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hi there, <br /> <br />i was evaluated in the 40s like patti, although by the time i actually had my eval i think my pfts were like 39%. but i also had some unique factors: i was on ivs more than 6 times a year, was hypercompliant with treatments and still losing FEV1, and i had some very...

i call it achromobastard (haha) and somehow that's the bug that continues to pop up even post-tx -- wouldn't you know it. i agree that it has weird side effects and is just a generally annoying bug. after culturing it i was on IVs and steroids pretty much nonstop until my transplant...grrrr...

i call it achromobastard (haha) and somehow that's the bug that continues to pop up even post-tx -- wouldn't you know it. i agree that it has weird side effects and is just a generally annoying bug. after culturing it i was on IVs and steroids pretty much nonstop until my transplant...grrrr...

i call it achromobastard (haha) and somehow that's the bug that continues to pop up even post-tx -- wouldn't you know it. i agree that it has weird side effects and is just a generally annoying bug. after culturing it i was on IVs and steroids pretty much nonstop until my transplant...grrrr...

short answer: depends on the center. at col pres you have to stay close to the center for 3 months post-discharge and you are seen weekly, no exceptions. from 3-6 months, give or take, you are seen every other week. then they move you to once a month and then once every 3 months and finally...

short answer: depends on the center. at col pres you have to stay close to the center for 3 months post-discharge and you are seen weekly, no exceptions. from 3-6 months, give or take, you are seen every other week. then they move you to once a month and then once every 3 months and finally...

short answer: depends on the center. <br /> <br />at col pres you have to stay close to the center for 3 months post-discharge and you are seen weekly, no exceptions. from 3-6 months, give or take, you are seen every other week. then they move you to once a month and then once every 3 months and...

mutations are ranked in "class" from class 5 (i think, it might be 4) to class 1. class 1 is generally considered the worst because it means the ion transfer is completely inhibited. BUT this gets a little sketchy for a couple of reasons: 1) most people think that DF508 is the "most severe"...

mutations are ranked in "class" from class 5 (i think, it might be 4) to class 1. class 1 is generally considered the worst because it means the ion transfer is completely inhibited. BUT this gets a little sketchy for a couple of reasons: 1) most people think that DF508 is the "most severe"...

mutations are ranked in "class" from class 5 (i think, it might be 4) to class 1. class 1 is generally considered the worst because it means the ion transfer is completely inhibited. BUT this gets a little sketchy for a couple of reasons: <br /> <br />1) most people think that DF508 is the "most...

honestly, your best bet is to look for a job with benefits. and yes, i do realize that this is easier said than done and that job opportunities are especially limited right now, but the simple fact of the matter is that people with progressive disability absolutely need crucial accommodations...

honestly, your best bet is to look for a job with benefits. and yes, i do realize that this is easier said than done and that job opportunities are especially limited right now, but the simple fact of the matter is that people with progressive disability absolutely need crucial accommodations...

honestly, your best bet is to look for a job with benefits. and yes, i do realize that this is easier said than done and that job opportunities are especially limited right now, but the simple fact of the matter is that people with progressive disability absolutely need crucial accommodations...

great to hear, jamie! much luck to your friend on her new adventure with healthy lungs!!

great to hear, jamie! much luck to your friend on her new adventure with healthy lungs!!

great to hear, jamie! much luck to your friend on her new adventure with healthy lungs!!

tough question. generally i would agree with the posters above and say that sweat chloride numbers are not predictive. and certainly i would say that it isn't conclusive in any case. each individual with CF is different and there's a LOT that goes into determining outcome. all that said, i will...

tough question. generally i would agree with the posters above and say that sweat chloride numbers are not predictive. and certainly i would say that it isn't conclusive in any case. each individual with CF is different and there's a LOT that goes into determining outcome. all that said, i will...

tough question. generally i would agree with the posters above and say that sweat chloride numbers are not predictive. and certainly i would say that it isn't conclusive in any case. each individual with CF is different and there's a LOT that goes into determining outcome. <br /> <br />all that...

i met with a surgeon too, obviously, since i go to the same center as lex. but the surgeon i met with ended up not being the surgeon who did my surgery -- it was another member of the team. i did go to a q & a session with the guy who ultimately gave me my lungs and i asked a couple of general...