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I always recommend that CF patients follow the standard, approved CF treatments as prescribed by their medical team. However even with the prescribed treatments, I regularly experience ailments that fall outside of the normal acutely sick symptoms. Often it is a general lethargy or body...

A new blog was just posted, announcing the very exciting Portable Genomics and CFTechnology.org partnership. The partnership will enable cystic fibrosis patients to better collect, manage and share important biometrics with caregivers, researchers and the pharmaceutical industry. "Portable...

Hi everyone, we posted a new blog earlier this week after speaking with Brooke Freeman, the Community Outreach Officer at Miracle Flights. "Miracle Flights is a 501(c)(3) nonprofit organization that provides free commercial airline tickets to seriously ill, low income patients for care in the...

Hi everyone, We have revamped the Living with CF page! This page contain all our CF news, research, articles, and member blogs. The most recent blogs are at the top, and a new 'At a Glance' view displays ALL the blogs below. There are also handy filters to sort by category, month, and...

Hi everyone, just a quick intro: I'm a woman with CF and I live in South Africa. I have been a member of this site for many years (all the way back to the time of littledebbie who started this thread)! However I had a different username back then and for a long time I was just a lurker lol. But...

Hi everyone, I just posted an a short article in the cysticfibrosis.com blog area, which include some links to research on Manuka honey and its potential benefits on CF. Benefits of interest might be "curbing the activity and growth of bacterial biofilms, improving antibiotic resistance...