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I was mainly writing about how i was stoked this medicene was free cause all i was hearing was the copay or cost is expensive..i wasnt using this as a gripe about my doctor..i was sharin my thoughts to you since you brought up about my doctors care. So really i have nothing more to say this isnt...

Ive mentioned it to them..and i feel if i want to vent regarding this issue i can cause im sure other cfers can relate..thats what this site is for is for guidance and being able to talk to others about there current situations or problems.

They have changed with me i used to love them an it seems lately they dont like to answer questions i have or want to help..i mean if my heart rate is 125-130 after an albuterol treatment i think thts a big sign to change it considering the fact that i already have a high heart rate and now take...

No i talked to the pharmacist and he told me medicare coverd it no problem..and they put it to four times a day which was even more surprising with me usualy medicare has issues but he told me i was good to go they coverd it!..my doctor an clinic have been treating me not as well as in wantin to...

I really think its not doin anything..im Always culturing the mrsa and pseudo bugs..i havent noticed any change an to be honest since i been on it my fev has declined im wandering if its hurting me? I was 37% 2 yrs ago <img src="i/expressions/face-icon-small-sad.gif" border="0"> im now 29%

My clinic is frustrating sometimes..they were telling me they didnt want to even mess with it as insurance is alway an issue with Xoponex and theyd hve to show proof of why i need this and not albuterol..i didn need any of that so again my clinic just was trying to pull the cap over my eyes..i...

You can private message me on here

Im doing advair right after all of these nebs and im getting a double whammy of bronchodialators from the albuterol and advair..i want to try xoponex because i hear it less tachycardia? I feel this would be better for me since i have a jumpy heart and i love advair i went for pfts today and...

Joni whats your fev?..and when do you go to check them to see if youve had any improvement <img src="i/expressions/face-icon-small-smile.gif" border="0"> ...i am not listed on the list but the team is in the picture and i touch base with them every 3months! Im at that point where i want to see...

So should i stop this?

Interesting! Thankyou for the response incromudox...oh i didnt email you back but im starting pulmonary rehab in a week this is the best thing for me!! If i want numbers improving an away from oxygen :-) Im always having pseudomonas issues in the nose and chest..so im wanderig if its even...

Im starting pulmonary rehab to raise my fev and oxygen numbers to where i will not need oxygen i understand this will not happen over night and i understand itll be hard but im very Strong minded and will give everything i have!..my sats just siting is 97/98no oxygen but when i walk i do drop to...

Yea thats what i just did i know how they can be though theyll prolly tell me no but ill srgue that!

No ive never hears of that what is it? An no i dont.what i do is i do my albuterol, hypertonic, pulmozyme then tobi or cayston which ever is my on an off month for them..would xoponex be a better option then?..when i talked to my cf doc she just said if i cant tolerate it then dont do it?..im...

Trying to figure what would be best since im geting a double whamy of two bronchodialators and it makes my heart jumpy :-/ ..they wont call me anything in to go with the flovent if i decided to not do the advair and just do the straight steroid..i read though that xoponex would be better though...

Just curious to know whose done pretty good on this since i started iv actually kept dropping so as for increasing my fev it hasnt done that..just wandering if i should stop taking it..whats everyones experience with it? Has it helped you?..has your fev increased or decreased?

So my doctor said if i do the flovent he wont prescribe anoter inhaler..he said sunce i do the albuterol nebulizer that should be enough?..is this true

What about if since the doctor said one puff teice a day on the flovent if i did that with an albuterol treatment?

Would the symbicort cause tachycardia?

So you just take the serevent right after the flovent..i wander if i should ask my doctor for this <img src="i/expressions/face-icon-small-smile.gif" border="0">