Search results

  1. 2

    Got the boot from BABY CF CLINIC DAY

    My daughter does not use the mask in the room. She does wear it anytime we are out of the room...until we get outside. <br> <br>I remember a post by someone (can't remember who) had a caution about wearing masks. The masks are really only useful if they remind you to keep your hands away from...
  2. 2

    Got the boot from BABY CF CLINIC DAY

    My daughter does not use the mask in the room. She does wear it anytime we are out of the room...until we get outside. <br> <br>I remember a post by someone (can't remember who) had a caution about wearing masks. The masks are really only useful if they remind you to keep your hands away from...
  3. 2

    Got the boot from BABY CF CLINIC DAY

    My daughter does not use the mask in the room. She does wear it anytime we are out of the room...until we get outside. <br> <br>I remember a post by someone (can't remember who) had a caution about wearing masks. The masks are really only useful if they remind you to keep your hands away from...
  4. 2

    Chest physical therapy works: questions any diagnosis other than CF

    It breaks my heart to hear what your dear daughter is going through. I think you have a strong case for CF, but if not CF she definitely has something going on that needs to be diagnosed. CF is not the only diagnoses that benefits from chest PT, so if it helps her, continue doing it while you...
  5. 2

    Chest physical therapy works: questions any diagnosis other than CF

    It breaks my heart to hear what your dear daughter is going through. I think you have a strong case for CF, but if not CF she definitely has something going on that needs to be diagnosed. CF is not the only diagnoses that benefits from chest PT, so if it helps her, continue doing it while you...
  6. 2

    Chest physical therapy works: questions any diagnosis other than CF

    It breaks my heart to hear what your dear daughter is going through. I think you have a strong case for CF, but if not CF she definitely has something going on that needs to be diagnosed. <br /> <br />CF is not the only diagnoses that benefits from chest PT, so if it helps her, continue doing...
  7. 2

    yearly bronchs

    Our center does not do yearly bronchs. My daughter is almost 14 (diagnosed at 8) and has never had a bronch done. I think the only reason they would do one, was if she was not responding as expected to treatment.
  8. 2

    yearly bronchs

    Our center does not do yearly bronchs. My daughter is almost 14 (diagnosed at 8) and has never had a bronch done. I think the only reason they would do one, was if she was not responding as expected to treatment.
  9. 2

    yearly bronchs

    Our center does not do yearly bronchs. My daughter is almost 14 (diagnosed at 8) and has never had a bronch done. I think the only reason they would do one, was if she was not responding as expected to treatment.
  10. 2

    Creon -- Solvay Vitamins & Beverages

    We placed an order around mid April and just received the package this past Thursday. This is the info that I have for them... 1-800-986-8932 CFCareForward 7801 Nieman Road Shawnee, KS 66214-9912 I can't find any web or email info. Maybe they were out of stock of the product you wanted. I...
  11. 2

    Creon -- Solvay Vitamins & Beverages

    We placed an order around mid April and just received the package this past Thursday. This is the info that I have for them... 1-800-986-8932 CFCareForward 7801 Nieman Road Shawnee, KS 66214-9912 I can't find any web or email info. Maybe they were out of stock of the product you wanted. I...
  12. 2

    Creon -- Solvay Vitamins & Beverages

    We placed an order around mid April and just received the package this past Thursday. <br /> <br />This is the info that I have for them... <br />1-800-986-8932 <br /> <br />CFCareForward <br />7801 Nieman Road <br />Shawnee, KS 66214-9912 <br /> <br />I can't find any web or email info. <br...
  13. 2

    Considering a second child...What did you do?

    Harriett, Love your post! These are my sentiments exactly, but you expressed it much more tactfully than I would be able to.
  14. 2

    Considering a second child...What did you do?

    Harriett, Love your post! These are my sentiments exactly, but you expressed it much more tactfully than I would be able to.
  15. 2

    Considering a second child...What did you do?

    Harriett, <br /> <br />Love your post! These are my sentiments exactly, but you expressed it much more tactfully than I would be able to.
  16. 2

    Rogue cars, buses, and other cliches.

    The bus one gets to me also. My daughter is pretty healthy for the most part, so we live a fairly normal life and are not going around depressed over her disease. But sometimes, especially when someone from one of the CF forums passes, I can get a little down for awhile. I think I am entitled...
  17. 2

    Rogue cars, buses, and other cliches.

    The bus one gets to me also. My daughter is pretty healthy for the most part, so we live a fairly normal life and are not going around depressed over her disease. But sometimes, especially when someone from one of the CF forums passes, I can get a little down for awhile. I think I am entitled...
  18. 2

    Rogue cars, buses, and other cliches.

    The bus one gets to me also. My daughter is pretty healthy for the most part, so we live a fairly normal life and are not going around depressed over her disease. But sometimes, especially when someone from one of the CF forums passes, I can get a little down for awhile. I think I am entitled...
  19. 2

    GENERIC PULMOZYME

    Unless it is new...I don't think there is a generic. I'd say fine, send me the generic...and when you find out there is no generic, send me the Pulmozyme!
  20. 2

    GENERIC PULMOZYME

    Unless it is new...I don't think there is a generic. I'd say fine, send me the generic...and when you find out there is no generic, send me the Pulmozyme!
Top