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  1. D

    Medicare and home IVs

    It is a portable IV infusion pump...it is very nice for home IVs...but it is about a $5,000 piece of equipment I believe...I get it from my clinic when I'm on home IVs..and then return it at the end of the course.
  2. D

    Medicare and home IVs

    It is a portable IV infusion pump...it is very nice for home IVs...but it is about a $5,000 piece of equipment I believe...I get it from my clinic when I'm on home IVs..and then return it at the end of the course.
  3. D

    Adult CF and joint problems

    I am 37 and have suffered with this joint pain since I was 9. When I was younger I got the rash...but as an adult not too often...but definitely get the flare ups and the awful joint pain. The only thing that I have found that helps me is prednisone. This is some type of arthritis and I see a...
  4. D

    Adult CF and joint problems

    I am 37 and have suffered with this joint pain since I was 9. When I was younger I got the rash...but as an adult not too often...but definitely get the flare ups and the awful joint pain. The only thing that I have found that helps me is prednisone. This is some type of arthritis and I see a...
  5. D

    Adult CF and joint problems

    I am 37 and have suffered with this joint pain since I was 9. When I was younger I got the rash...but as an adult not too often...but definitely get the flare ups and the awful joint pain. The only thing that I have found that helps me is prednisone. This is some type of arthritis and I see a...
  6. D

    Swollen, stiff, painful fingers/hands

    I have dealt with this since I was 9 and I will be 37 this month. It is a type of CF related arthritis...but there isnt much known about it. It has "flare ups" like rheumatoid arthritis....which mine has turned into after all these years of having problems. Prednisone does work because it is...
  7. D

    Swollen, stiff, painful fingers/hands

    I have dealt with this since I was 9 and I will be 37 this month. It is a type of CF related arthritis...but there isnt much known about it. It has "flare ups" like rheumatoid arthritis....which mine has turned into after all these years of having problems. Prednisone does work because it is...
  8. D

    Swollen, stiff, painful fingers/hands

    I have dealt with this since I was 9 and I will be 37 this month. It is a type of CF related arthritis...but there isnt much known about it. It has "flare ups" like rheumatoid arthritis....which mine has turned into after all these years of having problems. <br />Prednisone does work because...
  9. D

    Only one in family with CF

    I have HUGE families on both my mom and my dad's sides. I was also the first with CF...then my brother was born. There was no family history of it on either side...it is definitely strange how things happen. So it is just my brother and I ... Dea
  10. D

    Only one in family with CF

    I have HUGE families on both my mom and my dad's sides. I was also the first with CF...then my brother was born. There was no family history of it on either side...it is definitely strange how things happen. So it is just my brother and I ... Dea
  11. D

    Only one in family with CF

    I have HUGE families on both my mom and my dad's sides. I was also the first with CF...then my brother was born. There was no family history of it on either side...it is definitely strange how things happen. <br />So it is just my brother and I ... <br />Dea
  12. D

    question for women with CF that have had babies

    My regular OB wouldnt even see me after they found out I was pregnant. They sent me right to a perinatologist (High Risk). I was followed by him throughout my whole pregnancy and I did quite well. I think you should see a high risk Dr...but, if you are not comfortable with the one that you...
  13. D

    question for women with CF that have had babies

    My regular OB wouldnt even see me after they found out I was pregnant. They sent me right to a perinatologist (High Risk). I was followed by him throughout my whole pregnancy and I did quite well. I think you should see a high risk Dr...but, if you are not comfortable with the one that you...
  14. D

    question for women with CF that have had babies

    My regular OB wouldnt even see me after they found out I was pregnant. They sent me right to a perinatologist (High Risk). I was followed by him throughout my whole pregnancy and I did quite well. I think you should see a high risk Dr...but, if you are not comfortable with the one that you...
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    CF Arthritis - CF Arthropathy

    I have had CF arthritis since I was about age 9 (my earliest memory). The pain is so bad you cant walk or move any joint in the body without hurting. When I was younger I also would get heated red bumps that would show up on mostly my legs. I would also get a fever. When I was younger they...
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    CF Arthritis - CF Arthropathy

    I have had CF arthritis since I was about age 9 (my earliest memory). The pain is so bad you cant walk or move any joint in the body without hurting. When I was younger I also would get heated red bumps that would show up on mostly my legs. I would also get a fever. When I was younger they...
  17. D

    CF Arthritis - CF Arthropathy

    I have had CF arthritis since I was about age 9 (my earliest memory). The pain is so bad you cant walk or move any joint in the body without hurting. When I was younger I also would get heated red bumps that would show up on mostly my legs. I would also get a fever. When I was younger they...
  18. D

    CF Arthritis - CF Arthropathy

    I have had CF arthritis since I was about age 9 (my earliest memory). The pain is so bad you cant walk or move any joint in the body without hurting. When I was younger I also would get heated red bumps that would show up on mostly my legs. I would also get a fever. When I was younger they...
  19. D

    CF Arthritis - CF Arthropathy

    I have had CF arthritis since I was about age 9 (my earliest memory). The pain is so bad you cant walk or move any joint in the body without hurting. When I was younger I also would get heated red bumps that would show up on mostly my legs. I would also get a fever. When I was younger they...
  20. D

    Getting Older.....

    First of all...Happy Birthday! I say it is a great thing for us CFers to age. It is hard somedays for me as well...but I know I can't dwell on "What if". Try to live each day as it comes. You know that those CF friends who have passed would want you to continue fighting! Good Luck to you!
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