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Both of my kids love pickles, one with CF and one without. My daughter with CF carries salt packets in her lunch box for school/camp. Even in my and her purse, especially in the summer.

I take it you are not in the United States? My daughter is 12 and STILL can not produce a sputum specimen(especially on demand). They obtain a "cough swab" culture on her. Basically have her cough and the nurse uses a sterile swab and gags her and and typically if there is mucus there and /or...

Her other mutation is Class 1. It's W1282X

My daughter is 12 but only has one copy of delta F508..I've wondering if is would be used in such a case..

Is this for 2 copies of delta F508? What age range?

Absolutely beautiful.. Congratulations.

Thank you!

Has he been tested for a gluten problem or Celiac's?

Maybe this is a silly question but would you buy bottled water for drinking etc? When we travel I use bottled water to sterilize nebs as I don't trust water from hotels etc...

Anyone been to Puerto Rico with CF? Are Pharmacys available for meds(like prednisone or antibiotics?) Any concerns to be aware of? TIA

Not knowing what antibiotic you were on, just keep an eye and make sure you don't have C.dif...Otherwise Hydrate like crazy, can you drink electrolyte replacement like gatorade or salty chicken broth... Are you taking probiotics?

The dry brushing we will try. I had never heard of that before, my son who had braces for a long time said the orthodontist recommended doing that. Our Cf doc has not personally seen issues with teeth but said he has heard of it from some CF patients. He also said mouth breathing can cause...

Gammaw, Thank you. My guess is the closest pediatric dentist that would understand CF would be about 300 miles away( which is fine).. I am just not sure how to go about finding him/her. The yellow dentin is what I think we are seeing. I tried to explain that her saliva is not "normal" Plus...

Thanks. The discoloration is on adult teeth, but she still has baby teeth too. She also needs to see an orthodontist to make she does not need braces. The dentist office mentioned something about doing composite bonding but not sure with if she needs braces? I guess they said her enamel is...

My daughter's teeth are discolored in front especially. Dentist said it was the way the enamel was laid down. Gave her some stuff to rub on her teeth at night to redistribute the enamel...I think it's a combination of things, too many antibiotics, inhaled meds, just having CF in...

How is your little guy doing? Hope things are moving in the right direction. GI issues have settled down here. Had one episode of belly pain and they made up get a belly X-ray a few months ago(was just full of air) We made some diet adjustments.per GI No sugar free stuff. no gum. no...

:) Cute!! At least he's giggling about it. Hope he gets cleaned out soon. Tell him I am adding "thou shall not poop in the bathtub" as the 12th commandant:)

Interesting. So does it come with an attachment to let you plug it in to your car? My daughter is heading to those teenage years...Really trying to find a way to lighten the load and make her life easier.

Suggestions? Is the Pari Trek good? Looks very affordable.....Any other with longer battery power? The trek last one hour.

Who uses it? what do you think? Is it as effective as a hospital grade compressor? Just curious if it makes life easier and is just as effective...Also how is cleaning it?