Search results

I have chaperoned many a field trip. My guess is a lot of the time, it was not necessary but it does make the teacher and school feel better. I guess it depends where the field trip is. If it was just a trip to the library, I did not need to go. Even if they were eating; I did not...

Your daughter is very articulate..She did an excellent job. Beautiful...

Huh, I just posted but I don't know where it went. Originally we had the 104; about 6 years ago they upgraded us to the 105...We had to send the 104 back to them...

I must have been posting the same time as you believingjesus! That is very interesting. I love Hill Rom...just the machine is heavy..

My daughter's Vest, we own. We've had a Hill rom for 10 years. Obviously, not the same machine, Hill rom is wonderful for customer service, we've had to replace he machine etc, covered under warrantee. I was just thinking because as my daughter gets older it gets harder to lug that VEST...

Hypothetically, if one got a new job with a different health insurance company would you think they would cover a new VEST? We already have a Hill rom but an Afflovest would be a back-up/travel etc type thing. Thoughts?

My daughter has been taking her enzymes since she was a newborn. At about 2 years old she started swallowing her enzymes whole(not opening them up). One day I noticed she would swallow peanuts whole(yes i know not good) but if she was 2 and could swallow a peanut then she could swallow her...

I saw this story on our evening new recently, too. I love so much about this program..As an RN and mom of a CF girl who goes on isolation when in hospital..We see first hand how they miss school, friends etc. Creativity mixed with science; fabulous!

:) Glad the baby food had no bacteria or glass. Reminds me of many years ago when my daughter with CF was throwing up and super sick. I was trying to discern whether she had a bowel obstruction or just a stomach virus. I called one of the Mom's who is in the "know" about what germs were...

Suggestions for this feeling my daughter complained of. Not wheezy(yet). Cough is not bad. Just feels tight in her upper chest. Some sort of virus going around school. I gave her extra albuterol and vest. Usually this turns into a prednisone need; but any ideas to nip this so it settles...

Thank you for the information. I am going to try to track receipts better, last year was a high expense year(had lots of issues) One hospitalization, among other things. We spent so much $ out of pocket. Likely we will just do the flex spending. Don' t think, we'ld get up to the 12% range...

Anyone itemize their medical expenses and have any sample spread sheets for deductions, not covered by health insurance..Looking to try to organize and work on this; especially since my daughter takes lots of OTC meds everyday we pay out of pocket. TIA I did search on this site and the threads...

HRod, My daughter was screened last month for the trial; but did not qualify(her PFT's were too high)...Have you checked to see if your daughter would qualify, if they are still recruiting?

GI office called. She actually is not constipated; just full of gas. recommendations include. no drinking with straws, no chewing gum, no sugar free stuff, no carbonated drinks. Also, VSL#3 for her to take everyday and she decreased her miralax to once a day(I don''t understand this one)

Also, Have you been on antibiotics? Could you have C.dif? I would call your doctor ASAP...Hope you feel better soon.

I feel like small things can throw her off so cycling hormones may have an effect? I may ask at CF clinic; course it may be anecdotal. It's frustrating...

my daughter recently started menstruating. Her constipation issues have really flared this year. HEr first period was right after a hositalization for GI cleanout. She started complaining again last week she felt bloated and not pooping enough. Tried some stuff at home and called her GI...

First of all I am sorry you are going through this. However, keep in mind if your daughter does have CF the sooner she is diagnosed and treated at a CF center, the better. It is scary so I agree googling information about CF will just drive yourself crazy. Information can be outdated and...

http://www.bostonglobe.com/business/2015/01/20/vertex-patient-will-guest-michelle-obama-state-union-address/b2e31G2ZoogyXw2sw3ky0L/story.html

Above, I PM you.