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<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Asexyblond23</b></i> Yes I was actually not on anything for about a week when this happened</end quote> My gut would be, then, that you have some mucus stuck. If you haven't done treatments, then your hard, sticky mucus is collecting...

I have had these episodes since i was 7, that I can remember..... that makes it 23 years. If I ate regularly I found I would be OK. Now with CFRD things are different, but it's clear that pancreas endocrine impairment is widespread in CFers LONG before CFRD is diagnosed.

Coughing blood is the most scary part of CF. So sorry you are going through this. Have you stopped all of your treatments? Vest, pulmozyme, exercise, etc?

And once again, just because it turns on doesn't mean it's giving you the proper dose of medication. Just because the neb cup is empty, doesn't mean your lungs received the medication. Blows my mind how many people may not be getting the medication they think they are .... what a waste of...

the link that was posted by the OP has the %

Lisa, from drug discovery to market, drugs usually take 10-15 years. This is great news for these patients! Fingers crossed!

Pretty sure that the CF Foundation could get in a bunch of trouble from the FDA for promoting off label use of a drug. Although they are not a drug manufacturer, they are funding a great deal of research for these manufacturers. So similar to a drug company getting fined for promoting a drug off...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kristen</b></i> <span></u><span>Do not boil in regular tap water, as it may damage the Aerosol Head.</u> </OL></end quote> <span><span>Absolutely - I just keep mine soaking in alcohol when not used, whether at home or on vacation. It...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>littlemisssilly</b></i> For those of you that use rubbing alcohol, do you then let the rubbing alcohol just dry on your nebs? I always assumed the alcohol would need to be rinsed off (like those soaking solutions that supposedly...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous345</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i> I gave up on my PARI compressors and upgraded to an Invacare Mobileaire for the exact reasons you are posting. It's a bigger...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>scanboyd</b></i> As far as missing medicaion, if theneb cup is empty, you get your medication. </end quote> that's actually not true. all medication that is nebulized is in a bell curve - with non respirable droplets on either end...

I still don't understand why knobby posted links to Cymbalta

You're right. So in order to get this to work, you have to cross your fingers, do a rain dance, yump up and down, and .... We should be able to have this work in the quick reply area as well as if we type the link. Come on! Thanks for your help

Nope. Didn't work. I didn't use the quick reply above.... I used the WYSIWYG

www.walmart.com

oooooh ok. Tobramycin is the name of the medical that is administered via IV. TOBI only refers to nebbed tobramycin - never to IV tobramycin. now everything makes sense. TOBI is not messing with your hormones if tobramycin doesn't give you the same side effects. they're the exact same...

Run it under hot water

ENNNNNNNNNNNNNIIIIIIIIOOOOOOOOOOOOO. Why do these URL's not hyperlink? We've been asking about this for months now.........

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ryry11</b></i> saveferris- I have been on TOBI, but only for 2 weeks total. I didn't notice any of those side effects, but I was also pretty sick, and I'm not sure I would have noticed the breakouts or even the increased emotion. It...

1. I use a deep fryer on vacation to boil (Jeana - who has a pot and a range in a hotel room?!) my nebs <a href="%20http:/www.walmart.com/ip/Magic-Chef-12-Cup-Deep-Fryer/17655882" target="_blank">http://www.walmart.com/ip/Magic-Chef-12-Cup-Deep-Fryer/17655882</a> OR 2. I bring/purchase lots of...