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Hi Rebjane, I know this is not actually answering your question, but is there any reason you don't use an eFlow nebulizer instead of a compressor at least for when you travel? In my opinion, nothing beats the eFlow in terms of the size + silence + speed convenience. When the aerosol head is new...

Hi purple, thanks for your follow up response. I am interested in your experience...logically it makes sense that adding salt in any form could have benefits e.g. in hot climates they often advice CF patients to supplement with salt to avoid losing too much salt and then becoming dehydrated. I...

Hi purple, not sure about the sound of this remedy, as nothing is entirely without the potential of harm...can you explain more about the benefits you achieved from this remedy, also the ingredients that the IV rehydration mix contains? What would be the advantage of this compared to oral...

Hi susied, we suggest you create a thread with your question so more people will see it. Go to Forum, choose a category and there you will find a button for starting a new thread.

Hi, thank you for sharing your story and congratulations for working so hard to get your health back up. No advice from my side, only to say good luck with your decision and (in my opinion) there's no need to rush as you are still young, so you luckily have time to get your current health issues...

Hi julie61554, it sounds like you have been having a really hard time. I can't give any insight to your questions, however I think these are fair questions to ask answers for from your CF team...20-25% FEV1 does seem rather low not to require oxygen, but perhaps this is just how your body works...

Hi sunshine39656, hope you're feeling better. No real advice, just wanted to say yes, I've had the weird thin watery mucus, usually at the start of getting sick when at what feels like a 'virus stage' with fever, sore throat etc. I increase my treatments to try keep coughing it out and not just...

I have a Microlife portable spirometer that measures Peak Flow and FEV1, it runs on batteries and fits in my hand so I use it at home and on trips to keep tabs on my lung function. I have been very happy with it, and according to my experiments it is accurate if compared to the one at my...

Just bumping up this thread, same as I've done for some other recent threads with a similar topic - there is currently a 'recipe contest' on the cysticfibrosis.com/blog page (May 2017). We'll be giving away some gift vouchers for submissions of CF appropriate recipes in a whole range of...

Just bumping up this thread - there is currently a 'recipe contest' on the cysticfibrosis.com/blog page (May 2017). We'll be giving away some gift vouchers for submissions of CF appropriate recipes in a whole range of categories to choose from. PS it doesn't need to be full blown fancy recipes...

Hi guys, I'm just bumping up this thread - there is currently a 'recipe contest' on the cysticfibrosis.com/blog page (May 2017). We're giving away some gift vouchers for submissions of CF appropriate recipes in a whole range of categories to choose from. Perhaps the members who posted these...

* * bumping the thread * *

I currently use a low dose of Celebrex once per day and I find it effective for reducing overall inflammation and achiness, but for me it doesn't relieve very intense pain (probably due to the low dose). If yours is severe pain and long lasting, it would be better to get to the root of the...

Have never attempted this, but would be curious to know the outcome. Since starting to use (high quality) rechargeable AA batteries I have never used the wall adapter again, as it is 100% portable and I seem to get a few days' treatments before needing to swop batteries. If you need the...

Hi LACIEAUDI1, Starting in my late teens up and escalating in my late 20's - early 30's, I have had something that my doctor finally classified as 'CF related arthritis'. Your condition could of course be something completely unrelated, but perhaps my experience gives you something to work...

Hi jricci, thanks for sharing that link! Agreed, she shared some great tips and the photos were very helpful. Just an update (again) - I feel I'm getting there with the oral meds situation now, so far my rearranged stash of meds is working well and I find taking the tablets very quick and...

This sounds fantastic. It would be a much more intelligent way to manage excessive stomach acid, with these little submarine balls that only kick in if necessary. And yes it really does seem like almost everyone with CF battles with this problem.

Hi erock77 thanks for the input. I liked the idea of storing all the bottles currently in use together, which would make dispensing easier - either daily from the bottle or with the weekly pill boxes. UPDATE: I finally sorted out all the meds today and I'm feeling so much better! I ended up...

Hi Kenna2, thanks for the great reply, love it! The boxes you link to look good, even though it means packing out one or two weeks' ahead of time (extra admin upfront) I do like that it saves time during the week. And that they are large enough to hold several tablets, and separate the different...

Medication is taking over my kitchen! Boxes and bottles of pills are collecting on the counter, driving me crazy and I need to do a clean-up. Before I start, I need some fresh ideas on how to organize oral medications. Goals: 1) Easy to store, and out of sight (and thus protected from heat etc)...