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  1. H

    Bigger Vest

    The front should meet and/or overlap a bit under the buckles. Adjust the shoulders so the armhole comes up to just a little below the armpit and the length should approach or reach the hip. Before it inflates you should be able to fit your fist underneath; after it inflates you should still be...
  2. H

    Bigger Vest

    The front should meet and/or overlap a bit under the buckles. Adjust the shoulders so the armhole comes up to just a little below the armpit and the length should approach or reach the hip. Before it inflates you should be able to fit your fist underneath; after it inflates you should still be...
  3. H

    Mothers of CF children

    Nope! The only pregnancy I craved salty things was my middle child, the one kid we know without a doubt does NOT have CF. <img src="i/expressions/face-icon-small-smile.gif" border="0"> With Emily I craved loaded baked potatoes and MEAT. I could have eaten at a steak house every night, lol.
  4. H

    Mothers of CF children

    Nope! The only pregnancy I craved salty things was my middle child, the one kid we know without a doubt does NOT have CF. <img src="i/expressions/face-icon-small-smile.gif" border="0"> With Emily I craved loaded baked potatoes and MEAT. I could have eaten at a steak house every night, lol.
  5. H

    Coughing more on Prednisone?

    The only time cough is diminished with prednisone in our experience has been when it's rx'ed for something like croup, when the cough is NOT caused by lower resp infection but rather simply spasm in the upper airway and relaxing the airways/opening them up is all that's needed to relieve the cough.
  6. H

    Coughing more on Prednisone?

    The only time cough is diminished with prednisone in our experience has been when it's rx'ed for something like croup, when the cough is NOT caused by lower resp infection but rather simply spasm in the upper airway and relaxing the airways/opening them up is all that's needed to relieve the cough.
  7. H

    Coughing more on Prednisone?

    Emily and Shawn have needed prednisone for illness and yes, cough increases once it starts working. There is generally junk trapped down there that needs to get out once the inflammation is reduced. Emily almost always goes through a period where she sounds worse before she starts getting...
  8. H

    Coughing more on Prednisone?

    Emily and Shawn have needed prednisone for illness and yes, cough increases once it starts working. There is generally junk trapped down there that needs to get out once the inflammation is reduced. Emily almost always goes through a period where she sounds worse before she starts getting...
  9. H

    ****Need Advice****

    My 14yr old son uses Symbicort and it seems to help him, at least when he's not really sick (all bets are off then.) We saw an increase in his pft's, esp small airways, when he started it, moreso than with a prior controller med. My daughter tried it with less success- but she does not do well...
  10. H

    ****Need Advice****

    My 14yr old son uses Symbicort and it seems to help him, at least when he's not really sick (all bets are off then.) We saw an increase in his pft's, esp small airways, when he started it, moreso than with a prior controller med. My daughter tried it with less success- but she does not do well...
  11. H

    HTS prior to Pulmozyme

    According to the full prescribing information, at the very least it would not be a good idea to use a neb cup previously used for another medication when starting Pulmozyme. http://www.gene.com/gene/products/information/opportunistic/pulmozyme/pi.pdf ...note the bottom of page 5, where it...
  12. H

    HTS prior to Pulmozyme

    According to the full prescribing information, at the very least it would not be a good idea to use a neb cup previously used for another medication when starting Pulmozyme. http://www.gene.com/gene/products/information/opportunistic/pulmozyme/pi.pdf ...note the bottom of page 5, where it...
  13. H

    HTS prior to Pulmozyme

    According to the full prescribing information, at the very least it would not be a good idea to use a neb cup previously used for another medication when starting Pulmozyme. http://www.gene.com/gene/products/information/opportunistic/pulmozyme/pi.pdf ...note the bottom of page 5, where it...
  14. H

    HTS prior to Pulmozyme

    We do the hypersal in the morning as it's a particularly good tx for her to break up any junk she's accumulated overnight and again during the day if she's doing more than 2tx/day at the time. Her dr likes pulmozyme at night as it's longer-acting. We don't do the two during the same session, but...
  15. H

    HTS prior to Pulmozyme

    We do the hypersal in the morning as it's a particularly good tx for her to break up any junk she's accumulated overnight and again during the day if she's doing more than 2tx/day at the time. Her dr likes pulmozyme at night as it's longer-acting. We don't do the two during the same session, but...
  16. H

    HTS prior to Pulmozyme

    We do the hypersal in the morning as it's a particularly good tx for her to break up any junk she's accumulated overnight and again during the day if she's doing more than 2tx/day at the time. Her dr likes pulmozyme at night as it's longer-acting. We don't do the two during the same session, but...
  17. H

    Just curious

    Here is an article referencing the results of the stage II trials, and it reports that the drug was well tolerated- 96% of those who enrolled completed the trial and here is a quote: <br><div class="FTQUOTE"><begin quote>Safety results from the study showed that ataluren was generally well...
  18. H

    Just curious

    Here is an article referencing the results of the stage II trials, and it reports that the drug was well tolerated- 96% of those who enrolled completed the trial and here is a quote: <br><div class="FTQUOTE"><begin quote>Safety results from the study showed that ataluren was generally well...
  19. H

    Just curious

    Here is an article referencing the results of the stage II trials, and it reports that the drug was well tolerated- 96% of those who enrolled completed the trial and here is a quote: <br><div class="FTQUOTE"><begin quote>Safety results from the study showed that ataluren was generally well...
  20. H

    Prevent mistakes and misdiagnoses

    Very well said, Jonathan. Thank you.
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