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Hmmm. Sorry that posted as one huge smush. It was paragraphs when I typed it.

Hmmm. Sorry that posted as one huge smush. It was paragraphs when I typed it.

I know I kind of disappeared for a few months and I want to update everyone on how things have been going here. I have missed everyone and hope to be back here again. Emily got very sick the week of that awful end of October snowstorm. We weren't able to take care of her as we should and I know...

I know I kind of disappeared for a few months and I want to update everyone on how things have been going here. I have missed everyone and hope to be back here again. Emily got very sick the week of that awful end of October snowstorm. We weren't able to take care of her as we should and I know...

I'm so sorry that you've seen such rapid progression with Micah's cf over such a short period of time. How heartbreaking for you and your wife and it much be very frightening to him to be so sick and have a limited understanding of it all. <img src="i/expressions/face-icon-small-sad.gif"...

I'm so sorry that you've seen such rapid progression with Micah's cf over such a short period of time. How heartbreaking for you and your wife and it much be very frightening to him to be so sick and have a limited understanding of it all. <img src="i/expressions/face-icon-small-sad.gif"...

That is an interesting article Amy. I wonder if there is anything dating past this phase of the trials showing enough benefits to anyone with df508 taking 770 alone. They found in later phases of the trial process that a greater level of cftr function was needed to bring about improvement in...

That is an interesting article Amy. I wonder if there is anything dating past this phase of the trials showing enough benefits to anyone with df508 taking 770 alone. They found in later phases of the trial process that a greater level of cftr function was needed to bring about improvement in...

I had severe morning (all day!) sickness with my oldest and lost 16 pounds the first trimester and gained weight pretty slowly after. I lost some weight with the other two as well (about 10 pounds) and as with the first, did not gain a whole lot, so never delivered at any more than about 12-15...

I had severe morning (all day!) sickness with my oldest and lost 16 pounds the first trimester and gained weight pretty slowly after. I lost some weight with the other two as well (about 10 pounds) and as with the first, did not gain a whole lot, so never delivered at any more than about 12-15...

This is a challenge in our home too! I have three children- the oldest gets on the hs bus at 6:10am, the middle kid at 7:20 and Emily is now in her last year of elementary school with the latest bus at 8:25. I drive her if we are having a bad morning and we need the extra 20min. I dread her...

This is a challenge in our home too! I have three children- the oldest gets on the hs bus at 6:10am, the middle kid at 7:20 and Emily is now in her last year of elementary school with the latest bus at 8:25. I drive her if we are having a bad morning and we need the extra 20min. I dread her...

Ohhh I could write much of your post right now! I have been beyond overwhelmed myself with one kid who has been sick for six weeks straight and another who has been sick nearly continually since the last week of October. <img src="i/expressions/face-icon-small-sad.gif" border="0"> It is NOT...

Ohhh I could write much of your post right now! I have been beyond overwhelmed myself with one kid who has been sick for six weeks straight and another who has been sick nearly continually since the last week of October. <img src="i/expressions/face-icon-small-sad.gif" border="0"> It is NOT...

Amy: Have you watched the plenary sessions from the CF conferences (available to watch on the cff website)? There were slides on the presentation discussing the drug trials indicating positive results with other gating mutations. I cannot remember clear details right now, but if you haven't...

Amy: Have you watched the plenary sessions from the CF conferences (available to watch on the cff website)? There were slides on the presentation discussing the drug trials indicating positive results with other gating mutations. I cannot remember clear details right now, but if you haven't...

Sometimes a brief burst is all that's needed. Usually though, as she is on inhaled steroids all the time, Emily only needs steroids with severe exacerbations- and in those cases she needs a high dose (generally 30mg twice a day at age 10/60-odd lbs) for about a week followed by a gradual taper...

Sometimes a brief burst is all that's needed. Usually though, as she is on inhaled steroids all the time, Emily only needs steroids with severe exacerbations- and in those cases she needs a high dose (generally 30mg twice a day at age 10/60-odd lbs) for about a week followed by a gradual taper...

Was this a fasting glucose? If so, then yes, this is very concerning. If he'd eaten- this may be of limited value from an interpretive standpoint. At the least, he needs a 2hr oral glucose tolerance test. I hope you hear back very soon!

Was this a fasting glucose? If so, then yes, this is very concerning. If he'd eaten- this may be of limited value from an interpretive standpoint. At the least, he needs a 2hr oral glucose tolerance test. I hope you hear back very soon!