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    neb machine

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>scanboyd</b></i> I have 3 Pulmo-Aide compressors, one in the office and one in the Tv room and one in the box never opened. The ones that I am useing are over 10 yrs. old, waiting for them to die but they keep runing and runing. My...
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    Anyone on Kalydeco seen changes in LFT's?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>knobby</b></i> From the prescription information (http://pi.lilly.com/us/cymbalta-pi.pdf), it looks like Kalydeco had a very similar LFT profile when compared to the those on the placebo. Based on the info below, it would appear the...
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    Anyone on Kalydeco seen changes in LFT's?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Havoc</b></i> In a relatively short term study, yes it would seem to infer that. Unfortunately, people will be on Kalydeco for the rest of their lives (given that something better doesn't come along) and we have no data on long term...
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    TOBI and Hormones

    TOBI has such a tiny, tiny concentration in your blood (serum = blood) - look below from the TOBI PI: it's almost nothing Have you been on tobramycin IV's? Do you get the same side effects? TOBI PI: Sputum Concentrations: Ten minutes after inhalation of the first 300-mg dose of TOBI the...
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    neb machine

    I gave up on my PARI compressors and upgraded to an Invacare Mobileaire for the exact reasons you are posting. It's a bigger device and a bit louder, but man does it work well. You can adjust the PSI, and it doesn't give me the same problems that the PARI compressor did. I've had the...
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    I need your input please

    when did you leave USC? where are you going now?
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    What do you do to limit bouts of sinusitis?

    Lots of CFers have untreated allergies. Intranasal steroids can be especially helpful: http://noexcusesnoexcuses.blogspot.com/2008/08/allergies.html http://noexcusesnoexcuses.blogspot.com/2008/08/differences-between-nose-sprays-per-my.html
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    PFT Goal's thread. Trying to achieve 60% FEV1.

    Super happy for you. Well done! :)
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    770+809 clarification

    This Forbes article should help clear up Vertex's "data bungle" <a href="http://www.forbes.com/sites/matthewherper/2012/06/01/clearing-up-vertexs-data-bungle/?partner=yahootix">http://www.forbes.com/sites/matthewherper/2012/06/01/clearing-up-vertexs-data-bungle/?partner=yahootix</a> "<span>In...
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    Menstrual Cycle

    Yes you did. You started that thread with the exact same question. And in THAT thread, others accused you of asking the same question many other times. OK, enough with this. I call troll. Can the mods please do something about this?
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    Menstrual Cycle

    You just posted this exact same question a few weeks ago????? http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=617048&highlight_key=y
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    Normal Liver Enzymes after 10 weeks on Kaly

    Just wanted to report that I have been on Kaly for 10 weeks now and I just had my liver enzymes checked. They were perfectly normal. I will continue to check every 3 months and report back. So greatful to live in a non socialized medicine country where not only do I have access to Kaly quickly...
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    Obama & Healthcare

    But Bill, at least you can have Kalydeco if you wish. It's available here, and no other country on the planet. And you can get it off label. It's expensive for some, but if you can pay, it's available. Any other country, even if you can pay, it's not available. Still eager to see if anyone...
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    My aquagenic wrinkling factor test results.

    Edited to add: when I was in the hospital in January, prior to Kaly, I was doing lots of green smoothies - and if you look at my blog, I did also have less wrinkling with the green smoothies and no other changes. I have the amazing, incredible, God-send of a friend Mandy, aka dramamama, to...
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    My aquagenic wrinkling factor test results.

    I totally agree with you, Jonathan. My problem is, I'm a weenie to try supplements. If I needed a Hail Mary because my health was really terrible, I'd go all the way with supplements. Since my health is relatively amazing, I am going down the road of more regulated, large, double-blind...
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    My aquagenic wrinkling factor test results.

    I'm the exact same way. When I take Kaly with high fat meals for a few days and drink green smoothies, my wrinkling sometimes doesn't happen for 10+ minutes You are a SMART MAN! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Love that you posted this.
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    What allergy medicenes do you take that helps?

    Hmmmm...... Claritin D 24h can cause the rapid heart rate. Are you SURE it wasn't claritin D? A regular Claritin without the D has no documentation of having rapid heart rates. Does the box look like this? http://www.claritin.com/claritin/en/products/ClaritinD24Hour.jspa
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    What allergy medicenes do you take that helps?

    Hmmmm...... Claritin D 24h can cause the rapid heart rate. Are you SURE it wasn't claritin D? A regular Claritin without the D has no documentation of having rapid heart rates. Does the box look like this? http://www.claritin.com/claritin/en/products/ClaritinD24Hour.jspa
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    What allergy medicenes do you take that helps?

    did you take claritin with pseudoephedrine in it? aka Claritin D?
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