaches from the...
  17. D

    MY CF STORY AGE 52

    Wow, does your story take me back. I'm 40, and remember cotazyme and mist tents and the poundings (patting) after nebs. I managed to avoid the mist tents (and hospitals until I was a teen), but I knew kids that could not sleep without them. I got to try one of the first Vests. I guess those...
  18. D

    MY CF STORY AGE 52

    Wow, does your story take me back. I'm 40, and remember cotazyme and mist tents and the poundings (patting) after nebs. I managed to avoid the mist tents (and hospitals until I was a teen), but I knew kids that could not sleep without them. I got to try one of the first Vests. I guess those...
  19. D

    MY CF STORY AGE 52

    Wow, does your story take me back. I'm 40, and remember cotazyme and mist tents and the poundings (patting) after nebs. I managed to avoid the mist tents (and hospitals until I was a teen), but I knew kids that could not sleep without them. I got to try one of the first Vests. I guess those...
  20. D

    Do you lead a normal life: Please check the best answer.

    The only place I'm even halfway clear on "normal" is on the washing machine and dishwasher. I think I have normal clothes and dishes. .... maybe... now that I think about, maybe they aren't normal either.... LOL Why can't you drive a semi??? I understand why diabetics can't drive semis, but...
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