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I'm talking about 12 years ago in college...way before green smoothies <img src="i/expressions/face-icon-small-smile.gif" border="0">

I'm talking about 12 years ago in college...way before green smoothies <img src="i/expressions/face-icon-small-smile.gif" border="0">

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Incomudrox</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Havoc</b></i> Yes, people with CF have enhanced metabolism on the...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Incomudrox</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Havoc</b></i> Yes, people with CF have enhanced metabolism on the...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Havoc</b></i> Yes, people with CF have enhanced metabolism on the P450 cytochrome.</end quote> FASCINATING. I have never heard this! Can you reference? Thanks again for this.... I had no idea about the P450 liver pathway.

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Havoc</b></i> Yes, people with CF have enhanced metabolism on the P450 cytochrome.</end quote> FASCINATING. I have never heard this! Can you reference? Thanks again for this.... I had no idea about the P450 liver pathway.

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>LouLou</b></i> Here's a little perspective, when people were discussing why doctors and possibly even Vertex would be discouraging off label use of Kalydeco, I asked my family member why this could possibly be so...wouldn't they want...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>LouLou</b></i> Here's a little perspective, when people were discussing why doctors and possibly even Vertex would be discouraging off label use of Kalydeco, I asked my family member why this could possibly be so...wouldn't they want...

I have had trouble getting numb at the dentist and sometimes getting numb with my PICC (they inject lidocane). I've had 3 surgeries where they have knocked me out (gall bladder, hernia and appendix) and I don't recall any issues. Although I always wake up frantically asking if I'm alive. Ha.

I have had trouble getting numb at the dentist and sometimes getting numb with my PICC (they inject lidocane). I've had 3 surgeries where they have knocked me out (gall bladder, hernia and appendix) and I don't recall any issues. Although I always wake up frantically asking if I'm alive. Ha.

Letter SENT! It was very easy. I have to say, I missed this thread because it's tacked at the top of this forum. I rarely look at the top because it's usually the same threads for months upon months. Maybe we should consider letting this thread float freely to attract more eyeballs?

Letter SENT! It was very easy. I have to say, I missed this thread because it's tacked at the top of this forum. I rarely look at the top because it's usually the same threads for months upon months. Maybe we should consider letting this thread float freely to attract more eyeballs?

Mandy you are awesome, as always. Thanks for keeping us informed and up to date! HUGS

Mandy you are awesome, as always. Thanks for keeping us informed and up to date! HUGS

You never know unless you try. I never understand everyone saying "we don't think insurance won't cover it." OK. But have you TRIED? TRY! I battled the insurance because, well, I told my doc I would. He said my insurance wouldn't cover it. But they did.....because i TRIED!

Raise your hand if you have access to Kalydeco and you DON"T have G551D. US only? Yup, thought so. When Kaly gets FDA approved in Europe, Canada, Australia and you don't have G551D, will you have access? To me, this is the alpha and the omega to the debate about health insurance that isn't...

I think we have a thread on this already

I think we have a thread on this already

It's true! These docs don't have CF - no matter how empathetic they are, they will NEVER fully know what it's like to have this disease. So they don't have the same sense of urgency that we do. ESPECIALLY if you are near Tx. Does their life change dramatically when you get to end stage and...

I wish I had more information from you. But, if I were you, I would go to any and every doctor (CF or otherwise) to get an Rx of Kalydeco. You don't have the time to wait for papers or for doctors to contemplate their navels.