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  1. 2

    Amikacin Shortage

    Sorry for your troubles, we are going through this with Creon.  In our case it sounds like the pharmacy's supplier is the one that has the shortage, and not the manufacturer.  Unfortunately, this is the only mail order pharmacy our insurance lets us use. <div><br></div><div>Maybe you can check...
  2. 2

    Creon shortage?

    Update...I called Abbott (makers of Creon) and they don't have a manufacturing shortage. She thought maybe there was a shortage with our pharmacy's provider.
  3. 2

    Creon shortage?

    Update...I called Abbott (makers of Creon) and they don't have a manufacturing shortage. She thought maybe there was a shortage with our pharmacy's provider.
  4. 2

    Creon shortage?

    Update...I called Abbott (makers of Creon) and they don't have a manufacturing shortage. She thought maybe there was a shortage with our pharmacy's provider. <br />
  5. 2

    Creon shortage?

    Has anyone heard of a national shortage of creon?  I am having problems with the mail order pharmacy not wanting to send out a 3 month supply.  Supposedly because of the shortage they are only allowed to send out 1 month (or less).  Is this true or are they just giving me a...
  6. 2

    Creon shortage?

    Has anyone heard of a national shortage of creon? I am having problems with the mail order pharmacy not wanting to send out a 3 month supply. Supposedly because of the shortage they are only allowed to send out 1 month (or less). Is this true or are they just giving me a line?<br><br>edited to...
  7. 2

    Creon shortage?

    Has anyone heard of a national shortage of creon? I am having problems with the mail order pharmacy not wanting to send out a 3 month supply. Supposedly because of the shortage they are only allowed to send out 1 month (or less). Is this true or are they just giving me a line?<br><br>edited to...
  8. 2

    Pari Nebulizer Cups

    We have received a couple of the Sprints with our Pari Proneb compressors. We used them for pulmozyme, but as far a treatment time I don't think it is much different than the LC Plus. As far as durability, we prefer the LC Plus. The Sprint has a "flip top" on it and the plastic "hinges" would...
  9. 2

    Pari Nebulizer Cups

    We have received a couple of the Sprints with our Pari Proneb compressors. We used them for pulmozyme, but as far a treatment time I don't think it is much different than the LC Plus. As far as durability, we prefer the LC Plus. The Sprint has a "flip top" on it and the plastic "hinges" would...
  10. 2

    Pari Nebulizer Cups

    We have received a couple of the Sprints with our Pari Proneb compressors. We used them for pulmozyme, but as far a treatment time I don't think it is much different than the LC Plus. <br /> <br />As far as durability, we prefer the LC Plus. The Sprint has a "flip top" on it and the plastic...
  11. 2

    Mobilaire compressor question another thing, not making anymore???

    Mobilaire compressor question Lucy, we use the Pari cup.
  12. 2

    Mobilaire compressor question another thing, not making anymore???

    Mobilaire compressor question Lucy, we use the Pari cup.
  13. 2

    Mobilaire compressor question another thing, not making anymore???

    Mobilaire compressor question Lucy, we use the Pari cup.
  14. 2

    Mobilaire compressor question another thing, not making anymore???

    Mobilaire compressor question If you do wash your filter, make sure you only wash the black foam filter. The white filter is supposed to stay dry. As far as the hose popping off. We only occasionally have a problem with that. Normally a new hose will fix it (but I have come across new hoses...
  15. 2

    Mobilaire compressor question another thing, not making anymore???

    Mobilaire compressor question If you do wash your filter, make sure you only wash the black foam filter. The white filter is supposed to stay dry. As far as the hose popping off. We only occasionally have a problem with that. Normally a new hose will fix it (but I have come across new hoses...
  16. 2

    Mobilaire compressor question another thing, not making anymore???

    Mobilaire compressor question If you do wash your filter, make sure you only wash the black foam filter. The white filter is supposed to stay dry. <br /> <br />As far as the hose popping off. We only occasionally have a problem with that. Normally a new hose will fix it (but I have come...
  17. 2

    How were you tested for pancreatic insufficiency?

    My daughter, being diagnosed at age 8 with double Df508 and only 42 lbs, they knew she was PI. She has never had a GI test to determine it. They started her on a low dose of enzymes and she started to gain weight. The dose has been gradually increased over time. I say just try the enzymes...
  18. 2

    How were you tested for pancreatic insufficiency?

    My daughter, being diagnosed at age 8 with double Df508 and only 42 lbs, they knew she was PI. She has never had a GI test to determine it. They started her on a low dose of enzymes and she started to gain weight. The dose has been gradually increased over time. I say just try the enzymes...
  19. 2

    How were you tested for pancreatic insufficiency?

    My daughter, being diagnosed at age 8 with double Df508 and only 42 lbs, they knew she was PI. She has never had a GI test to determine it. They started her on a low dose of enzymes and she started to gain weight. The dose has been gradually increased over time. <br /> <br />I say just try...
  20. 2

    How powered neb compressors?

    Ldude. I'm glad it is working for you. Do you mind telling me where you found one for $250? We've been thinking of getting one for my husband (our insurance only covers this model if you have a CF diagnoses, so he is using the Vios). Thanks!
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