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    Cystic Fibrosis, Relationships and Wanting Children

    This. I agree with your post all around, but you summed that up perfectly. That's pretty much what I was trying to say in previous, long rambling post, but you summed it up in one sentence.
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    Cystic Fibrosis, Relationships and Wanting Children

    You're welcome Lance! So glad to hear that you are exploring options together. Doesn't hurt to be more informed and make decisions from there. The scholarship is called INCIID for the Heart. Here is the link: http://www.inciid.org/ivf-scholarship-program I think there are hoops to jump...
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    Dr. Francis Collin interviewed by LightnLife: Pharmacogenetics (He Sings)

    Thanks for posting this Jeanne. I think of Lauren all the time. Especially when I see a thread here where I know she would have had all the right things to say. The other day I had a question about air purifiers and wished so badly I had her to go to for advice. :) I also think about her...
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    The Malaysia Plane Crash hits home at CysticFibrosis.com

    So very sorry to hear of your loss Chris. My thoughts are with you and all of those personally affected by this sickening event. What a sad day for the world indeed. So many bright minds, hard telling what they were on their way to accomplishing. Jeanne, thanks for the introduction and...
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    Cystic Fibrosis, Relationships and Wanting Children

    Hi Lance, Don't need to apologize for the length of you post! :) You call that long?? LOL. So, obviously, all I can do is guess, but my theory is that your thought/feelings about having children are a combination of 1.) thinking your entire life children were not and option and basically...
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    Inhaling imipenem

    Yep, that's who I was talking about too. He's inhaling Meropenum..
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    Inhaling imipenem

    Hi Graham, sorry to hear that you are having problems! I feel like I can't be of much help, but I wanted to mention that I do know of one person that has recently started inhaled Meropenum, and has had an increase in FEV1 and feels some general overall improvement. I know that Mero and...
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    Breastfeeding Tobi or Cayston?

    Congrats on the baby!! How exciting!! I hope everything is going well. ;) I second everything mamaScarlett said. I was also told that Tobi is so poorly absorbed orally that it poses no risk in breastmilk. I did not use Tobramycin either nebbed or IV during pregnancy, but I have used it...
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    May Vertex Update- VX661 adds further benefit to those on Kalydeco with G551D/F508del

    Thanks so much for these updates Gen! I appreciate them so much! Question for ya.. what's the word on the street about the Denver n of 1 trial? I heard that there is not going to be a phase 3 because of lack of participants? Yikes, that's sad. When I went to Denver to be screened last...
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    Jesse <3

    So very sorry to hear of Jesse's passing, Jane. My thoughts are with you and your family. Autumn 33 w/CF
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    Jesse: Jane's son

    When I read the title of the post my stomach dropped, and I so hoped it wasn't this. I'm so sorry to hear that Jesse has passed. My thoughts and prayers will be with Jane and family. Autumn 33 w.CF
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    Living in the "big city"..

    Thanks a bunch guys! I appreciate the input. Really hoping it doesn't have an impact, would stink to have to move back a short time later. Only time will tell I guess. ;) Thanks for the suggestion and and kind words Bill!!! I have an air purifier we run in our living now, but will have to...
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    Living in the "big city"..

    Hey everyone, You may have read in an older thread that we are moving to San Antonio Texas for my husband's job. It's a done deal, he's already there working, and looking for a house. I was just reading on the American Lung Association's website about air quality. It ranks cities in 3 areas...
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    Port Difficulty

    AMen Jaimers, my thoughts exactly..
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    Port Difficulty

    Hey Hannah, Sorry you are having problems and having to endure so many pokes. Bummer, especially considering you have a port. :( I kinda think it's crap that you're inpatient and no one is looking into it. I guess for them it's just easier to poke you. You have a port for a reason, most...
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    Good News!

    Wow! That is awesome news! Congratulations on both fronts, how exciting! Autumn 33 w/cf
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    Appealing an SSI denial

    PS. If you choose to go it alone, I could scan and send you the letter Julie sent with mine and you could use the format.
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    Appealing an SSI denial

    Hi Jane, Sorry you guys are dealing with this, it's beyond stressful! I was approved on my initial application for SSDI, however, last year on a review I was determined to "no longer be disabled". That's right, I got better. HA! So, I had to appeal. Anyway, for both my initial...
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    Texas centers

    Yes, I've heard such wonderful things about Baylor, and was reading that other thread thinking, "I wish SA was a TINY bit closer to Houston". My doc here went to school in Houston and he said the drive from SA into Houston is absolutely terrible, and by no means do I need to drive to Houston to...
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