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The Pari cups are a good choice for pretty much any nebulized medication- Sprint were developed after the Pari LC's but work the same way, slightly faster. The regular sidestream cup is approved for pulmozyme when you have a 50psi compressor, so the sprint cups or the breath-enhanced Sidestream...

The Pari cups are a good choice for pretty much any nebulized medication- Sprint were developed after the Pari LC's but work the same way, slightly faster. The regular sidestream cup is approved for pulmozyme when you have a 50psi compressor, so the sprint cups or the breath-enhanced Sidestream...

Re. the autism and transplant... it may not even come down to being their decision. Many centers will disqualify someone from eligibility for transplant if they have other co-existing conditions like this. As wrong as it sounds, there was a recent case where CHOP denied a young girl from being...

Re. the autism and transplant... it may not even come down to being their decision. Many centers will disqualify someone from eligibility for transplant if they have other co-existing conditions like this. As wrong as it sounds, there was a recent case where CHOP denied a young girl from being...

When Shawn had his sinus scope/exam last month, it did show considerable inflammation in the area immediately surrounding his nose (I can't remember the technical anatomical term) and one side was quite obstructed- he can barely breathe out of one nostril. However, his sinuses themselves are...

When Shawn had his sinus scope/exam last month, it did show considerable inflammation in the area immediately surrounding his nose (I can't remember the technical anatomical term) and one side was quite obstructed- he can barely breathe out of one nostril. However, his sinuses themselves are...

Emily's fev1 went up 15% when she started Pulmozyme and we saw no negative effects whatsoever. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Emily's fev1 went up 15% when she started Pulmozyme and we saw no negative effects whatsoever. <img src="i/expressions/face-icon-small-smile.gif" border="0">

You're right... Searching when selecting 'message' just gives you back a result with the message in expanded form vs. a list of topics. I hadn't realized we had lost the option to search both ways (topic vs message body.) A fully functional advanced search is definitely vital, we have such a...

You're right... Searching when selecting 'message' just gives you back a result with the message in expanded form vs. a list of topics. I hadn't realized we had lost the option to search both ways (topic vs message body.) A fully functional advanced search is definitely vital, we have such a...

I entered as a search keyword 'indemnity' and selected display as TOPIC, not message, and got back a short list of thread titles. Eta> sorry... Tried to post a link to the search results, but it was not a valid URL. <img src="i/expressions/face-icon-small-sad.gif" border="0">

I entered as a search keyword 'indemnity' and selected display as TOPIC, not message, and got back a short list of thread titles. Eta> sorry... Tried to post a link to the search results, but it was not a valid URL. <img src="i/expressions/face-icon-small-sad.gif" border="0">

If someone posts a huge line of unbroken text it will sometimes make text run offscreen. Posting huge photos in the sig line is known to do it as well. Eta> I can't remember for sure since its not there now, but I am almost positive the scroll bar is there- but wayyyyy on the bottom of the...

If someone posts a huge line of unbroken text it will sometimes make text run offscreen. Posting huge photos in the sig line is known to do it as well. Eta> I can't remember for sure since its not there now, but I am almost positive the scroll bar is there- but wayyyyy on the bottom of the...

Emily has had a button placed two ways. There is no stomach moving or reshaping in any way. The first way was endoscopically- the surgeon put the tube down the throat and pulled it through her stomach wall. This is exactly how the "long" PEG tubes are placed, but she had a button placed this...

Emily has had a button placed two ways. There is no stomach moving or reshaping in any way. The first way was endoscopically- the surgeon put the tube down the throat and pulled it through her stomach wall. This is exactly how the "long" PEG tubes are placed, but she had a button placed this...

Amy, you may have missed my question in amidst the many other posts here- are you going to have any baseline testing at clinic (sweat test, pft's etc) before starting the new med and again after a month or two? Esp given so few people with other mutations will be able to get approval for it, it...

Amy, you may have missed my question in amidst the many other posts here- are you going to have any baseline testing at clinic (sweat test, pft's etc) before starting the new med and again after a month or two? Esp given so few people with other mutations will be able to get approval for it, it...

Amy, I'm curious to know as well if you will be getting a sweat test first as well to assess yourself on some kind of clinical level, get baseline pft's, weight etc at clinic.

Amy, I'm curious to know as well if you will be getting a sweat test first as well to assess yourself on some kind of clinical level, get baseline pft's, weight etc at clinic.