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<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>biz</b></i> i really wish they would ahow Eva's story on a local channel. like ABC that EVERYONE gets. i posted on fb about it and when and what channel it comes on and no1 watched it. that makes me really sad...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JoyousMom</b></i> Does anyone have any practical suggestions for working together as a group to put pressure on the CFF to allow Kalydeco trials for more than just a handful of CF'ers? Isn't it time we ALL banded together and made our...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JoyousMom</b></i> Does anyone have any practical suggestions for working together as a group to put pressure on the CFF to allow Kalydeco trials for more than just a handful of CF'ers? Isn't it time we ALL banded together and made our...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Havoc</b></i> My hoses I run a little vinegar through them and hang them outside on a sunny day. Germs don't like UV radiation.</end quote> Oh man so many allergans would get in/around the tube I would be wheezing for the next week...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Havoc</b></i> My hoses I run a little vinegar through them and hang them outside on a sunny day. Germs don't like UV radiation.</end quote> Oh man so many allergans would get in/around the tube I would be wheezing for the next week...

I have truly rarely see people get denied for the Rx - most people that post or that i hear from are getting approved!

I have truly rarely see people get denied for the Rx - most people that post or that i hear from are getting approved!

I clean and sterilize in one step with my tiny dishwasher - saves me so much time! http://www.walmart.com/ip/Sunpentown-Countertop-Dishwasher-Silver/16571639

I clean and sterilize in one step with my tiny dishwasher - saves me so much time! http://www.walmart.com/ip/Sunpentown-Countertop-Dishwasher-Silver/16571639

Yup I get that every time when I lay in certain positions. I think the PICC just hits a certain part of the SVC that causes the heart to palpitate. So I just try now to lay down in those certain positions and usually it's fine. It's a crazy feeling, isn't it?

Yup I get that every time when I lay in certain positions. I think the PICC just hits a certain part of the SVC that causes the heart to palpitate. So I just try now to lay down in those certain positions and usually it's fine. It's a crazy feeling, isn't it?

There really should be a digital version of this documentary. It's such a wonderful, wonderful film. Just incredible. Most people now-a-days don't wait for shows to come on TV - they like their content on-demand. Even if we have to pay for it. The doc is re-playing tomorrow at 10am. Who is in...

There really should be a digital version of this documentary. It's such a wonderful, wonderful film. Just incredible. Most people now-a-days don't wait for shows to come on TV - they like their content on-demand. Even if we have to pay for it. The doc is re-playing tomorrow at 10am. Who is in...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>KingJames</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hannahfstaloch</b></i> I'd love to see this documentary- I'm currently studying in Argentina, though, with no access to the Oprah Winfrey Network. Does...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>KingJames</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hannahfstaloch</b></i> I'd love to see this documentary- I'm currently studying in Argentina, though, with no access to the Oprah Winfrey Network. Does...

There was a subset of DDF508 that showed improvement. The bottom line is that all patients respond differently - and there is NO REASON not to give the medication a try. Even a small improvement is worth it. If insurance will pay for it, why not try? If it doesn't work, then you can stop if...

There was a subset of DDF508 that showed improvement. The bottom line is that all patients respond differently - and there is NO REASON not to give the medication a try. Even a small improvement is worth it. If insurance will pay for it, why not try? If it doesn't work, then you can stop if...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kristen</b></i> But, when I recently asked him about taking it twice a day, he told me the benefit does not outweigh the cost of the drug :/</end quote> He's not paying the cost of the drug!!! Why does he care? I hate when docs do...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kristen</b></i> But, when I recently asked him about taking it twice a day, he told me the benefit does not outweigh the cost of the drug :/</end quote> He's not paying the cost of the drug!!! Why does he care? I hate when docs do...

OK clearly there is a fail when it comes to posting images within threads. Anyway, the PI is located at http://www.gene.com/gene/products/information/opportunistic/pulmozyme/pi.pdf Look at Table 1