Search results

  1. N

    Non-Tuberculous Mycobacteria

    Here's hoping that the upswing trend continues. And just want to say that it's totally understandable to feel a little shellshocked after this sort of diagnosis. As if we didn't have enough to deal with already, right? Hoping you can take it slow and get some much-needed and deserved rest. Know...
  2. N

    Non-Tuberculous Mycobacteria

    Here's hoping that the upswing trend continues. And just want to say that it's totally understandable to feel a little shellshocked after this sort of diagnosis. As if we didn't have enough to deal with already, right? Hoping you can take it slow and get some much-needed and deserved rest. Know...
  3. N

    Non-Tuberculous Mycobacteria

    Here's hoping that the upswing trend continues. And just want to say that it's totally understandable to feel a little shellshocked after this sort of diagnosis. As if we didn't have enough to deal with already, right? <br /> <br />Hoping you can take it slow and get some much-needed and...
  4. N

    Non-Tuberculous Mycobacteria

    Carrie, Dr. Nick and his crew are renowned for dealing with mycobacterium, so resta assured you are in the best possible place to receive your care. They most likely took you off the zithro b/c treatment for myco often involves zithro, and you can't be taking it 3x a week (per usual in CF...
  5. N

    Non-Tuberculous Mycobacteria

    Carrie, Dr. Nick and his crew are renowned for dealing with mycobacterium, so resta assured you are in the best possible place to receive your care. They most likely took you off the zithro b/c treatment for myco often involves zithro, and you can't be taking it 3x a week (per usual in CF...
  6. N

    Non-Tuberculous Mycobacteria

    Carrie, <br /> <br />Dr. Nick and his crew are renowned for dealing with mycobacterium, so resta assured you are in the best possible place to receive your care. <br /> <br />They most likely took you off the zithro b/c treatment for myco often involves zithro, and you can't be taking it 3x a...
  7. N

    FEV1 calculations

    Hey everyone, Just wondering if anyone knows whether there is a "gold standard" for predicted FEV1 calculation. I did some internet searching (always 100% reliable when it comes to medical stuff <img src="i/expressions/face-icon-small-wink.gif" border="0">) and found about 5,000 different...
  8. N

    FEV1 calculations

    Hey everyone, Just wondering if anyone knows whether there is a "gold standard" for predicted FEV1 calculation. I did some internet searching (always 100% reliable when it comes to medical stuff <img src="i/expressions/face-icon-small-wink.gif" border="0">) and found about 5,000 different...
  9. N

    FEV1 calculations

    Hey everyone, <br /> <br />Just wondering if anyone knows whether there is a "gold standard" for predicted FEV1 calculation. I did some internet searching (always 100% reliable when it comes to medical stuff <img src="i/expressions/face-icon-small-wink.gif" border="0">) and found about 5,000...
  10. N

    diagnosed today *also posted in newly diagnosed

    oh, okay. i actually see dr. dimango b/c when i started with her she was the only doc (dr. keating just joined last year). they're both super wonderful though -- i've seen dr. keating during hospitalizations and like her a lot. and yes, dr. dimango's first name is emily <img...
  11. N

    diagnosed today *also posted in newly diagnosed

    oh, okay. i actually see dr. dimango b/c when i started with her she was the only doc (dr. keating just joined last year). they're both super wonderful though -- i've seen dr. keating during hospitalizations and like her a lot. and yes, dr. dimango's first name is emily <img...
  12. N

    diagnosed today *also posted in newly diagnosed

    oh, okay. i actually see dr. dimango b/c when i started with her she was the only doc (dr. keating just joined last year). they're both super wonderful though -- i've seen dr. keating during hospitalizations and like her a lot. and yes, dr. dimango's first name is emily <img...
  13. N

    diagnosed today *also posted in newly diagnosed

    hi and welcome. i think i answered another one of your threads in the newly diagnosed section once about clinics in NYC, but i'm so happy to hear that you at least have some answers. i was diagnosed as an infant, so can't help you there, but i'm 28 and live in manhattan, so if you need a local...
  14. N

    diagnosed today *also posted in newly diagnosed

    hi and welcome. i think i answered another one of your threads in the newly diagnosed section once about clinics in NYC, but i'm so happy to hear that you at least have some answers. i was diagnosed as an infant, so can't help you there, but i'm 28 and live in manhattan, so if you need a local...
  15. N

    diagnosed today *also posted in newly diagnosed

    hi and welcome. i think i answered another one of your threads in the newly diagnosed section once about clinics in NYC, but i'm so happy to hear that you at least have some answers. i was diagnosed as an infant, so can't help you there, but i'm 28 and live in manhattan, so if you need a local...
  16. N

    Another Transplant!

    Just read that James is already off the vent after getting out of surgery last night! Wow. Lots of love and light for a continued awesome recovery, James!
  17. N

    Another Transplant!

    Just read that James is already off the vent after getting out of surgery last night! Wow. Lots of love and light for a continued awesome recovery, James!
  18. N

    Another Transplant!

    Just read that James is already off the vent after getting out of surgery last night! Wow. Lots of love and light for a continued awesome recovery, James!
  19. N

    multiple transplant centers

    absolutely -- double listing is fairly common. but it should be with a hospital in another UNOS region from your original center, otherwise there's not much point. a number of people at my center are cross-listed at Penn, and i know someone cross-listed at a boston hospital and cleveland clinic...
  20. N

    multiple transplant centers

    absolutely -- double listing is fairly common. but it should be with a hospital in another UNOS region from your original center, otherwise there's not much point. a number of people at my center are cross-listed at Penn, and i know someone cross-listed at a boston hospital and cleveland clinic...
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