Search results

Hi Mom, So sorry to hear about your daughter. I can imagine how stressful it is for the two of you. :( My situation was similar, I fell into the high 60s/70 baseline in my late-teens/early twenties. Not sure why, I always figured it was a combo of things. I was juggling college, a...

Hi and welcome June! Congratulations! Sorry to hear of your little ones diagnosis, but you have come to a great place for advice and support. I'm the CFer in our family, so I'm afraid I can't offer you much in terms of the advice you are looking for, but luckily a few moms have already given...

Muscle, you're very welcome! I also hope you get a response! KG, How did your phone interview (or whatever it ended up being) go? Autumn

Wow, that is amazing news!! What a wonderful company indeed! Thanks so much for the update. I am so happy to hear that you are getting that much needed roof. I'll send a thank you! Autumn

Thanks Bill! Just hoping they don't somehow try to make an issue of it. I can't see how, but you never know, at this point in my life nothing would surprise me. HA! Autumn

Hi everyone! As most of you have prob read by now, we recently moved to Texas. I am just now going about getting my Texas driver's license. I printed out the application and started filling it out, and came across a series of medical questions. I was able to answer no to all the usual ones...

Happy Happy Birthday friend!!

Hi Kg, So sorry to hear that you are under a review. :( My heart honestly sank when I got that letter in the mail. What is your appointment on the 19th for? With my review I just had to fill out a ton of paperwork (almost the same as the initial application), and have my med records for the...

Yes, I did hear back from her. Sorry for the delay in getting back to you! I know how nervous/stressed you are! She said to try her again at services@dafcf.org, she doesn't recall getting any recent inquiries, so maybe something went wrong. She did say however, that funding is a huge issue...

Hi and welcome Momma!! I'm sorry, I don't have any knowledge about s1235r, so hopefully others will. However, I wanted to give you a link to another thread here where it is discussed.. http://forum.cysticfibrosis.com/threads/21161-S1235R?highlight=s1235r Hope that helps and take care...

Oh yes, Dank has S945L! And there are a couple others that jump on this site from time to time! :) I don't mind answering your questions at all! I was born and raised in Nebraska, but recently moved to Texas. Yes, i've always done treatments. Currently for nebs I do albuterol, Hyper-Sal...

Totally AMAZEBALLS!! So happy for you! :) Thank goodness for the NACFC! Whoo hoo! I hope you just keep feeling better and better. :) I recently moved and *sort of* broached the subject with my new doc in September. I didn't want to be too pushy since it was his first time meeting me. At...

Hi Heather! I have DF508/S945L! S945L is a more rare mutation, hence why they didn't find it until they did the expanded genetic testing. I tested borderline my first sweat test as well. However, it was done at our local small town family practice. When we got to the accredited CF clinic and...

Hi Rigsby! I also have private insurance (Blue Cross) AND Medicare parts A & B. There are specific criteria in deciding which insurance is primary. I know that if your private insurance is through an employer (either of your own, or of a spouse or parent), and the company employees more than...

You are welcome, so glad I could help!

I saw that today too! So amazing! :) It seems like the FDA is has been good to Vertex and vice verse, so I'm hoping it goes quickly and smoothly. I don't have double delta, but I'm so excited for those that do! :) It's just an exciting time in general, and I'm hoping it won't be terribly...

Me again, just reread your post and want to answer #5 a little better regarding copays and deductible. You will not pay a copay when you go for CF (or other) appointments. They just bill Medicare and you pay your 20% after. The Part B deductible is super low, some random amount just under...

Hi Robin! I think I can help a little.... I live in Texas (recently moved here though) and I have Medicare A & B. I also have private insurance through my husbands employer, so my Medicare is secondary. I did have Medicare as my primary for a short while at one point though. 1. So, just...

Oh my goodness LL, this honestly made me laugh out loud. So true!!! Meech, I'm really glad you finally have a diagnosis. As many have said, it's good in the respect that now you will finally get the treatment you need and should hopefully feel better!! Also, as Love mentioned, it is awesome...

I definitely second Liza's opinion. I've gotta be honest, I'm a little confused as to why they would be stopping all this now, given the fact she currently has pneumonia. Seems really counter-intuitive to me. Even if she does not have CF, a child with respiratory problems and pneumonia...