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Thanks so much Juliet! I'm so glad to know you've had a good experience!! Switching centers is SO scary. So I'm really glad to hear that a few people have had good experiences with Dr. Fullmer and the hospital! Thanks again for you welcome and kind words. Autumn

Hey Rebjane! So one of my easiest go-tos is also a family favorite that everyone loves (or at least will eat. lol!). It's French's Onion Chicken. I just coat the chicken breast, and slap them in the oven with some diced potatoes, and wallah!! Also, lately I pair almost all of our meals with...

Oh no, I'm sorry about your experience with Celiacs and it going undiagnosed. How frustrating. On the other hand, I'm glad to hear you had a mostly positive experience with the clinic/hospital/ and SA and Austin as a whole. Thanks so much for your input and encouraging words, and for your...

Thanks Liza! We're gonna need it. ;) Yep, I go to UNMC. Was a pediatric hold-out til I was 29 because I didn't want to leave the peds docs. They finally gave me the boot, so I've been seeing Dr. Murphy for about 4 years now. I've always been really happy with the care I receive, so leaving...

Oh, and I should have clarified in my first post that I had already checked cff.org for the stats and etc. Was more looking for personal experiences. But I do love that the CFF has all that info. there!

Hey everyone! Thanks again for each and every response! Soooo.....the verdict is in, and we are going to be TEXANS! :) They offered him the position last week and we made the tough decision to pack our bags and leave good ol' Nebraska. It will be an adventure for sure. I am a little...

Hello again Chris! You're very welcome. I have pretty reactive airways and can't tolerate Tobi or colistin. I didn't have a problem with Bronchitol in that respect, so let's keep our fingers crossed that it's not super irritating. The irritation I experienced was more like a tickly/choking...

Hi Chris! I'm assuming you are not in the US? You're probably not getting responses because Bronchitol isn't approved here yet. :( I did the clinical trial and I liked it. My lung function stayed the same, well, actually it went up a percent or two while I was on it. It could have just been...

Thanks so much everyone!! I had clinic today and talked to my doctor about the possible move. He said San Antonio's clinic is not closing, but they are "restructuring" and that for a while they had no director. But apparently they are in the process of getting everything together. Still...

Hey everyone, Sooooo, my husband has a job interview next week in San Antonio. He has already had 2 phone/skype interviews and now is one of 3 finalists for the position. It would be a great opportunity, but the thought of moving scares the heck out of me. We're in Nebraska and I've always...

Hi Rhonda, Ugh, insurance companies. No, acetylcysteine is the generic for the brand name drug Mucomyst. I have been on acetylcysteine as long as I can remember. Nmw is correct, they are both mucolytics, but not the same drug at all and work differently. I'd give your insurance company a...

You're sure welcome. I voted again last night. I'll try to remember to everyday! What place is he in now? Autumn 33 w/CF

Voted! Good luck, Oscar is a beautiful dog. Your son and Oscar are both so lucky to have each other! ;)

I second that! Thanks Hammerpocket, that advice was golden! I've already used that tip twice since reading it yesterday. ;) Twisting the cap has popped the tab right up on a couple that weren't up at all! Autumn 33 w/CF

Hi Kg, I have cut myself on the Cayston vials a few times. They are painful little buggers. Ugh. I know that they are aware of it because I'm on research panel that does CF related surveys, and have taken several surveys regarding Cayston. Many of the questions are directly about the...

I don't think she's around here much anymore, but hopefully she stops by soon and gets your message!

Hi there, I had mine placed in the OR by a thoracic surgeon. My CF doc preferred a surgeon over IR, so it was easy for me to make a decision. It was subclavian, as opposed to jugular. I could easily feel the catheter, but it wasn't visible and tunneled under my clavicle. I've never seen or...

Hi Fly, Here's Amy's blog: http://noexcusesnoexcuses.blogspot.com/ Take Care! Autumn 33 w/CF

Congrats to you! So exciting! I am absolutely shocked that they have told you to go with an elective c-section. UGH. As everyone else has stated, I would look for a second opinion. I know it's not ideal to have to look elsewhere at this point, but I think it would be worth it. My worst...

Hi there! I am currently still breastfeeding my (just turned) 2 year old. I also had a problem with weight loss after my daughter was born. I basically just tried to constantly eat, even if I wasn't hungry, and added one or two supplemental shakes a day. This kept me from continuing to lose...